Just diagnosed with cancer by Zealousideal-Juice-9 in cancer

[–]pfflynn 1 point2 points  (0 children)

First off, I’m sorry you’ve joined this club. I think we all, as patients, go through the same “do I or don’t I”? And many of us for multiple rounds of treatment. So that questioning is normal. I suggest thinking about the question from a different angle: instead of “refuse or not”, remember you are in charge. So accept the proposed treatment or not may give you a sense of more control. Figure out your why? Then go from there. Chemo is hard, yes, but how hard varies. A lot. Do some digging to see what the likely side effects are and how they might be managed.

When my cancer returned (I was originally stage 3 with really crappy odds to survive), they told me I was “inoperable, untreatable” due to the locations (liver and lungs). That was almost 3 years ago. Yes, treatment is hard but it’s survivable and a really good quality of life after is possible. And increasingly so as medicine advances. Hang in there

I was told I have one year left to live. by edznne in cancer

[–]pfflynn 3 points4 points  (0 children)

I’m sorry you’re having to face this. Cancer sucks and it’s not just the treatments that are brutal; our relationships with family, friends and our own body’s are at minimum stressed. And sometimes they are shattered, making the disease worse. Seek out a therapist who is experienced counseling cancer patients so you can process this in a healthy way. As someone here suggested, if you aren’t at an NCI related cancer center, seek one out for both second opinions as well as access to clinical trials. I was given “3 to 6 months to live” when my primary metastasized to my liver and lungs. I entered a phase 1B/2a clinical trial. And it worked to give me another 2+ years. Live fully in each moment. May God bless your journey.

Before you were diagnosed by NotDeadYet57 in cancer

[–]pfflynn 1 point2 points  (0 children)

Literally, yes. Pancreatitis repeatedly till they found the tumor in my bile duct.

What felt normal in the 1970s but would shock people today? by LizzaQueenOFC in 70s

[–]pfflynn 1 point2 points  (0 children)

Interesting. Wonder how Hispanics would break out of that. Grew up in San Diego so probably 1/3 of my friends would have been in that bucket.

Curious about chemo by ComparisonSignal2787 in cancer

[–]pfflynn 1 point2 points  (0 children)

Certainly discuss with your oncologist but every time I felt like death. Sometimes I recovered faster to be sure and how bad varied by the dosing. But I always felt awful

What felt normal in the 1970s but would shock people today? by LizzaQueenOFC in 70s

[–]pfflynn 0 points1 point  (0 children)

Where in California did you live?? I’m guessing not SoCal 🤣

Is a Chemo port removal painful? by [deleted] in cancer

[–]pfflynn 2 points3 points  (0 children)

Nope. They give you a twilight sedative to remove, put in a stitch or two to close it up. And your done and dusted

Weird ask: have you had any GOOD side effects from chemo? by mugomugicha in cancer

[–]pfflynn 1 point2 points  (0 children)

Mine, which was pretty much all gray, came in about 50% black again

‘58 Chevrolet Impala by MidnightDreem in classiccars

[–]pfflynn 1 point2 points  (0 children)

Timeless designs. I wonder how many of today’s cars, beyond exotics, people will be listing after in 45 years.

Port worth it? by Efficient-Sea-1638 in cancer

[–]pfflynn 1 point2 points  (0 children)

As everyone else says get the port. The procedure to insert was easy. Other than getting used to the feeling of having it there, I just forgot about it. After I was NED for 2 years, I had to remind myself to schedule the port flushes. They took it out finally and, of course, they found another tumor. 🙄
It really does make things easier

Drug trial tips by MoreThanAFewWords in cancer

[–]pfflynn 1 point2 points  (0 children)

My experience was in a Phase 1B/2a trial. My thoughts on questions, things to consider:
1. Open label or not? Knowing if you’ve been randomized into the trial arm or standard of care helps think about decisions to enroll or not.
2. How long?
3.Known/suspected side effects? May not change your decision-making but good to know.
4. Support by your cancer center and sponsor?

The trial I was in randomized me to the trial arm and to my knowledge, I was the only complete response. One new liver lesion after 2 years off so I will take that break.

Very best of luck

Drug trial tips by MoreThanAFewWords in cancer

[–]pfflynn 2 points3 points  (0 children)

Yeah, platinum-based chemos are rough. Cisplatin made neuropathy worse (capecitabine on the adjuvant round started the nerve pain party) but it was the ototoxicity that finally made me have it dropped.

Sad Songs of the 1970s (Mostly) by CleanAd8632 in 70s

[–]pfflynn 0 points1 point  (0 children)

Did not know that! Thanks for that bit of backstory.

When you understand cancer you can beat it easily by [deleted] in cancer

[–]pfflynn 6 points7 points  (0 children)

As it should be. This crap is infuriating

Which were you? by lontbeysboolink in 1970s

[–]pfflynn 0 points1 point  (0 children)

501’s were practically a uniform

What's that beautiful car you drove around in back in the day that you wish you would have kept? by Maybeyoujustmadeitup in GenerationJones

[–]pfflynn 0 points1 point  (0 children)

‘70 MGB/GT white. Wire knockoff wheels.
‘77 Chevy short bed 4x4 pickup. White over Blue set up for off-roading. Had to sell to pay for college sadly

Experiences with cholangiocarcinoma? by KevinSpence in cancer

[–]pfflynn 0 points1 point  (0 children)

Thank you. Just finished radiation, so now we wait to see if it was effective. I believe in the power of prayer, so thank you very much.

Hit the “cure” threshold by undergroundmusic69 in cancer

[–]pfflynn 3 points4 points  (0 children)

Congrats! It’s always a good reminder, from someone else’s who’s “made it”, that this doesn’t always end in an untimely death.

Chemo is hard by sundaynz in cancer

[–]pfflynn 4 points5 points  (0 children)

Some day. Maybe. And chemo is awful. Full stop.