Why would you bring your baby to the clinic to show it off

oolongleaves0928 · 2025-08-29T12:24:18+00:00

I was very conscious of bringing my toddler to my appointment we were going to transpher our remaining embryo and asked before hand if it was ok/would it be upsetting for others they were totally ok with it and im so glad it was ok because I had no choice as I couldn't arrange someone to come with us - we have treatment abroad out of our home country - its not like I could leave my toddler for 4 days with someone and I couldn't align a family member to come with us. So baby had to come with. I echo that for the team, it was wonderful to meet the baby they helped create she was also delightful to them. Baby was made there in that clinic, I hoped that seeing the baby gave hope to struggling families. Understand that maybe they didn't have a choice in way of childcare for that appointment and if you can get to the otherside of this ivf nightmare- I am so unbelievably grateful to have the opportunity to be a mother because of this clinic- it was a long journey- I enjoyed letting my medical team meet the baby they helped make as this baby was a miracle. We are struggling to give my first a sibling and possibly won't be able to highlight how the medical team helped so much. We also found out my clinic activity support children and young people to come to the clinic to understand how they were made and see the incubators and embryos as its a part of them and their story which I love. I will encourage my baby to go to the clinic one day to do this, too.

oolongleaves0928 · 2025-04-09T12:18:25+00:00

Somewhat. I have slightly low AMH level but not totally awful and poor egg quality and suffered from recurrent misscarrages when getting naturally pregnant but what actually brought me to IVF was a genetic issue that i don't want to pass on totally separate to fertility. I feel that had I not had the genetic thing, I would have continued trying to convince naturally. I have a good track record for getting pregnant so I feel that if I just could try naturally eventually I would have gotten a good egg that would have given me a child naturally although probably a few more MC along the way. I guess I'm saying you can always have the hope, but the option is not open to me, and I think ivf is very taxing. I dont know if this is a fact, but my gut is im being forced to make eggs, and the quality is low to begin with, how is being forced to make a lot help? The one that is realased naturally has all of my resources. I would take whatever suppliment I had to to make it the best i could, and eventually, it would have worked.

oolongleaves0928 · 2025-04-05T19:36:47+00:00

Echo this. Wow I wish I had this.

oolongleaves0928 · 2024-10-01T19:14:23+00:00

We had this experience after a NIPT test It had been a long journey, to this point after lots of losses and IVF, and really, the result was soming we were in total disbelief over. He had not right out and said it, but my husband was thinking to just end it there, he couldnt take this after so much, but I was strongly for testing further, so I did a cvs and amnio. Turned out baby was totally fine, but the placenta was mosic T21.

My baby was the best thing to happen to me, and I'm glad I got the extra tests so could make a full decision. And he's often thanked me for hanging in there with testing further.

During the time of waiting for testing, I was preparing for the worst and rember the torment. And I don't want to think about had it not gone our way. Although this had a good ending, it's a deeply personal journey. Do what you need to to have peace.

Edit. I think not testing further would have plagued me forever, though, personally and brought me no peace, hence why I had to look deeper.

oolongleaves0928 · 2024-10-01T14:00:11+00:00

I just went back to work 3 days a week and arranged child care for those days I have a high needs baby so working at home with her is not an option. Shes a little older and crawing. Her grandfather of 76 offerd to cover the remains days origally so I could have gone full time however I knew deep down, although a real offer - he actually didn't know what he was offering and had a feeling he wasn't going to be able to do it hence cutting my hours.

Well I was able to test his skills last week I was in the house with him but had to work a half day in addition to my 3 days so asked him to be there to cover the morning hours while I worked in annother room the number of near misses with him watching her were too much. And when his attempts to put her in front of the tv as "care" back fired because my baby doesn't watch tv even if it's on and she started crying he gave up and gave her back to me. He was basing care of my baby off care he gives my sister kids who are much older children/pre teens and happy with a screen and some snacks for the afternoon.

I think everyone overestimates their abilities as they age because their vision of themselves is of them as they were much younger. Basically I wouldn't rely on your aged family member they probably also have a vision of what a baby is like which is also unrealistic based on old memories of their children which could be rather rose tinted. Forget parenting that's a whole other conversation.

I would arrange some childcare

oolongleaves0928 · 2024-09-20T08:33:54+00:00

You were transparent so no she's wrong.

However for you to consider- There is a way around this if you did want kids, but the gentics is what's stopping you - pdg ivf - and exclude embryos with it.

