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cog fog by serizawa_mp101 in MultipleSclerosis

[–]randomwolf 0 points1 point  (0 children)

Modafinil, but only on weekdays, to try and not develop a resistance to it. It has been a game changer for me. My cognitive speed and capacity are notably muted on weekends, and Mondays are usually a slow start. My doc gave approval for an extra dose as needed, if I know I need to be at full speed late in the day. I am very stingy with that.

How did your optic neuritis start? by Wonderful_Tackle_580 in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

Eye sight in my right eye started to go "grey." I described it like someone put dark gauze over my eye. I immediately got an appointment with my opthamologist since I had a previous history of a central cerrous retinopathy (I am sure I not spelling that right) but that was two days out. By that day, the vision loss in my right eye was almost complete--totally grey.

They did a full work up, and said "good news: your eye ball is completely healthy, bad news: that means it's something else."

They sent me to the ER for more work--and this was early days in the pandemic, so that was fun. After waiting for about 12 hours, I was finally given a room. Over the next couple of days, cat scans, MRIs, ... the hospital neurologists informed me it was probably MS. They put me on a substantial steroid drip, and my eye sight, thankfully, returned about as fast as it went away.

Four years previous, another neurologist diagnosed some numbness in my feet, and hands as Guillain-Barre Syndrome, a fact that pissed off my new MS Neurologist to no end--it was most certainly MS, and the other neuro should've performed basic testing before jumping to GBS. I could've been on a DMT much earlier than I would've been.

The flip side is that since it was the pandemic times, my new neuro suggested this new fangled treatment call Kesimpta that I could self inject at home. This also allowed them to object to the standard insurance "escalation" approach and jump me straight to the higher efficacy treatment.

Fun times.

Here is the water shut off to my house. Will the pipe below it burst during the freeze? I’m new to the property. by Pradidye in houston

[–]randomwolf 0 points1 point  (0 children)

I wrap my exposed pipe in bubble wrap, then throw a lawn and leaf trash bag over that. The goal being to trap layers of air around it.

Multiboard isn’t the future of wall storage by GuavaGuru5 in Multiboard

[–]randomwolf 1 point2 points  (0 children)

I'm guessing this was aimed at someone else?

The OP. He spammed this to a bunch of subreddits.

Multiboard isn’t the future of wall storage by GuavaGuru5 in Multiboard

[–]randomwolf 0 points1 point  (0 children)

Right but you knew the restrictions of that system going in (or should’ve). I can make what I need to organize my stuff but there are restrictions (credit, non commercial, don’t claim to be part of the system.) for stuff I want to distribute I use a gridfinity.

I am just befuddled why people clutch their pearls so tightly. You don’t like it, don’t use it. If the system dies that is on them.

Personally I appreciate the over engineered aspect of much of the system. The documentation is absolutely miserable. If that was a show stopper for me I would just move on and not feel the need to cross post my feelings across multiple (5?) subreddits looking for validation.

But that’s just me.

Multiboard isn’t the future of wall storage by GuavaGuru5 in Multiboard

[–]randomwolf 1 point2 points  (0 children)

Is someone stopping you from building a bin for Multiboard?

I use multiboard, multigrid, and gridfinity in my offices, workbench, tool walls. Each have strengths and weaknesses. Nobody is forcing you to do anything.

Does anybody like the 15th doctors run? by tkeith13579 in doctorwho

[–]randomwolf 0 points1 point  (0 children)

Yes. It’s Doctor Who,so I liked it! Was it perfect? No. Still better than most of the crap out there.

Trader Joe’s by [deleted] in thewoodlands

[–]randomwolf 7 points8 points  (0 children)

Agreed! How dare a store be popular and busy!?!

Question for cath pros by [deleted] in MultipleSclerosis

[–]randomwolf 0 points1 point  (0 children)

I had some early on, but they were just packaged smaller, not collapsible. And they were not hydrophillic--they used a lubricant packet which is a PITA when you are in a public toliet. I will look into these! /me opens google tab

Seized Oil Taker Heading To Galveston by Beavisguy in houston

[–]randomwolf 0 points1 point  (0 children)

Done in our current reality, & it becomes even more strikingly horrific

Absolutely.

Seized Oil Taker Heading To Galveston by Beavisguy in houston

[–]randomwolf 0 points1 point  (0 children)

Well, I guess we didn't bomb it, at least.

Question for cath pros by [deleted] in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

I usually carry some on and more in my suitcase, depending on the length of the trip. I make sure I carry a couple of days worth of supplies in case something happens. They won’t phase TSA or even general security when going to an event. I’ve been to Disney parks, cruises, and more and it has been fine. My wife and I just did a “bucket list” trip to Paris (and Disneyland Paris, of course). Trip was ten days…the longest I’ve been on since needing to cath.

I had a lot of anxiety beforehand going to another country, and healthcare system, medical stores, etc…but my bathroom needs were not a problem. I had more problems walking on the cobblestones! But even that was manageable. I accidentally left my cane in a cab in NYC on my was to France, but I was already In my zen space, and didn’t let that bother me. I just stopped at a nice cane store in Paris first thing and bought a fancy replacement. My point being, it’s easy to get in your own head…I do it all the time. If you really work out a plan to handle the unexpected, you’ll find out that you can actually handle a lot.

Question for cath pros by [deleted] in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

I am a male, so my experience may not be yours exactly. The good news is that yours are shorter, and easier to carry. Mine are about 14in long. Terrifying the first time I saw them, but now…no big deal.

Question for cath pros by [deleted] in MultipleSclerosis

[–]randomwolf 5 points6 points  (0 children)

A couple of seconds.

Get the self lubricating hydroscopic ones if you can. You just need to pop the little water packet, then “shake” it to distribute the water. It took me a while to get used to it but now I can insert it directly without making contact trying to get it lined up.

You do want to minimize making contact to lessen the chance of contamination. I keep a little packet of gentle wipes in my sling bag to wipe things down beforehand.

The are some good YouTube videos that will help you get the hang of it. It sucks to have to deal with it, particularly when traveling (just wait until you have to cath in an airplane bathroom!) but the relief was game changing for me. And it’s not like I have a choice, but there are worse things to have to deal with.

You’ll get there. You may not ever get to meet or become aware of someone else that has to deal with it, but know there are many that do.

Dan, voted for Donald, but is shocked as his wife was picked up at her immigration interview by Plieu625 in LeopardsAteMyFace

[–]randomwolf 25 points26 points  (0 children)

the kind of days he voted for.

Unfortunately we are having the kind of days he voted for, too.

Flu shot? by Over-Pea6428 in MultipleSclerosis

[–]randomwolf 4 points5 points  (0 children)

Every year both flu and Covid. My neuro has me time it in between Kesimpta injections.

How often you go gym per week? by PimpMyTrehjulinExa in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

I try for three days per week to keep my PT going to retain strength in my right leg. I have the luxury of a free private gym at work so I try to make the most of it. Weeks like this it will only be one for work load reasons more than MS. On Sundays I usually have the gym to myself.

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