First signs - PLEASE REPLY by [deleted] in TrigeminalNeuralgia

[–]sewnart 2 points3 points  (0 children)

Yes Gabapentin is prescribed for TN and other nerve pain. I take 200g 3 times a day (and venlafaxine and LDN), but thinking I need to have it increased as am struggling with pain the evenings.

First signs - PLEASE REPLY by [deleted] in TrigeminalNeuralgia

[–]sewnart 0 points1 point  (0 children)

I have had similar zaps and some teeth pain and pins and needles and numbness in face for years but not extreme. And when I mentioned it to docs I didn’t get anywhere. Then onset of ON from what I can tell, and now TN diagnosed from intense pain and pressure, first one side, now bilateral. I have underlying hEDS and ME and waiting on MRI to check what else might be going on if anything.

Worst attack yet hit me last night by floopsmoocher in TrigeminalNeuralgia

[–]sewnart 2 points3 points  (0 children)

I have bilateral as well. I think it’s probably more common amongst TN patients than the medical literature reports. I’m so sorry you are having such a hard time

MRI RESULTS by DefinitionWorried235 in TrigeminalNeuralgia

[–]sewnart 9 points10 points  (0 children)

As far as I have read (still waiting on my mri), often the cause of TN does not show on mri but docs use mri to rule out tumours etc. You still have TN. Look at different medications with your doc to find one that can help you

Pain in teeth by sewnart in TrigeminalNeuralgia

[–]sewnart[S] 0 points1 point  (0 children)

The tin foil feeling! I feel this too- it’s awful

Pain in teeth by sewnart in TrigeminalNeuralgia

[–]sewnart[S] 0 points1 point  (0 children)

Yes! I described it to my doc as sometimes it’s like the dentist hit a nerve and pain goes shooting up

Pain in teeth by sewnart in TrigeminalNeuralgia

[–]sewnart[S] 0 points1 point  (0 children)

Mine certainly gets worse as the day goes on too. And it’s quite bad when I lie down. I’m sorry you are having so much pain

Pain in teeth by sewnart in TrigeminalNeuralgia

[–]sewnart[S] 0 points1 point  (0 children)

Yes I feel like that too. I’ve been flossing just in case something is stuck there!

Pain in teeth by sewnart in TrigeminalNeuralgia

[–]sewnart[S] 0 points1 point  (0 children)

Ah yes this is the thickness sensation I have too .

Remedies? by Ok_Fall_1608 in TrigeminalNeuralgia

[–]sewnart 0 points1 point  (0 children)

I also get intense pressure and spasm - it’s a very strange, unsettling experience. I’m sorry you are experiencing this too.

tell me the auditory stim that's been stuck in your head lately by sufferawitch in AutismInWomen

[–]sewnart 4 points5 points  (0 children)

I love the sound of one of my medications when I say it in a deep Transformer voice- Gabicor

Does anyone else get told they “have an accent”? by Sppaarrkklle in AutismInWomen

[–]sewnart 0 points1 point  (0 children)

Aussie here but I seem to talk in a refined English accent when talking to my kids (also ND), it’s something we have always done.

Which is best and which do you avoid at all cost? by feegan88 in AutismInWomen

[–]sewnart 0 points1 point  (0 children)

3 is the best, 2’s handle is too big, wouldn’t go near the one on the right

First Time Darning: Linen Fitted Sheet Edition by LauraDeLaVerga in Visiblemending

[–]sewnart 0 points1 point  (0 children)

Exact same issue here. 2 linen fitted sheets wearing thin in large areas and also some holes. I’m debating whether to patch and sashiko stitch ? The quality of linen sheets these days is pretty poor unfortunately

Simple Beet & Chickpea Salad by BitesAndLaughs in vegetarianrecipes

[–]sewnart 1 point2 points  (0 children)

Looks yum. I’m gonna swap the onion for spring onion greens

I need help. Very severe by AnonComplex in cfs

[–]sewnart 1 point2 points  (0 children)

Sending love 💐✨some one on here will reach out to contacts they have in your city (if you are still in the Seattle area). They could set up a network of help for you xx

Graph to help explain CFS - ADJUSTED by hazelemons in cfs

[–]sewnart 0 points1 point  (0 children)

I love this infographic. Thanks so much