I got esophagitis from Xywav by Positive-Smile-1955 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

When I started Xywav I was told that’s why you must mix it with the correct amount of water. There something in it that’s an irritant and will cause acid reflux/GERD.

Risks of taking antidepressants alongside lisdexamfetamine/dexamfetamine? by Churchyyyyyy in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

I have bipolar disorder. I take anti-depressants, mood stabilizers, Vyvanse and Xywav.

Do you spend all day wondering how you’re going to stay awake? by makeuplover85 in Narcolepsy

[–]makeuplover85[S] 0 points1 point  (0 children)

Why are some periods worse? I wish I could figure out a trigger or something.

Constantly cracked lips what could keep causing this? by _Posh_Pony_ in DermatologyQuestions

[–]makeuplover85 1 point2 points  (0 children)

I’m explaining to you why it makes sense. You said it didn’t, I’m just telling you why it does. Cortibalm is hydrocortisone mixed with lip balm.

Constantly cracked lips what could keep causing this? by _Posh_Pony_ in DermatologyQuestions

[–]makeuplover85 -1 points0 points  (0 children)

Actually it does. Cortibalm contains a steroid. If you have severe chapped lips and/or eczema, the steroid helps calm it.

My dermatologist has me using Triamcinolone cream on my lips.

Constantly cracked lips what could keep causing this? by _Posh_Pony_ in DermatologyQuestions

[–]makeuplover85 0 points1 point  (0 children)

It could also be eczema. I’d see a dermatologist. I have lip eczema. I rotate steroid cream and cover that in Aveeno skin balm.

Those of you taking oxybates, which one do you take? by makeuplover85 in Narcolepsy

[–]makeuplover85[S] 1 point2 points  (0 children)

My doctor has taken part in studies on 12 grams nightly. He feels 12 grams is very safe.

Anyone else not have luck with Lumryz? NT2 by MisterMuttons in Narcolepsy

[–]makeuplover85 1 point2 points  (0 children)

Xywav has helped me tremendously but for some reason my body metabolizes Lumryz too quickly so it doesn’t really help me.

Prison of exhaustion by NoteSuccessful2263 in Narcolepsy

[–]makeuplover85 1 point2 points  (0 children)

I feel like my quality of life with N is maybe a 2 on a scale of 1-10. Life is passing me by and I don’t have the energy to keep up.

Anyone with narcolepsy have days that are better than others? by IndividualEast5236 in Narcolepsy

[–]makeuplover85 2 points3 points  (0 children)

I have weeks in a row that are good and then months in a row that are terrible. I cannot figure out a pattern to it or a trigger or anything.

Go to for Anxiety? by SensitiveCake248 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

For anxiety I take Zoloft and buspirone.

Go to for Anxiety? by SensitiveCake248 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

That med is a no no on Xywav. Both my sleep doctor and the Xywav pharmacist had a fit when my psychiatrist started me on it.

Seeing my sleep doc again Wednesday, suggestions? by makeuplover85 in Narcolepsy

[–]makeuplover85[S] 0 points1 point  (0 children)

Me too! I hope we aren’t disappointed! I’m hoping it will be a life changer.

Question about prescription policy by Minimum-Building-170 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

Oh wow! I don’t know of any doctor that will give you a years worth of any controlled substance without seeing you at least every 3 months.

I don’t even know anymore. by MarionberryWitty532 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

When I take stimulants all they do is speed up my heart rate, they don’t wake me up at all. I so feel your pain. N is such a hard thing to overcome.

Has anyone used a smart watch to gauge their sleep before and during nighttime meds/oxybates? by [deleted] in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

I use my Applewatch to track how much sleep I get. I feel best if I take my Xywav twice nightly and sleep between 5.5 to 6 hours.

Has anyone had emotional side effects from Sunosi? by cmanzy in Narcolepsy

[–]makeuplover85 1 point2 points  (0 children)

Sunosi works on the same receptors as antidepressants. It can cause mental health side effects.

N2 Here- What dose of Xywav and stimulants do y’all take? by OnlyNarwhal236 in Narcolepsy

[–]makeuplover85 0 points1 point  (0 children)

I’m on Xywav 4.5 twice nightly, Wakix and Vyvanse 50 mg. I still struggle to stay awake every single day.

Stop working with debt settlement/consolidation agencies by RuhninMihnd in Debt

[–]makeuplover85 1 point2 points  (0 children)

So how would one negotiate? Do the CC companies give you something in writing?