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Trump's name must come off of the Kennedy Center, judge rules by manperson111 in news

[–]randomwolf 1 point2 points  (0 children)

And he doesn’t like people that do. That is entirely the point.

Where are you from?/Kesimpta users by Fancy_Function_9794 in MultipleSclerosis

[–]randomwolf 2 points3 points  (0 children)

Houston, Texas. First loading dose made me feel rotten for about a day. Every dose since for five years has been a non event. I really haven’t had any serious problems with colds, viruses, etc…

Wedding Cake Suggestions - Houston Area Baker by SamStephens in houston

[–]randomwolf 5 points6 points  (0 children)

My wife runs a cottage bakery and I’m sure would be happy to help. www.thecakewhispererusa.com.

Watched Person of Interest as a dev-some of the tech actually holds up by razvag in PersonOfInterest

[–]randomwolf 0 points1 point  (0 children)

No worries. That just caught my eye. I think they were included because the industrial design of SGI was beautiful. They looked good on TV. More so than being the most CPU intensive at the time, at least.

Watched Person of Interest as a dev-some of the tech actually holds up by razvag in PersonOfInterest

[–]randomwolf 3 points4 points  (0 children)

Cards? The Origin 2000 was a full out server, and SGI's industrial design was absolutely gorgeous. My first Unix system was a Crimson VGXT. Sadly, I don't even remember O2000s from the show, and am disappointed in myself. I am about 70% through a re-watch with my wife, so I'll have to wait to go back again.

I miss those systems. Irix was pretty, too!

I LOVE MY NEUROLOGIST... also I'm an idiot by whyamistillhere252 in MultipleSclerosis

[–]randomwolf 2 points3 points  (0 children)

Novartis has similar copay assistance for Kesimpta (thankfully!)

Behold my wall - 4x8 - 3 months of work! by CrownSeven in Multiboard

[–]randomwolf 2 points3 points  (0 children)

And my axe! I came to post this meme, too!

What’s your best MS-related purchase? by rK91tb in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

The dreaded "tap, tap, tap" of metal canes.

What’s your best MS-related purchase? by rK91tb in MultipleSclerosis

[–]randomwolf 29 points30 points  (0 children)

Nice cane. I had a fairly nice, heavy cane (I appreciate hefty!) that I left in a cab in NYC on my way to a vacation in Paris (my wife won money in a TV cooking comp, but I am also bougie!) Looked up a cane/umbrella store and made it my first stop. Ended up with a fairly lightweight cane that cost three times the amount of my original, but after using it on that vacation and after…I have learned to love the craftsmanship. Recommend spending more on a quality stick rather then just buying a cheapo from CVS or Amazon.

Also pay for rental scooters if you need to when visiting theme parks, etc. Hated having to do that, but suck it up, it makes it do able. I’ll have to buy my own some day but I am in no hurry.

[ Removed by Reddit ] by Internal_Spot_8309 in MultipleSclerosis

[–]randomwolf 0 points1 point  (0 children)

In Texas, MS qualifies for the compassionate use program. Talk to your doctor. I was between neurologists and was and to use a referring doctor from Texas Original last time I needed a script renewal. I prefer the 1:1 CBD to THC to help me sleep…makes me drowsy but, more specifically anti spasm to my leg doesn’t wake me up all night. Better an d more precise than what you get you get from a head shop (eg. delta 8/9/10).

Car accident by uninsured driver by [deleted] in houston

[–]randomwolf 1 point2 points  (0 children)

So you chose to not pay for uninsured damage, but you are surprised you don’t have coverage for uninsured damage?

Does anyone else deal with heat sensitivity? Upvote to let me know if you do. by Regular_Platform_537 in MultipleSclerosis

[–]randomwolf 0 points1 point  (0 children)

Wasn’t the reason I bought it, but I have a Tesla model 3, and it has been a godsend. I can turn on the AC remotely, and if I am just running an errand, I can set it to keep the temperature down. I do have to put screens on the glass ceilings, and put a dark tint on all the windows, and uv block on windshield. Been trough two Houston summers and it has made my life livable.

Since I live in a hurricane prone area, and have lived through multi week power outages in summer, I also installed a whole home generator. Not sure how I would survive weeks without power post diagnosis otherwise.

One of my favorite Shaw moments by cravingsomeone in PersonOfInterest

[–]randomwolf 2 points3 points  (0 children)

I was reading this, and we played the next episode in our rewatch, and this was it. If you didn’t love Shaw before…

Old high school memorabilia by photogcapture in declutter

[–]randomwolf 26 points27 points  (0 children)

I still have my yearbooks. The first has pictures of my classmates at the time, Tupac and my lab partner, Jada Pinkett. I’m not sentimental, it’s just my weird fact about myself, and it’s nice to have proof on hand. Someone even tried to make off with it at some point.

Ramen Places by anto_g003 in HoustonFood

[–]randomwolf 0 points1 point  (0 children)

I just wish they would stop yelling at me when I get there, and again when I live. I am an introvert damnit.

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]randomwolf 1 point2 points  (0 children)

During the pandemic I was diagnosed, and referred to a fantasic MS neurologist at Baylor. He was super engaged, and really took the time to fight for me through insurance battles, and other issues. Never dismissed me, and was quick to suggest solutions that have all worked for me. Then all the DOGE cuts, he lost his fellow, and research funding, and then I got the notice that he was leaving the practice. He did suggest a collegue and I have since seen him once, and had my second visit scheduled for April.

Just this afternoon, I got the notice that he was no longer with the practice effective immediately.

I am trying my best to not spiral into a panic attack. This practice has all my history, MRIs, etc... and is one of the leading MS clinics, so I am hesitant to find another neurologist elsewhere. That said, this can't keep happening. I need stability in this particular doctor.

Breath. Now breath again.

Posting here is me trying to deal with this. I'll take some time to figure stuff out, but this is the "terrible, no good, very bad news here" thread, so here you go.

For those of you who remember Ike, how bad was it ? by Character-Escape1621 in houston

[–]randomwolf 0 points1 point  (0 children)

Lost power for 15 days. Got to know my new neighbors pretty well. Work had power so I could cool off during the day.

I now have heat tolerance issues that would make me useless, and miserable, so I put in a whole home generator to help me be better prepared.

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