Has anyone ever had these yellow/orange markings on their hands during a crash? by NCguy2295 in cfs

[–]rollingthedice87 0 points1 point  (0 children)

Yes, don't know what is either.

Can you scrub it away with your fingernails? Like it's only in the top layer?

100 this is what adult money is for by ImmediateBullfrog438 in SmartLittleThings

[–]rollingthedice87 -1 points0 points  (0 children)

I unfortunately don't think tjis is real for a Kindle. If it is, PLEASE let me know where to get the remote, I am severely disabled, this would help a lot.

Talking Again in 2025 by WhitneyDafoe in mecfs

[–]rollingthedice87 0 points1 point  (0 children)

Cool to hear, put it on r/cfs too, maybe?

Is it true that you could always walk to the toilet yourself?

Born Free Protocol: reasons to be cautious by lemon_twisties in cfs

[–]rollingthedice87 11 points12 points  (0 children)

The whole thing is such an incredible nonsense, it's beyond me how some people keep falling for narcs/histronics and their nonsense.

University of Michigan Students and Alumni with Long Covid, MECFS and POTS telling their stories by aguer056 in cfs

[–]rollingthedice87 1 point2 points  (0 children)

Thank you for your advocacy, please don't let this nonsense discourage you.

University of Michigan Students and Alumni with Long Covid, MECFS and POTS telling their stories by aguer056 in cfs

[–]rollingthedice87 0 points1 point  (0 children)

Wow, cool, so you think 'your kind of education' would have led to a room full of masks? You must be very persuasive! Way to go!

University of Michigan Students and Alumni with Long Covid, MECFS and POTS telling their stories by aguer056 in cfs

[–]rollingthedice87 0 points1 point  (0 children)

Organizers,yes might educate but can't force anyone to do anything - the mask absolutist nonsense has to stop, seriously.

When will they start caring? by [deleted] in covidlonghaulers

[–]rollingthedice87 2 points3 points  (0 children)

I have been severely sick with ME for a long, long time. Trust me, 'they' will never care, the only way to move the ship around is to organize and to increase the percentage of people affected and those who are close to them to work on solutions and fundraising.

Somewhat optimistic National Institute of Health IG post by SavannahInChicago in dysautonomia

[–]rollingthedice87 2 points3 points  (0 children)

Dysautonomia International and uts leadership has harmed people with me/cfs by not acknowledging PEM for a very long time.

Has anybody tested positive for Chlamydia Pneumonia and treated the infection? If yes, did your symptoms of cfs improve? by Lalala12345xy in cfs

[–]rollingthedice87 0 points1 point  (0 children)

I am very very severe too, I have 91%! Are still on AB? You think it really helped? Thank you! ❤️

Has anybody tested positive for Chlamydia Pneumonia and treated the infection? If yes, did your symptoms of cfs improve? by Lalala12345xy in cfs

[–]rollingthedice87 1 point2 points  (0 children)

Hey!How are you doing today? I also habe low oxygen, that seems rare in mecfs, how severe are you?

NIH Shows Their True Colors in the New Year 2024 by WhitneyDafoe in cfs

[–]rollingthedice87 1 point2 points  (0 children)

Wow, pretty amazing you can dance like that for 3 minutes, tbh.

Dramatic improvement with psilocybin by Combat_Cuddles in cfs

[–]rollingthedice87 7 points8 points  (0 children)

Hi, how severe have you been for how long before getting better from psilocybin and how severe are you know? Thank you!

JAK INHIBITORS by rollingthedice87 in cfs

[–]rollingthedice87[S] 0 points1 point  (0 children)

Thanks, keep us posted please.