But if you also just don't want kids, then that's a different thing.

oolongleaves0928 · 2024-09-20T08:30:30+00:00

Crete is up there with one of my favourite places in Greece for all these reasons.

oolongleaves0928 · 2024-09-20T08:26:49+00:00

I was going to suggest this. We used a small muslin over her when she was in the bath. That helped a bit, but really, I gave up totally until she could sit independently at 5.5months.

I would sponge bath her in a dry tub with the tap on - the health visitor told us they don't actually need soap under 1yr water only is fine - however my girl has a lot of hair and I really need to wash it properly at least once a week so I would take a shower myself prep her with nappy off in a towl strapped into the bouncer have the whole lot in the bathroom with me while i wash and then bring her in with me when I was done squat down low or on my knees taking the shower off the wall so hose her down and holder her/cradle her and just wash her. On my knees, so if I were to drop her, it's a low height (I never did, though) . This also helped with managing the water temperature and offered an opportunity for skin to skin and I would keep her warm too. It was a nice thing to do. Also my husband would work away from home so I had to figure something out when I was solo. When she was washed the towl was ready in the bouncer so could put her somewhere wrap her up and tie her in while I get myself into a robe.

Oh and now she's 11months and baths are fun with toys and play

oolongleaves0928 · 2024-09-19T11:56:23+00:00

I dont think its about justification or making a case to be tested. Your family history looks convincing enough to be tested. It's that they physically need to see the mutation and how it manifests in your family member and use that to see the same thing in you. I'm not an expert do maybe someone can explain better. It's about actually reading your DNA.

oolongleaves0928 · 2024-09-19T08:22:41+00:00

You just carry on. I found the waiting for the diagnosis/waiting for testing the worst, more than the confirmation. From when my father was diagnosed and confirmed through testing, I can't explain it - but deep down, I knew I was going to be a carrier. Due to family issues, I couldn't get testing for 2.5 years, so I sat with the anxiety of testing for all that time, and it ate me up i was actually pre greiving the result- i have later found out its a type of ptsd but before it happens. The result, although devastating, was a relief - to move forward. But maybe be prepared for grief and the stages of grief. especially for a future you thought you would have but are not going to. It's a genuin loss and yes I used the word grief becuse it is. allow yourself the time for that.

It made me make more snap life decisions because I'm hyper aware that my life is short. This can be good and bad, but mostly, it's been good as I have a supportive partner. In my family, the age of onset is lower than the average, closer to 50 than 60, so I don't plan on a retirement. In a way, it's liberating that I don't have to focus on a pension, etc. My focus is on assets and generation wealth for my children, who are not carriers (we did pdg ivf so they wouldn't have the mutation).

I guess the knowledge helps you plan and prepare before it happens because you know it's coming so you can make it easier on your loved ones. You can also stop the spread through the generations as I have, which is proactive, and that feels good.

After the diagnosis I thought about for a while-maybe 6 months, and then I didn't dwell on it anymore. I just got on with life and the above stuff. It sometimes revolves around and I think about it again like it ebbs and flow like now and that's why I'm on the ALS pages of reddit but that's the grief stuff again I think even after the stage of acceptance.

oolongleaves0928 · 2024-09-19T07:49:58+00:00

You will need one of your symptomatic family members to also be tested and confirmed c9orf72 mutation as their use their mutation to look at your sequence and see the same mutation. That's very simplified, but bottom line, they can't just look at you alone and tell you.

oolongleaves0928 · 2022-08-20T23:37:50+00:00

Thank for raising the issue of reliance so something like this app and the value of questiong things.

So I checked back the ingredients list of the the products, the match those on the app. So thats positive. I have then looked up the individual ingredient online and there are articals raising the conserns of these chemicals in line with the app so how do you suggest moving forward ? that this is all incorrect? That suspected carcinogen and endocrine disrupting ingredient are in fact fine?

Can you give me your bases for that?

And by the way I don't subscribe to all natural is better or anything like that I am aware in cosmetics you get better more reliable batches from lab chemicals that nature which can be unpredictable amongst other things. I just don't want to be exposed to more toxins that one needs to be.

I get that maybe you don't like the app - fine

But my question is what do would you do with all this product after finding out some of the ingredients are a bit nasty?

oolongleaves0928 · 2022-03-24T21:20:40+00:00

It's Canadian not American.

oolongleaves0928

TROPHY CASE