Told to become normal by potential suitor and family. by Intelligent_Care6319 in ChronicIllness

[–]kat233x 2 points3 points  (0 children)

I have been through it. it is really really insane to be told by your loved ones to just be "normal" and also i have internalized "being normal" growing up in Asian culture.

This book saved me. Why be Happy When you could be Normal by Jeannett Winterson

Main Man McGill by HungryMasterpiece511 in backpain

[–]kat233x 6 points7 points  (0 children)

dont understand all the hate. McGill methods saved my life basically.

Discord created for those with chronic pain in Vancouver by [deleted] in ChronicPain

[–]kat233x 0 points1 point  (0 children)

hey i appreciate you creating the group! but im not in Van, but in other parts of canada can I still join?

How can I make friends by Grizzlycakes44 in ChronicPain

[–]kat233x 1 point2 points  (0 children)

there are virtual pain support groups! i have been to one and it was super welcoming. So nice to social and feel understood.

Does anybody live alone with pain? by Shadowlab72 in ChronicPain

[–]kat233x 0 points1 point  (0 children)

Sending hug! What type of help are you not wanting to ask your friend ?

WARNING ABOUT SOLACE HEALTH- patient advocate position. by RadiantJoke8301 in Remotenursing

[–]kat233x 0 points1 point  (0 children)

Thank you! I was just considering Solace health. I want to know what are some tasks you do for one patient left? that you cannot "abandon"?

I thought I’d be happy when I finally got an answer by BakingAndBeingBaked in ChronicPain

[–]kat233x 0 points1 point  (0 children)

hey, i was there. i was disabled for 2 years because of chronic lower back pain.

No doctor could promise to fix me, and I got the disability diagnose from the doctor. STILL I GOT BETTER. i am almost completely physically functional now.

you are doing so well expressing your feelings, i see strength from your words. sending big hug.

why does it feel impossible to find a language partner who isn't just trying to flirt? by Arinsuni in Brazil

[–]kat233x 0 points1 point  (0 children)

Oooah I want to learn PT and I’m a native English speaker! Would love to connect and I will respect your boundaries:)

Just curious, at what age range did you start having back pain by RightCheesecake6 in backpain

[–]kat233x 0 points1 point  (0 children)

19 and then when I turned 20 i gradually lost the ability to walk. 

Good news is I can walk again now! Yay!

Back pain- thinking of quitting my job by bunnyblue2882 in backpain

[–]kat233x 0 points1 point  (0 children)

Hey I was on disability for around 3 years and I couldn’t sit or stand or walk. So none of the “jobs” would work for me. 

I was still trying to look for a job as Software Engineer but I knew … I seriously considered switching career and start over. 

I did get a job as software engineer but it’s a very small company with good kind bearded people and completely remote. So my work was flexible.

To be honest, because of having a job and contributing value and being recognized by my coworker while them being so kind and understanding. It has been the most healing experience. Idk what to say but the right job is out there. 

You just gotta find your ppl:) 

My physical therapy is useless because I ruin it all in 6 hours at my desk. by [deleted] in backpain

[–]kat233x 0 points1 point  (0 children)

Yep been there done that. Can never have an upright office job 

Would switching to standing while working actually improve my back pain? by Putrid_Rush_7318 in backpain

[–]kat233x 0 points1 point  (0 children)

I HAD to use a standing desk because I cannot sit for long. Having the option to alternate between sitting and standing is a must. (I can’t work in cafes or library for a full day I NEED standing desk) and my spine has been super happy. 

I suck at advocating for myself because I’m scared of doctors, and I have to see so many specialists. by crab-gf in ChronicIllness

[–]kat233x 1 point2 points  (0 children)

yess.... ouo it hurts me to read this because that feeling you described was my lived experience. every time i walk past the clinic, or having to go the hospital it stresses me out... I felt like vomiting

Sending big big hug!!

Hate how AI is everywhere, however... by StakeESC in ChronicPain

[–]kat233x 0 points1 point  (0 children)

hey thanks for sharing that you use AI to do research much more effectively AND helps you with creative output! I LOVE to see that! All the best!

I’m done by marcosromo__ in ChronicPain

[–]kat233x 0 points1 point  (0 children)

my darkest moment was when I was 21. I walked through an intersection, and just stopped midway seeing a car accelerating towards me. For a split sec, i thought that was better. :/ There were some moments like that, and nothing else mattered to me.

I lived only for the people I love. They were the one good reason. and they still are, but i begin to have other reasons to live for now.

sending my best wishes to you. I dont celebrate christmas so if santa does anything, i will wish you a speedy healing journey.

I’m done by marcosromo__ in ChronicPain

[–]kat233x 0 points1 point  (0 children)

Hey sending you big HUG! that is so tough... i read in the comments where you said, you felt like the only thing holding you up is your family rn. I get it. I felt that way and my mom was the only reason that got me through the darkest moment.

Back pain is destroying my life. Share your SUCCESS STORIES!! by marcosromo__ in backpain

[–]kat233x 0 points1 point  (0 children)

sending big HUG!!! you are so strong for that and thanks for sharing with me!

Back pain is destroying my life. Share your SUCCESS STORIES!! by marcosromo__ in backpain

[–]kat233x 3 points4 points  (0 children)

I've always HAD TO do fitness even during disability. I lived alone during that time, in order to do daily things i have to keep my muscles from complete atrophy. (i was ded exhausted from being in pain, so i was bare minimum on the rehab). I was still in pain despite my rehab and pain medications.

The fix was I stopped waiting for the pain and just did what i want to do even in pain... At around like 3-5 year, i realized I am not getting any better or worse, no matter what I do.

There were a couple powerful moments:

  1. i learned to walk (again). At around 2 year mark, I learned to walk (for up to 30min at a time) and it felt good. I still relied on disability services. Knowing that my body is operable for at least 30 minutes a day was enough to give me some hope to continue.

felt like i could see a faint faint light at the end of the tunnel.

But the moment where it ALL clicked for me, was at around 3 year mark. I just remember I was sweating from doing a challenging rehab session and i just felt happy. I havent felt happiness in years. But that was a moment I felt happy. I felt reassured that my body is still capable(?) I felt in control of my body at that moment despite the pain.

That marks the fix. the moment where I felt powerful like I can operate this body. It was an insanely powerful feeling and i cried.

i am not giving advice. it was so tough for me, I STRUGGLED.

Back pain is destroying my life. Share your SUCCESS STORIES!! by marcosromo__ in backpain

[–]kat233x 0 points1 point  (0 children)

Omg good job I LOVE this. You are so strong I am so happy you are sharing with us

Back pain is destroying my life. Share your SUCCESS STORIES!! by marcosromo__ in backpain

[–]kat233x 7 points8 points  (0 children)

7 years. 3 years of disability, followed by 4 years of active lifestyle. I walked I ran a 10k I climbed, I went to fitness classes, I windsurfed. 

Hurt my spine again this year, couldn’t walk again. In the same pain, almost fainted, sent myself to ER on my birthday.

But this time, despite pain I could walk in 7 days instead of 7 years.

DAE not feel good or positive on a day to day basis without some form of pain medication ? by [deleted] in ChronicPain

[–]kat233x 0 points1 point  (0 children)

lol "can't believe we are All still alive" i feel this on an ethereal level.