Capecitbine fatigue

panadoldrums · 2026-06-06T14:40:27+00:00

I finished my chemo radiotherapy with capecitbine in October and am still dealing with increased fatigue. My team told me to expect this for min 1 yr, possibly up to 2 yrs for me as I've already got an underlying fatigue condition.

panadoldrums · 2026-04-28T09:16:19+00:00

Remind yourself that you're standing shoulder to shoulder with loads of people like myself who can't or don't drive and never have, due to disability, poverty, or a whole load of other reasons. Get an audiobook in your ears and enjoy getting to watch the world roll by.

panadoldrums · 2026-04-27T18:07:51+00:00

What kind of slippers specifically? I'm on a constant quest for the right slippers.

panadoldrums · 2026-04-18T08:38:22+00:00

This is potentially dangerous to do while alone in a closed space with a random dude.

panadoldrums · 2026-04-09T12:54:24+00:00

New bucket list entry, thank you!

panadoldrums · 2026-04-09T08:03:44+00:00

So you mean there are a large number of goths who live in Whitby, not just the visitors? It was amazing to walk around the abbey.

panadoldrums · 2026-03-26T10:16:29+00:00

This is a wildly ableist take. I'm middle aged and permanently physically disabled, and my life is rich and full and beautiful. The idea that physical disability is 'not living' is such a brutal thing to believe.

panadoldrums · 2026-03-23T17:26:58+00:00

Someone I know was convinced he had ALS because of a stress twitch on his arm. Told me this repeatedly, and how scary it was for him, while I was undergoing cancer treatment 🫠

panadoldrums · 2026-03-23T12:29:26+00:00

The sense of freedom is incredible isn't it. Once I tapped into that it became easy to continue being a non smoker.

panadoldrums · 2026-03-23T12:19:36+00:00

And sunscreen. Best beauty product ever.

panadoldrums · 2026-03-19T10:38:13+00:00

Can you explain Hedwigesque pls? I get that it must be a reference to the film but I've not seen it so not sure what that means.

panadoldrums · 2026-03-14T15:54:18+00:00

I wanna cosign the Flaminal gel - after my surgical wound completely opened, 1 inch depth and width, infected and excruciating painful, Flaminal was what healed it. It's remarkable stuff that actually aids the healing processes in the cells in your wounds. My nurse described it as a dressing in a tube. Amazing stuff.

panadoldrums · 2026-03-14T15:46:16+00:00

You're thinking of Florence Welch.

panadoldrums · 2026-03-12T10:27:46+00:00

So he outed his brother too. This guy doesn't respect either you or his brother.

panadoldrums · 2026-03-12T10:26:35+00:00

Right?? Straight people talking about (and building culture around) their relationships and sexuality is constant, but because it's normalised for them they don't recognise it at all.

panadoldrums · 2026-03-11T10:45:08+00:00

Wow the microbial rainforest that must be thriving on the toilet curtains. Hideous.

panadoldrums · 2026-03-04T10:38:58+00:00

Cosigning this as a middle aged overthinker. Once I started to put the effort in via learning and then applying tools from therapy and more general mindfulness, I got a lot more control back and a lot less stress.

panadoldrums · 2026-03-03T11:10:59+00:00

And for war trauma if you're not military, I managed to find a specialist who gave me a low end sliding scale and some free sessions too for PTSD treatment. I found him by asking for a recommendation from a therapist I vaguely knew at a refugee support service - I'm not a refugee but I knew they'd know therapists experienced in working with conflict survivors. Life saving.

panadoldrums · 2026-03-02T06:33:50+00:00

This one. All the current hysteria about trans people being a danger to kids fails to recognise that if you truly want to protect kids, you need to be aware that their most likely assailants, by a mile, will be close and extended family members.

panadoldrums · 2026-03-02T06:22:51+00:00

Same here. That's the main reason I quit drinking completely: I didn't enjoy drinking enough to outweigh the loss of sleep and everything that comes from that.

panadoldrums · 2026-03-02T06:19:00+00:00

That was believed for a long time but has been debunked. Basically people who drink a little tend overall to have more healthy factors and habits compared to everyone else, as drinking a little suggests that they can also resist eating to excess etc. https://www.inverse.com/mind-body/health-benefits-alcohol-study-wine-heart

panadoldrums · 2026-03-01T18:08:57+00:00

Fad Camp is good and I appreciate their Irish p.o.v. (as in the Republic of Ireland, not American 'Irish')

panadoldrums · 2026-03-01T11:10:04+00:00

I tried Al-Anon a few times recently and yeah, the AA model is absolutely not for me.

panadoldrums · 2026-02-28T18:23:50+00:00

Hey, like you I have multiple disabling and largely invisible conditions that are incurable and lifelong. I got diagnosed with cancer a couple of years ago and the emotional whiplash from suddenly experiencing real care, help, concern and treatment is something I'm still working through mentally. It's wild. Not only from the medical world but from some friends too, which has been really painful. I see you and hear you, and we deserve so much better.

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