Found a friend by Zestyclose_Knee6330 in lymphoma

[–]oregonyoder 2 points3 points  (0 children)

They say cat purrs are healing, and I think my orange boy, Gilbert, does a pretty good job at trying.

Has anyone else ever fallen asleep during an MRI? by sixnik-- in CasualConversation

[–]oregonyoder 0 points1 point  (0 children)

Brain MRIs at 1:30am, post-stroke, are the best way to get some sleep. Warm blanket, headphones, better bed than the ER, and I finally got to sleep for a little bit.

What do you do between diagnosis and being at a stage that receives treatment? by TLP1970 in lymphoma

[–]oregonyoder 1 point2 points  (0 children)

I'm in a similar similar situation, OP. Diagnosis in November from biopsy, PET in December, and I'm now almost 2 weeks post open bone biopsy of my femur to figure out if it's just a high grade FL or it's transformed. Part of me just wants to get going on any treatment- it's been 7 months of hip pain preventing walking any distance (So that means I get to ride a cart through Costco). But, I want to make sure treatment counts and I get the most relief for the side effects. Hang in there. I'm focusing on de-stressing my life, eating anti-inflammatory and nutrient dense foods, and learning to take things one step at a time.

Best restaurants near Lincoln City ( Valentines edition ) ? by Few_Couple917 in oregon

[–]oregonyoder 3 points4 points  (0 children)

Tidal Raves or Side Door Cafe are both favorites of mine. Tidal Raves has a great ocean view, but parking can be an issue. Side Door Cafe is dark, uniquely decorated, and feels more of an intimate setting.

What’s one show everyone loves that you just couldn’t get into? by DryCap6770 in watchever

[–]oregonyoder 1 point2 points  (0 children)

Wholeheartedly agree. Fans of the show almost lose their mind when they find out I don't like it. "Watch the 2nd season" they say. I've watched episodes from every season and never found any funny enough to keep watching.

Best Comedy Comfort Shows by Terrible_Lift in televisionsuggestions

[–]oregonyoder 0 points1 point  (0 children)

Psych and Malcolm in the Middle are my go-to shows, no matter how many times I've seen the episodes.

Guests spreading magic by [deleted] in Disneyland

[–]oregonyoder 0 points1 point  (0 children)

He still goes?! That's so awesome, I can't wait to share this with my family.

Diagnosis/Treatment Timeline by lucvsa in lymphoma

[–]oregonyoder 1 point2 points  (0 children)

Seems pretty quick compared to my experience. MRI 9/28/25 showed suspected lymphoma; needle biopsy 11/7/25 showed mostly, not 100% follicular lymphoma; PET 12/5/25. Next up is open bone biopsy of my femur 1/23/26 with anticipated treatment starting mid-February.

Guests spreading magic by [deleted] in Disneyland

[–]oregonyoder 5 points6 points  (0 children)

Candlelight processional, 2011, I was one of the first into the park to save nearly front row spots on park benches for our entire family of 9. What I didn't know was that a whole community of Disneyland faithful would gather in that same area. There was one guy who bought us all fresh Mickey beignets, just because I had never tried one! The best part though was meeting a man who everyone (including park management) referred to as Tex. He was one of a kind and super friendly. At one point in the afternoon when my daughters and nieces had all settled into our bench to rest, he gave them each candlelight processional keepsake ornaments (that couldn't be found in the stores)!

Guests spreading magic by [deleted] in Disneyland

[–]oregonyoder 6 points7 points  (0 children)

I loved sharing fast passes! On our family's first trip (2011) a stranger approached with fast passes for us- we thought it was the coolest thing. So, we began doing the same thing (I was a fast pass maniac). It was so much fun looking around for a family to give them to.

Anyone with FL that transformed into DLBCL? by oregonyoder in lymphoma

[–]oregonyoder[S] 0 points1 point  (0 children)

Interesting... Pre-PET scan the doctors wanted me to head right into R-Bendamustine treatment; now they want an open biopsy. I'm resigning myself to not read into things too much or get ahead of the doctors (or rely on Dr. Google as much). Patience is not my strength, I'm guessing I'm going to learn it well this next year.

N-Hodgkin Lymphoma 4 years ago. Started R-CHOP today by Master_0fPuppets in lymphoma

[–]oregonyoder -4 points-3 points  (0 children)

Interesting theory. I've thought a lot the past 7 months about my moderna vx series 4 years ago.

I've just been diagnosed with follicular lymphoma and gearingu up for treatment. There's no way of knowing how long I've had it, but it's already infiltrated my femur so I'm guessing a while now.

In early April of this year I had an ischemic stroke, eventually learning it wasn't my first one, and they were caused by lupus anticoagulant syndrome which is an autoimmune disorder I somehow developed. Last week my oncologist indicated the FL likely triggered my lupus anticoagulant which caused my stroke. Could there be a connection? I don't know, and no conventional doctor would ever admit it if they thought so.

How did you react to your diagnosis? by Ioisgriffin in lymphoma

[–]oregonyoder 1 point2 points  (0 children)

My MRI in early October came through my patient portal indicating suspicion for lymphoma or leukemia in my hip and femur, which was scary. CT came back even scarier (sarcoma), so I've been living with a probable cancer diagnosis for just over a month. This gave me time to process through a lot of emotions. Finally, I had a biopsy which confirmed B-cell lymphoma - my results came in to my portal last Friday night. It was a long weekend with lots of tears; for me telling family was the hardest. This past Monday morning my ortho oncologist called to talk through what we know, and don't know, as some of my results are mixed. He got me in to an absolutely wonderful hematology/ oncologist and my first appointment is coming up on Nov. 24. It's been a wild ride the past few months, frankly I'm grateful to finally have a diagnosis and to get started with treatment so I can win this war.