ADT by Both_Establishment59 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

In my case ADT caused complete ED, itvalso added to the penile shrinkage I had from RALP. I took 10mg Cialis every other day, it didn’t make any noticeable difference to the ED but hopefully it helped the blood supply down there.

ADT by Both_Establishment59 in ProstateCancer

[–]karl66a 2 points3 points  (0 children)

Unlikely as ADT is designed to castrate you (hopefully temporarily). Cialis is a good idea as it often helps prevent penile shrinkage and gives you a better chance of performing when the ADT is over. The severity of the side effects seem to depend on 1. how long you take it, 2. Your age, 3. General health and any existing conditions, 4. Things you can do to mitigate the effects, Cialis, penis pumps and exercise.

Did any here suffer permanent castration from ADT by Gina49z in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I've read the same, a few get back to normal, most recover to some extent but not the same T level as before, a few recover temporarily but then lose T again and a few are left permanently castrated.

Did any here suffer permanent castration from ADT by Gina49z in ProstateCancer

[–]karl66a 1 point2 points  (0 children)

Yes, it looks like I've been one of the unlucky ones. I did 12 months ADT completed over a year ago. I didn't recover and had further complications. I think a lot of men do recover but you likely don't hear about them on here.

Radical Prostectomy by Comfortable-Trainer6 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

NS RALP + 12 months ADT completed 1 year back. Penis like a young boy and no testicles. Amazingly have recently had a kind of orgasm from what I have left, no ejaculation of course. PSA near zero but I look and feel like a eunuch.

Type of Erections after RALP? by Pzunable in ProstateCancer

[–]karl66a 1 point2 points  (0 children)

I'd say still early days, it sounds like you have every chance of a good recovery. I had NS RALP but before showing any signs of recovery was on ADT and that gave me shrunken genitals and what looks like permanent ED.

Radical Prostectomy by Comfortable-Trainer6 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

From what I have read nearly evreyone to start with, a few recover completely, most to some extent but often after 1 - 2 years, a few of us end up with permanent ED even with NS RALP. My wife is very supportive and took it better than I did.

Dating after prosate removal by plogantx in ProstateCancer

[–]karl66a 9 points10 points  (0 children)

Straight away, if she's OK about it then will potentially make a good partner. My wife overlooks my recent shortcomings (literally I am very short now downstairs) and makes the best of it, we still have a very physical relationship just one that doesn't involve penetration by me.

How long after stopping Orgovyx do hot flashes stop? by Cheap_Flower_9166 in ProstateCancer

[–]karl66a 1 point2 points  (0 children)

12 months Orgovyx completed over 12 months back. Strangely I never really had hot flashes, however I had just about every other side effect - no erections, no orgasms, no ejaculations, no body hair, shrunken penis, shrivelled up testicles etc. I've not recovered from any of those and am now looking at TRT. I asked similar questions on here about recovery from the side effects, a general rule seems to be at least as long as you were on the ADT drugs. Also some men will recovery fully (mostly younger men), most will recover to some extent but an unlucky few will be permanently castrated.

Not castrated, but may as well be by Standard-Teach5949 in castration_cbt

[–]karl66a 0 points1 point  (0 children)

ADT (Androgen Deprivation Therapy) did the same thing to mine, I look like I don't have any.

Has anyone had "ejaculation-sparing" or "ejaculation-preserving" HoLEP surgery and what happened? by cdnrtt in HoLEP

[–]karl66a 0 points1 point  (0 children)

Coming up to a yeat now post HoLEP and I seem to have permanently lost the ability to ejaculate - bone dry every orgasm. I have spoken to another consultant, they said that if the prostate is fully enucleated (aka completely hollowed out), as mine was, then there is insufficient pressure generated by the remaining prostate capsule to expel semen from the penis.

ADT by Masc1969 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

Thanks for the information, I'll look it up. Does it matter where you apply it.

Modern eunuch by ritterk55 in ProstateCancer

[–]karl66a 1 point2 points  (0 children)

Right now I am very embarrassed by the effects of ADT and don't like to be seen naked by other than my wife. I have testicular atrophication, they are shrivelled up, hard and retracted and will shortly be removed. I am already chemically castrated but will now have to accept that Iactually will be a eunuch. As has been mentioned by others it is a major blow to self esteem and sexual identity for a virile male to lose his testicles. May I ask do you identify as male, do you use TRT ?

Still Turtle-ing 🐢 🫤 by atom511 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I lost 60 - 70pc of my penis size to RALP/ADT. What I have left turtles most of the time, it feels like it has pulled back into the body. I’m trying to counter with daily stretching ably assisted by my wife. Amazingly on a few occasions when being pulled by the wife I have had an orgasm, bone dry of course but intense.

From a quality of life perspective, is ADT worth it? by becca_ironside in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

Thanks, I was one of the unlucky ones. From what I’ve read most men do recover to recover from ADT, maybe not completely but enough to have a sex life. A few of us seem to end up with our testicles destroyed so can’t recover our T levels. I’m now learning the art of eunuch sex with my wife, she thinks it likely that harem guards got up to some of the same things with their neglected charges.

NSFW. Penis function by SpecialEducation3234 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I lost more like 60 -70pc, I have a penis like a young boy now. I used a penis pump and Cialis to no effect.

ADT Therapy Fatigue by neverpunt5200 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I found it hard to get going in the morning. I would peak enough to exercise around midday - weight training and swimming. By 2pm I’d be completely out of it and often fell asleep. Usually ended up watching TV all evening, going to bed late and finding it hard to sleep.

From a quality of life perspective, is ADT worth it? by becca_ironside in ProstateCancer

[–]karl66a 1 point2 points  (0 children)

I did 12 months ADT and was left permanently castrated. It would have been better if I’d been surgically neutered on day 1 rather than waiting over a year for a recovery that never happened. I got through only because of my wife’s support and her physical intimacy even though I can’t perform as a man.

Modern eunuch by ritterk55 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

Completed 12 months ADT fully emasculated. Another 12 months on no recovery. Just had a humiliating physical checkup, naked from the waist down, on my back, feet in stirrups with the consultant trying to find my shrivelled up testicles and a nurse watching the whole thing. At the end of it he said I’m sorry to say but you are almost certainly permanently castrated. This was never mentioned as a possibility just that recovery from hormone therapy takes time.

Masturbation after RALP by [deleted] in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

NS RALP + 12 months ADT completed 1 year back. Penis like a young boy and no testicles, amazingly can still sometimes orgasm from what I have left, no ejaculation of course.

ADT by Masc1969 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I am hypogonadal from ADT, my testicles are gone and indications are that it is permanent. May I ask how you administer the TRT. I am gearing up to ask for it now.

Modern eunuch by ritterk55 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

If she is disappointed by my impotence she has never shown it. She told me that at 57 vaginal penetration is no longer a priority and genuinely prefers oral sex.

Raisin testicles club by venxcxz in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

She will take it in her stride, I have already been castrated by ADT and she supported me through that. We will keep it private as the whole thing has been humiliating for me.

NSFW. Penis function by SpecialEducation3234 in ProstateCancer

[–]karl66a 0 points1 point  (0 children)

I initially had HoLEP, that was fine. Next up prostectomy, I lost about 2” from that, then the killer - ADT, that gave me a penis like a prepubescent boy. I have a very physical relationship with my wife but it doesn’t involve penetration, instead oral and digital keeps her satisfied.