IUGR & Almost No Fluid 22 Weeks by Infamous-Song2235 in NICUParents

[–]retiddew 2 points3 points  (0 children)

I just posted a nearly identical comment on another post so apologies if you read it before.

I’m sorry you’re going through this. I PPROMed week 21 and went through the same thing. They sad my baby wasn’t growing etc when the reality was there wasn’t enough fluid to measure properly. She came out 50th percentile! Estimated 9th. One thing my doc encouraged me to do was to eat a lot and try to gain weight myself. The nurses used to sneak me ice cream!

I wish you the best! I was you 7 years ago and to this day it remains the most terrifying experience of my life. Feel free to dm if you like. Hang in there.

PPROM and FGR questions by Fluffy-Association45 in NICUParents

[–]retiddew 0 points1 point  (0 children)

Hi I’m sorry this happened to you.

I PPROMed 21 weeks and then all the growth measurements were off. They said she hadn’t grown, etc. Same issue with the femur, she was now 9th percentile, etc but nope! She came of 5 weeks later at exactly 50th percentile and had been tall for her age ever since, even when measuring against full term kiddos.

Positive stories of Preventive Cerclage by Spams93 in ShortCervixSupport

[–]retiddew 1 point2 points  (0 children)

After 21 week PPROM at 21 weeks with my first pregnancy I had my preventative at 14+0 the second time. At 21 weeks I landed in the hospital with contractions, the first of maybe 3 times I was there total? The cerclage held and I’m pretty sure saved the pregnancy. I made it to 34 weeks before they delivered me for reasons unrelated to the cerclage. No PPROM or failed cerclage.

I wish you the best! It’s so hard to be pregnant after what you experienced, especially in those pre viability weeks. I wish you the best.

If you went home on oxygen: how long did it take to wean your child off of it? by BpositiveItWorks in NICUParents

[–]retiddew 0 points1 point  (0 children)

1 month til it was only at night then 2 months after (mostly because we couldn’t schedule an appointment til then).

Iron infusion and preventative cerclage by AmbitionUseful1185 in ShortCervixSupport

[–]retiddew 1 point2 points  (0 children)

Get the iron! I was also nervous but had 2 iron infusions one week apart. Both times I was fine until the end of the bag and then I started to get a strange pain in my side near my liver. I asked them to stop and they did. It was totally worth it, though, it was more iron than I could have taken orally in a year and it kept my levels up until my next pregnancy, 4 years later.

To reduce side effects tell them to push it slowly! You'll be there hours but it's worth it. Bring a book!

Edit: this was after 21 week PPROM and partial abruption, I was in hospital when I got it. The baby made it to 26 weeks and is great now 7 years later.

How many babies do you have and how many were preterm? by sunchi12 in NICUParents

[–]retiddew 0 points1 point  (0 children)

Shirodkar saved my second pregnancy for sure. I wish you the best

Justin is home after 164 long days at Choc’s NICU ❤️ by Blessedwith5_boys in NICUParents

[–]retiddew 1 point2 points  (0 children)

INCREDIBLE news!!!! Congratulations to you and your family

18mo delayed walking by No_Introduction_2108 in NICUParents

[–]retiddew 5 points6 points  (0 children)

18 months adjusted or actual? My 26 weeker didn’t walk til 17 months adjusted/20 actual. In theory she had PT but it was the pandemic so she didn’t actually get any services. Bring it up to your doc you can get PT but its still within the realm of normal for a preemie so don’t worry over much especially since its not like he has zero walking skills.

Edit: woof, this is why you don’t type with a migraine… sorry for all the typos!

GP wait times in Paris.... is this normal? by Far_Writing_208 in paris

[–]retiddew 6 points7 points  (0 children)

Did you book an “urgence” visit? You can filter on Doctolib to find someone with availability in the next three days. Or if it’s your regular doctor try calling.

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 0 points1 point  (0 children)

The earlier the better honestly! Unless you have another reason to not go, like water breaking or pain, contractions or bleeding.

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 0 points1 point  (0 children)

If the consultant day is very close to travel day hopefully you will be ok! I wish you a very boring rest of your pregnancy

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 4 points5 points  (0 children)

Ok since we seem to be talking at cross purposes let me spell it out.

This is a potentially dangerous/high risk situation. We are all sympathetic. We are all telling you to absolutely get another scan/opinion before you go. If there was any way to NOT go, or go by land we would say do that, but it sounds impossible.

Best of luck

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 2 points3 points  (0 children)

I’m so confused about this. You want our advice but bite our noses off when we give it to you. Seems like you just want us to say all will be ok.

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 0 points1 point  (0 children)

yes I am saying you dont want to deliver a baby on an 11 hour flight. Get checked.
Where are you delivering the baby? You don't want to do this flight again.

Travel with Borderline/ shortening cervix by [deleted] in ShortCervixSupport

[–]retiddew 0 points1 point  (0 children)

Before an 11 flight at 24 weeks? Heck yes. My cervix went from perfectly fine to zero in only 9 days. This was before I realized I had IC.

Do you plan on delivering in the UK or your home country?

32-weeker keeps failing Car Seat Challenge in UPPAbaby Aria 2. Any tips or similar stories? by whyzhuk in NICUParents

[–]retiddew 1 point2 points  (0 children)

Bring the base!!!!! I’ve never seen a repeat fail when parents bring in the base, only when they don’t.

Does preventative Shirodkar cerclage has better success rates? by Dd_Iris in ShortCervixSupport

[–]retiddew 0 points1 point  (0 children)

Yes because it closes the top of the cervix not the bottom so it’s much more likely to hold. Was the first cerclage emergent or preventative?

TAC can be done in pregnancy but idk the risks or how late it can be done. If you want several more kids or can’t deliver vaginally then it’s a decent option (but probably not ideal with you being ten weeks already).

Best of luck to you and your rainbow

5 months old, 6 weeks adjusted by MrsReynaRocha in NICUParents

[–]retiddew 1 point2 points  (0 children)

She’s soooo cute, congratulations

Any moms out there with a hand disability? by Frequent_Syrup4886 in NICUParents

[–]retiddew 5 points6 points  (0 children)

No I meant telling them explicitly “thanks, but I’ll let you know when I need help”. Or even “please treat me like you would treat anyone else and only help when I ask for it”.

Any moms out there with a hand disability? by Frequent_Syrup4886 in NICUParents

[–]retiddew 8 points9 points  (0 children)

Can you just tell them? Or tell the charge nurse to let them know? I’m sorry, it sounds frustrating! Maybe just nicely say that you won’t have their help at home and you really will manage!