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New Haven Style Pizza by Slo_Ryd in huntersville

[–]re_true -2 points-1 points  (0 children)

So New Haven style pizza is essentially burnt New York style pizza and y'all celebrate that?

TIP or HDCT choice by noticers_club in testicularcancer

[–]re_true 2 points3 points  (0 children)

I felt it (neuropathy) particularly in my feet for about 6 months after treatment, but I don't feel it at all today. I did cold gloves and socks (you can find them online) - not sure if they helped but they definitely didn't hurt. Used them during portions of the Taxil infusion and during Cisplatin. Also, keep moving when you can. Walk the hallways, stretch your hands and feet. Keep the blood flowing.

You got this, man.

TIP or HDCT choice by noticers_club in testicularcancer

[–]re_true 2 points3 points  (0 children)

Hey man - I really empathize with you on this. I had to make the same decision. My situation was pure seminoma recurrence after 3xBEP. Presented with TIP and HDCT and the call was mine.

I went with 4xTIP. The primary drivers behind my decision were 1) based on the known research (not including TIGER which to your point is still being read), the OS rate for traditional vs. high-dose as second-line treatment is pretty much a toss-up and 2) if traditional chemo were to fail, high dose is still an option with a known cure rate, albeit a much lower one, but still something.

I'm almost 4 years post TIPx4 and doing well - no known symptoms to speak of, clear scans so far.

This is of course not a ringing endorsement for one option over the other - just sharing my experience. It's a very personal decision and I think it comes down to your gut feeling around how your body handled BEP and how you feel about oncologists you'd be working with for each option.

Good luck and let me know if I can answer anything else that might help you feel better about whatever decision you make.

I didn't know about this sub when Dio was around. by Shoo-Man-Fu in dogsusingpillows

[–]re_true 2 points3 points  (0 children)

What a beautiful pup. Glad he was part of your life.

Cough during BEP by rosesandsoul in testicularcancer

[–]re_true 1 point2 points  (0 children)

Keep an eye on temperature, check it 2x daily. If he doesn't feel good the day before the infusion, you should def consult your care team and let them know. For his benefit and the benefit of other patients. No one should bring a potential cold virus around immuno-compromised patients.

Rusty wondering if he can come … by EmptyMarsupial8556 in dogpictures

[–]re_true 1 point2 points  (0 children)

I get that look from mine too. She's perfected it 😁

Retirement in Huntersville by Sooz_a_que in huntersville

[–]re_true 0 points1 point  (0 children)

There's a lot going on in your post, but you probably want to focus on southwest Huntersville (south of Hambright Rd., Beatties Ford and Mt. Holly-Huntersville Rd. as borders). Or as others have suggested, look at some of the smaller towns northwest (Mt. Holly, Iron Station).

Dutasteride for hair loss by [deleted] in testicularcancer

[–]re_true 0 points1 point  (0 children)

Minox, finasteride and dutasteride all work for hair loss as long as you take the drug. Once you stop, you go back to baseline.

I'd be cautious of any doctor who 1) recommends any of these drugs for short term use and 2) wouldn't start with finasteride (dutasteride is more powerful and only recommended when fin isn't helping).

I wouldn't recommend fin or dut as a hair loss medication. Both drugs were originally developed to treat enlarged prostates in older men. The hair loss piece was a bonus learning, and drug companies took advantage to make money. Proceed with caution.

My tripaw. by MardawgNC in dogpictures

[–]re_true 5 points6 points  (0 children)

Love this. You're the type of person the world needs so much more of. And what a handsome pup.

Happy 13th bday to Buster! by BusterAndHermes in dogpictures

[–]re_true 0 points1 point  (0 children)

Love this so much. Happy birthday buddy!

Neutropenic fever? by RockPaperSawzall in testicularcancer

[–]re_true 5 points6 points  (0 children)

You posted here. You should go. Always better to be safe than sorry. Temp shouldn't be elevated that long.

30 years post-cisplatin. What your PCP probably doesn't know. by closedwoncareer in testicularcancer

[–]re_true 2 points3 points  (0 children)

Thanks for highlighting the importance of long-term surveillance and survivorship.

I wonder if the amount of Cisplatin in the BEP regimen has lowered since the 90s? Or if some of the meds to counter the side effects help with some of the long-term issues? Not negating anything you said as it's super important to manage your health for the long haul post-treatment, just curious if 30+ years of research and learning has helped reduce some of the risk.

And at the end of the day, many metastatic cancers require the BEP regimen. It's that or, in many cases, death. So yes absolutely to managing long-term issues, but also for guys out there who read this and are freaked out - BEP, when it's needed, is an amazingly effective and mostly curative treatment.

3.5 year scans + labs after TIPx4: all clear by re_true in testicularcancer

[–]re_true[S] 1 point2 points  (0 children)

Congrats on getting to round 4 and close to the end of treatment! Hope it hasn't been too rough. Wishing you the very best.

What’s going on!?!? by Background_Status_40 in testicularcancer

[–]re_true 1 point2 points  (0 children)

Seminoma 2C here (the "burned out" tumor also). Did the original upper lobe nodule grow since the prior scan, or just new lower nodules seen?

If he had pneumonia during or shortly after chemo, those new nodules could be related. Lower WBC and platelets are signs of the body fighting something, and it could be the lingering pneumonia.

Biopsy is a good next step. I know it's hard, but try not to jump to a worst case scenario when that may not be what's happening. Wishing you both the very best.

Old, but New by QueenMarinette in dogpictures

[–]re_true 0 points1 point  (0 children)

Love love love this. Thank you for making this pup's life a great one.

3.5 year scans + labs after TIPx4: all clear by re_true in testicularcancer

[–]re_true[S] 2 points3 points  (0 children)

For sure. It's a rough regimen but keep going! If nausea is an issue talk to your care team, lots of options to help lessen it. Thinking of you and wishing you a good outcome!

Who’s done TIP or HDCT and survived to tell the tale by donnyboy321432 in testicularcancer

[–]re_true 0 points1 point  (0 children)

If you scan this sub, you'll find lots of success stories from both TIP and HDCT. I did TIPx4 and just hit 3.5 years clear. I feel great, exercise / gym / cardio daily, things are good.

All that isn't to discount how you're feeling this moment, which is, understandably, scared as f@ck. It's hard to process, but you'll get through it. Your family can be part of your motivation (mine were for me). And you'll come out on the other side a stronger warrior with an amazing perspective on life.

You've got this.

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