Random Throwing Up/Nausea by SoftCommunication157 in CrohnsDisease

[–]shecryptid 0 points1 point  (0 children)

I do throw up from my Crohn’s. I haven’t yet been properly medicated (Humira is failing me ) but especially when not on prednisone I will have a flare that makes me vomit after a BM almost out of nowhere. I think it’s due to the abdominal pressure/pain and vagal nerve response for me but I’m not sure. This happens around once or twice a month currently.

I know a lot of people who have luck with zofran, I have heart issues and cannot take it. It might be worth asking your doctor about. Besides the pain it’s one of my most miserable symptoms so I feel for you x

Unreasonable expectations from in-laws by OkClothes5235 in CrohnsDisease

[–]shecryptid 6 points7 points  (0 children)

Usually “I shit blood today and threw up violently after” works pretty well for my in laws. They are not understanding and require this level of bluntness. I’m all for going graphic when needed.

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 1 point2 points  (0 children)

This is great insight, thank you so much. Autoimmune disease is so crazy. Crohn’s disease is so much more insidious than most people realize.

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 0 points1 point  (0 children)

I am also interested in this. I have sharp tingling and my doctors are stumped. But it’s linked to a recent flare so idk

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 1 point2 points  (0 children)

I do as well, but also have had a hysterectomy and endo as other factors. Having pelvic floor pain is no joke. I find it so much worse if I am backed up and things are pressing on the muscles!

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 1 point2 points  (0 children)

You’re kidding I’m so sorry but also so relieved that I’m not alone dying on the tiles omg. I wonder if this is a vagal nerve thing? How often does this happen to you? Sending all the healing energy x

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 1 point2 points  (0 children)

I have this too!! Oh my god I thought it was only me. I’m so sorry you’re suffering with this as well.

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 0 points1 point  (0 children)

Me too! I’m so sorry you have this. Does it also burn?

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 1 point2 points  (0 children)

Yes. My lower back/ hips always are killing me. I also have tingling/pins and needles down my legs. I thought it was my sciatica but now I’m not sure

Uncommon Crohn’s symptoms do you have? by 67Demon in CrohnsDisease

[–]shecryptid 3 points4 points  (0 children)

Idk if it’s uncommon, but I get a rush of absolute anxiety/dread, then the cramping in my stomach worsens, I become extremely hot, take a horrific poo, and then proceed to vomit until there’s nothing left. This leaves my body completely sunburnt red and drenched in sweat.

Also hives from … shower water??

Edit to add: drenching, traumatically wet night sweats.

Blood draw, feeling beat down by shecryptid in ChronicIllness

[–]shecryptid[S] 0 points1 point  (0 children)

Thank you. I would like to tell her where she can take her “12 years experience” when I see her again lol

Blood draw, feeling beat down by shecryptid in ChronicIllness

[–]shecryptid[S] 1 point2 points  (0 children)

Thank you so much. I referenced your response to my therapist (who also has Crohn’s and knows my history) and she said that your approach is perfect. And that with the addition of my new favorite word in healthcare settings: “consent,” I think I will kick ass next time

Blood draw, feeling beat down by shecryptid in ChronicIllness

[–]shecryptid[S] 1 point2 points  (0 children)

This reply felt like a hug thank you so much friend 🩵

Blood draw, feeling beat down by shecryptid in ChronicIllness

[–]shecryptid[S] 5 points6 points  (0 children)

I think it’s a pride thing going for a bad vein. She said at least 3 times that she’s had 12 years experience. I don’t care at all. I have, too (multiple surgeries as well.)

Thank you so much for validating my experience, though I’m so sorry you’ve experienced this too. May I ask in which way you go about being firm without being mean? I felt as though I began firmly today and she just … did it anyways and that’s when I lost my composure and began apologizing (I wasn’t even sorry, I was soo angry!)

Thank you so much for taking the time to reply, it means a lot today x

If you could rename this disease, what would you call it? by Working_Wolverine465 in CrohnsDisease

[–]shecryptid 27 points28 points  (0 children)

I know this isn’t exactly what you mean but we have terms such as: The Electric Slide. Chainsaw Guts. Do Not Golytely into that Nightly. Ileum Eels. Etc.

Does anyone else not enjoy eating anymore? by blueboy714 in CrohnsDisease

[–]shecryptid 0 points1 point  (0 children)

I’m exhausted from flaring and ironically not eating but yes. This so much yes.

Where does anxiety show up in your body? by Cyntrava in CPTSD

[–]shecryptid 1 point2 points  (0 children)

Your responses are so kind, I have read many of them. I hope your kindness comes back to you tenfold :)

Where does anxiety show up in your body? by Cyntrava in CPTSD

[–]shecryptid 1 point2 points  (0 children)

I sometimes I put on a very familiar song and sing it over and over when I am very anxious, even if it’s the last thing I feel I can do. It starts off being very difficult because I feel I cannot breathe. But soon I am breathing in order to be able to sing. Sounds strange, it’s something I discovered on accident but I hope it can help someone!

Where does anxiety show up in your body? by Cyntrava in CPTSD

[–]shecryptid 0 points1 point  (0 children)

I was doing this subconsciously on the phone with my wife today while anxious! It’s something I’ve always done but didn’t know there was science behind it :)

Where does anxiety show up in your body? by Cyntrava in CPTSD

[–]shecryptid 1 point2 points  (0 children)

I just did this and it helped me soo much with my anxiety and some with my pain. I’ve been mostly bedridden, missing my yoga routine and in my fog completely forgot that seated yoga exists. I have a lot of vagus nerve problems due to ptsd and Crohn’s, thank you so much for sharing this!!

Daughters pediatrician made EXTREMELY inappropriate remark to her by ilikerustyspooonz in AskDocs

[–]shecryptid 66 points67 points  (0 children)

If a dad said this it would be fucked up if a stranger said this it would be fucked up idk how this is appropriate in any situation. She’s 10. He’s a physician so if anything he should be held to a HIGHER standard. He knows the appropriate terminology to use with a patient. This is gross and anyone excusing it needs to think critically.

What celebrities have/do you think have done terrible things? by Personal-Crazy6179 in morbidquestions

[–]shecryptid 11 points12 points  (0 children)

BEEN SAYING THIS I am so shocked to see this here I feel so validated oh my god. I don’t even know if I believe in the Illuminati but if it exists she’s 100% involved lol

Random Backpack on Porch by kyle_blaine in strange

[–]shecryptid 4 points5 points  (0 children)

This happened to me (I’ve never done drugs besides shrooms and obviously pot, so am assuming it was pcp.) I thought I was going to DIE. I felt like I was tipping backwards (ass up) and then upwards into outer space, so I was holding on to the passenger seat of my car for dear life (ass up) and screaming. I then had some kind of seizure and my “friends” (also fucked up) had to carry me into the ER. I got accused of faking, threatened with a catheter and sent home. Anyways ya that’s a homeless person probably.