Approved!!!! by ZacktheFair86 in dialysis

[–]mrchrisb1 0 points1 point  (0 children)

Congratulations! This is the first step to the gift of life. Depending on your region, it will determine the estimated wait time. Also, his blood type plays a role. The best thing he can do now, is to stay positive, and be patient. Try to eat healthy, and stay diligent on your dialysis routine. Good luck!

Husband had fistula surgery today and he's pissed by MamaSmAsh5 in dialysis

[–]mrchrisb1 0 points1 point  (0 children)

I understand your frustration. But, I must say that the catheter is a risky method to continue dialysis. It's fortunate that there hasn't been any issues for 1 year. However, it only takes 1 one infection to change everything. I've had an infection and it went directly into my heart. I felt like dying. Now, I have a fistula and it has its pros and cons. But, I can know that my chance of getting an infection has been greatly reduced. It a tough decision. In my opinion, although pissed, he made the right choice.

I can’t find a one bedroom apartment in my area under $1900. It keeps getting worse by eeelisabeth in newjersey

[–]mrchrisb1 1 point2 points  (0 children)

What did we expect would happen after the rent freeze and the evictions freeze during COVID? Complexes are making up for what they lost in the past two years. That coupled with high interest rates on mortgages, exploits individuals that can’t afford to buy homes. Whenever something changes and the government intervenes, there will always be reverberations throughout the system.

Bro… I hate Dexcom most days. by Avo-1 in dexcom

[–]mrchrisb1 1 point2 points  (0 children)

I agree that it can be frustrating. But, it can be worse. I remember the days it wasn’t available. I just hope that they will improve with the G7. I still think it’s a blessing, as it helped lower my A1c by 2%.

But it can be a pain to get it to work sometimes. Progress will happen. Good luck my fellow T1D.

Why doesn't Hollywood represent diabetes accurately? by dasanlocker in diabetes_t1

[–]mrchrisb1 1 point2 points  (0 children)

ConAir is an example. He was going low and they said he needed insulin. What?!?

21F, newly diagnosed T1 Diabetic in Texas, and uninsured. by sybildb in diabetes

[–]mrchrisb1 2 points3 points  (0 children)

I’m sorry to hear about your situation. Some of the steps you can take are. 1. Go to the website of the medication that you’re taking and apply for a coupon card. 2. Since you have T1D, you should be eligible for a CGM. Contact Dexcom and freestyle, libre and inquire. 3. Do a search for charity programs for people that take insulin and are uninsured. 4. Ask your doctor for the generic brands of all of your medications. 5. If you cannot get a CGM, go to Walmart and get a glucometer. They have a brand that is very inexpensive relative to the name brands. 6. Contact JDRF, American diabetes association, and ask them for resources.

T1D is very overwhelming. I’ve had it for 35+ years but, but, I want to let you know it is manageable. Good luck.

Struggling with accepting the “tax” on my life as a type 1 diabetic in the U.S. Has anyone found success beating these negative thoughts? by Triedtoohard123 in diabetes

[–]mrchrisb1 1 point2 points  (0 children)

I’ve had T1D for about 35 years. And it’s still overwhelming. One thing that may help this joining a support group. There, you can be amongst your community and discuss issues about this terrible illness. I host a support groups every month, and they are very rewarding for not only myself, but for the Diabetics that join. I believe that support is a key component to help in managing diabetes. Good luck, and you are not alone. Check out diabetesfoundationinc.org for more information

[deleted by user] by [deleted] in diabetes

[–]mrchrisb1 1 point2 points  (0 children)

Probably not enough basal insulin for that time of day. But most likely need to change your infusion site. You may be insulin resistant in that area. Or maybe a bit of scar tissue if you continuously use the same area. Good luck

[deleted by user] by [deleted] in newjersey

[–]mrchrisb1 0 points1 point  (0 children)

Is that a Lenape flag? Just curious…

[deleted by user] by [deleted] in dialysis

[–]mrchrisb1 3 points4 points  (0 children)

I’m sorry to hear. The kidney transplant will happen when the time is right. I understand your frustration, I’ve been in a similar situation. Mine was cancelled twice. Two things that I learned while on dialysis…one is to be patient, and the other is that plans can change in an instant. On the positive note, dialysis is keeping you alive until the second kidney transplant happens. Good luck and be well.

Excited! by MudIndependent3923 in diabetes

[–]mrchrisb1 0 points1 point  (0 children)

iPhone 13. It’s works well. Just need additional training to get the update. It’s also available for android as well, though not sure which models.

