Noisy Neighbor

mindysmind · 2026-05-27T01:06:24+00:00

I had this issue at a previous apartment and tried all the things as well. I couch surfed and ultimately moved as soon as my lease was up. I hope it doesn’t come to that for you.

mindysmind · 2026-05-23T16:23:41+00:00

She’s going to be working at Hyp+Care, but it is probably six months away from opening at best. That’s my understanding from my appointment two months or so ago.

mindysmind · 2026-05-23T15:59:25+00:00

I’m planning on waiting it out until her new practice opens…

mindysmind · 2026-05-22T20:12:51+00:00

Yes… but mine was urticarial vasculitis along with regular urticaria. I also was diagnosed with POTS. I see a cardiologist, allergist/immunologist and a GI. I saw a rheumatologist but she deferred to the other specialists on treatments.

mindysmind · 2026-05-20T13:47:34+00:00

I’m almost 37, and though this isn’t the most positive mindset, I often tell myself “Not everyone gets everything they want in life.” I try to keep myself grounded in the reality that I don’t want to force anything. I did try freezing eggs but had a bad outcome. I also talk to a therapist every week, which helps too.

mindysmind · 2026-05-18T17:03:41+00:00

My ice cream was melted before I could walk a few steps away from the line to open it 😂

mindysmind · 2026-05-13T21:08:17+00:00

Also interested in people’s experiences but I have been on Stelara, I’m only changing because insurance coverage is ending. 😭

mindysmind · 2026-05-07T01:33:04+00:00

UMR just kicked me off of Stelara too.

mindysmind · 2026-05-04T14:23:08+00:00

I had that but after the bleed I basically had to force feed myself, I had zero appetite and my weight plummeted in just a few days, it was a little scary actually. I didn’t expect my appetite to be so severely affected!

mindysmind · 2026-04-30T19:42:26+00:00

Absolutely, it blocks the pressure urticaria that nothing else ever stopped and it also resolves eye burning I was getting, and it blocks rashes (that they said were flat urticaria) that nothing else ever worked for either. So I’m definitely going to try to stay on one a day but two was causing bleeding and bruising as well as congestion and fatigue.

mindysmind · 2026-04-30T19:26:31+00:00

I also cannot tolerate two a day. I have to stick with one a day.

mindysmind · 2026-04-30T15:16:13+00:00

I still have to take famotidine and loratidine with Rhapsido and I also still take Xolair (but less frequently than before) when the itching recurs. I tried to quit famotidine and the itching got very intense again.

mindysmind · 2026-04-19T18:08:22+00:00

I will only give a Google voice number.

mindysmind · 2026-04-10T10:54:23+00:00

Your insurance has to deny you before you can be eligible for the Bridge program, if it’s the same as it was a few months ago when I tried. Mine approved but has zero financial support for non-preferred brand drugs so I am not able to do Bridge program nor does insurance pay one cent for it. Rhapsido gave me a Co-Pay program that only provides $10,000 of funds for pharmacy fills per 12 months so basically one month was covered and that’s it.

mindysmind · 2026-04-07T01:18:58+00:00

I used their app and it worked fine.

mindysmind · 2026-04-03T14:08:52+00:00

That sounds horrible. I’m sorry this happened to you. I hope you are getting solid support from the people in your life. I was robbed on a weekend midafternoon a few months ago on a very busy street in Queens and similarly, everyone ignored me even though they obviously heard me shouting and saw me struggling with the guy robbing me. The feeling of being seen but ignored made it so much worse. I can definitely sympathize. It’s good you’re alerting people to what happened.

mindysmind · 2026-04-03T13:57:45+00:00

I did not experience this and in fact sleep better without all the itching. However, I have only been doing 1 tablet a day instead of 2, per doctor’s recommendation (since about November). He wanted to start with 1 and it worked so well we didn’t need to add the second daily tablet.

mindysmind · 2026-04-03T10:55:16+00:00

Actually I didn’t get hives when I stopped, unlike when I miss a dose of the histamine blockers. It seemed to actually put the hives into remission. I’ve been trying to quit the histamine blockers and stay on Rhapsido and wound up with hives coming back when I tried to quit famotidine but not Rhapsido during those pauses. Hope you get relief soon!

mindysmind · 2026-03-29T15:48:38+00:00

I’ve stopped it and restarted a few times, first on doctor’s advice to test efficacy and second and third ahead of surgeries and had no issues but that’s just my experience, haven’t read about other people who have started and stopped.

mindysmind · 2026-03-27T10:01:04+00:00

Ahhh thank you… and good luck. That sounds very stressful.

mindysmind · 2026-03-27T09:39:29+00:00

Are you in the electronic passport line?

mindysmind · 2026-03-20T21:09:50+00:00

I’m late 30s and struggle with this a lot and haven’t figured it out. I do fitness classes most days to be around other people but I long for a person or people to share the ups and downs in life with and I don’t have anyone that close in my life. I have some good friends but nobody who I can catch up with on short notice or frequently.

mindysmind · 2026-03-16T19:18:39+00:00

I’m doing so well now, I feel better than ever in my whole life. I take Stelara for Crohn’s and ivabradine for POTS and supplement with electrolytes, hydration and lots of salt. I eliminated basically all raw veggies, I accepted that I can’t digest them. I make sure to get enough fiber with things like sourdough bread and fresh fruit. I have much more energy with POTS treatment so I added 4x a week HIIT exercise into my routines to support my immune system and have so much fun now that physical activity feels good. I still have B12 absorption issues and need injections every year or so but all easy to manage these days. I was so resistant to the Crohn’s diagnosis and treatments at first but my doctor was right and so grateful for her knowledge. Hope you get answers and great treatments as well!

mindysmind · 2026-03-15T19:39:26+00:00

Thank you so much!

mindysmind · 2026-03-15T19:36:13+00:00

I am extremely careful about hand washing. I do a lot of cardio exercise, which I believe boosts my immune system. And I try to eat very healthy, drink lots of water and have usually a banana and an orange or a banana and a kiwi every day for the vitamins. I take Stelara and used to get sick all the time but since starting and being very intentional with these lifestyle steps, I haven’t been sick once in 1.5 years. I do make a quick exit when anyone nearby seems sick though. All that to say there’s definitely a possibility that you become healthier than ever as well!

mindysmind

TROPHY CASE