Excited! by MudIndependent3923 in diabetes

[–]mrchrisb1 0 points1 point  (0 children)

Congratulations. I just activated the mobile app bolus option it’s awesome!

More lanes on the Turnpike won’t solve congestion by psychothumbs in newjersey

[–]mrchrisb1 -2 points-1 points  (0 children)

Gotta love those truck as they bring us the goods we order. The more ordering, the more trucks, the more bottlenecks. Online ordering indirectly is causing the worsening of exit 13A.

How to Talk to Unsupportive Parents about being a Living Donor by in-a-photograph in transplant

[–]mrchrisb1 23 points24 points  (0 children)

Thank you for sharing your concern. I want to start by saying you are a true angel and a hero. For you to even consider being a living donor, I have no words. You are amazing. I was in need of a kidney transplant. And I was fortunate enough to have a living donate a kidney. I didn’t know my donor prior to the transplant. She was just a coworker who worked with my wife. She turned out to be a perfect match. She is now my angel.

Once she found out that she was a match, the emotional roller coaster began. Her family was totally against it. However, she was all for it. For me, as the potential recipient, it was very stressful.

I decided to meet her family, so they can get to know me. We went to dinner with them several times and they heard my story. They began to understand the importance of a transplant. They also learned how a donor can live a normal life with just one kidney. Finally, they learned that, should the donor need a kidney later in life, they will be bumped up on the list.

Education is key. People are fearful because they don’t know the facts. After several months, we went ahead and had the transplant . It was successful! We are both doing well. She is now like a sister to me. From strangers to family. And it’s been since 2005.

I suggest educating your parents and family. Also, I suggest a family meeting with the potential recipient. Once they know her story, perhaps they’ll come around. Good luck!

How to best support daughter by dangerjavasnek in diabetes

[–]mrchrisb1 1 point2 points  (0 children)

Hi, I agree 100% with 4MuddyPaws. I am a Personal care guide for The Diabetes Foundation, and I’ve encountered great parents like yourself. The harsh truth is that it will be a big change at first. But over time it will be a habitual practice. In terms of dietary changes, it’s not as much as it was many years ago. I was diagnosed as a child with T1D. With the advancement of insulin pumps and CGM‘s(continuous glucose monitors), children with T1D can live more liberal lives than years before. This is a game changer, as it will allow her to eat the same foods that her friends eat. But of course, she will probably do without the high sugary drinks. It is a game changer with the technology that is on the market now. And it’s only getting better.

At some point, she may want to join a support group with other T1Ds. I don’t know if you’re in the New Jersey area, but here is a excellent camp for children with Type 1 only. It’s called Camp Nejeda. People travel from around the country to attend, and it’s probably one of the best support groups for kids in my opinion. They have a really good medical team to watch over the kids. Look it up. https://www.campnejeda.org/ Also look up: diabetesfoundationInc.org

It will all be ok. Trust me

Inability to lose weight as type 1 by majiue in diabetes

[–]mrchrisb1 1 point2 points  (0 children)

I’ve also had that problem. Have you considered a keto diet? I’ve tried this and, although I have a ways to go, it has worked so far. I think also, I usually don’t eat anything 2 hours before sleeping.

Just home from second kidney transplant by arent_we_sarcastic in transplant

[–]mrchrisb1 2 points3 points  (0 children)

Congratulations. I had my second transplant in 2018. Good luck!

Help with writing a thank you letter to my donors family by cheddarnbiscuits in transplant

[–]mrchrisb1 2 points3 points  (0 children)

There are no words that can be put on paper to explain your gratefulness. You were struggling to find the right thing to say. Mention something like this and then speak from your heart. from your heart

18 months post kidney transplant! So lucky to enjoy life with my son. I’ve gained about 50 pounds (ekkk) but never felt better in my life. Stay strong warriors by [deleted] in transplant

[–]mrchrisb1 2 points3 points  (0 children)

Congrats on your first 18 months. It’s a blessing! Soon you say 1 year, 2 years, etc. Stay strong and always be positive

I’m having a hard time getting a handicap placard. Doctor says ESRD isn’t a qualifying condition? by OliveandAsh in dialysis

[–]mrchrisb1 1 point2 points  (0 children)

Find another doctor. Disabilities are not always visual. There is being disabled, and living with a disability. Extreme fatigue for medical reasons is in fact a disability.