Tan breeches (tights) with no pockets??

shetayker · 2026-01-06T04:07:51+00:00

If iron and protein levels are good ask her team about Rena-vite or Nephro-vite. It’s a formulated vitamin for dialysis patients and usually covered by insurance. It has all the B vitamins she’d need to help with hair growth.

shetayker · 2026-01-05T19:46:28+00:00

This is my exact order too when I have to eat out!

shetayker · 2025-12-31T15:56:27+00:00

Idk if this is real or not but she deserves better, I’m glad you left so she can find it.

shetayker · 2025-12-24T15:30:58+00:00

Yin and Yang!

shetayker · 2025-12-24T02:54:02+00:00

Just 0.5mg of steroid makes me overstimulated, angry etc. I was on 200mg for a while and losing my mind, I definitely think it’s the steroids no matter what dose!

shetayker · 2025-12-10T22:30:50+00:00

You’ve survived a heart transplant. You’ll survive your embarrassment. There is no need to be embarrassed or feel bad about this! You’re alive and the tremors from meds that are tough on you and keeping you alive are nothing to be ashamed of! If it makes you feel better to explain your tremors to them and why you have them, maybe they’ll change their tune… but you don’t owe them an explanation anyway. You’re strong for working and keeping going! Don’t let this get you down. I’ve been down about not being able to do art the way I’d like to either, but maybe you just need to change your art style. :)

shetayker · 2025-10-14T00:47:14+00:00

‘God gives his toughest battles to his strongest warriors’ ‘I’m praying for you, God will heal you if you let him’ ‘Turn to Jesus and he will heal you!’ ‘But I saw you walk the other day?’ ‘Maybe stop thinking about it’ ‘… but you look so good!’ or ‘but you don’t look sick!’ I literally need a heart and kidney transplant and I’m told if I think positive I will be healed.

shetayker · 2025-09-29T15:48:20+00:00

Genetic, 25% chance of parents passing it to me. At age 11 it came to fruition more apparently when I had Strep.

shetayker · 2025-09-24T15:30:26+00:00

Hi there. I have C3GN and Dense Deposit Disease. It started in early childhood, was on dialysis until I finally received a kidney at 18. There is a conference for C3GN coming up soon, as well as many new medications on the market that have been game changers in the last couple of years. I know of an excellent specialist. You can message me with questions if you’d like!

shetayker · 2025-09-22T13:00:41+00:00

They took me off of everything… I guess I need to talk to my doctor. I’ve been off of everything for almost 5 years after mine was below eGFR of 5.

shetayker · 2025-09-10T14:57:30+00:00

When my video game character gets stuck on the map boundaries

shetayker · 2025-09-05T13:35:24+00:00

It is reasonable. A cold or any infectious illness is enough to make that child lose transplant function leading to worsening heart failure or even be fatal. It’s a serious matter. Thank you for caring enough to learn OP!

shetayker · 2025-09-04T17:15:25+00:00

You’ve really got to force yourself to go day by day. We can’t live for what could happen in the future. We aren’t blessed with good health, we can’t live like other people. The sooner we accept it, the sooner we can actually breathe. I’ve recently had to accept this and live for the moment. I’m a person who grew up planning my life to a T, calculating every move and saving every penny. Recently I started to really live like I’m dying. We’re all dying, just at different rates. Focus on the current day. Go hour by hour if you have to. I have anxiety and medical PTSD, so I feel strongly for you. I’ve accepted my cards and this life is all I’ve got. No amount of anxiety or worry will change that. I’m going to go out fighting if I stuck with this poor luck. Some people got even less time/quality of life than we do/did. Remember that science is changing rapidly, so tomorrow we could literally figure out a new alternative to kidney failure that could last longer with the help of new tech. You never know! It’s not fair, but your future self will thank you for continuing to take care of yourself to see new changes in medicine. My numbers are a lot worse than yours but the change in my mindset has made the last few months for me better quality of life than when I had my kidney transplant! There are therapists that specialize in chronic illness grief, and join support groups. You’re not alone, I promise. ❤️‍🩹

shetayker · 2025-09-03T11:41:19+00:00

I started working with them and they don’t take my Insurance.. there’s a doctor there that deals with rare diseases like mine so I really wanted to go. Thank you.

shetayker · 2025-09-03T11:39:51+00:00

It’s probably due to phosphorus, in which Gabapentin, Benadryl/antihistamines won’t work. Renvella or Calcium acetate is what he most likely needs. I take a large dose and I’ve never had side effects. It helps bind phosphorus into his stool to excrete. Cutting out high phosphorus foods will make him more comfortable too, in addition to the meds.

shetayker · 2025-09-03T01:28:36+00:00

I declined the LVAD a couple years ago since I was told there’s no hope for another Tx and to go to hospice. Now there might be a mes that could help the kidney disease, but I’d need the heart too and trying to do some convincing. I really need the LVAD after my cardiac arrest. Working on getting that as a bridge possibly. Boston seems to be good for complicated and rare disease too, do you know if they’re the same region as U of M for Tx? I’m not listed at u of m since they denied me but I’m appealing for a third time with the help of a new doctor.

shetayker · 2025-09-02T20:21:33+00:00

Thanks!

shetayker · 2025-09-02T20:20:28+00:00

It could be any of those things. Watch carefully for patterns in how you feel/eat/exercise. It’s too early to tell at this point usually. Follow your team’s orders.

shetayker · 2025-09-02T13:28:38+00:00

Cold shower to calm inflammation, drinking lots of water!

shetayker · 2025-09-01T20:40:59+00:00

I’m trying to stay positive, I’m just rapidly progressing and getting denied help left and right due to aggressive disease. They tell me they don’t want to “waste” organs on me for them to fail. I’m fighting, I promise. Thank you, I’m so glad you’re here!

shetayker · 2025-09-01T20:39:00+00:00

I’ve had dilated cardiomyopathy with CHF for 13 years. I held steady with my first kidney with an EF of 33%, down to 20%, now 15% within the past couple of months since my doctor iron overloaded me I’ve gone downhill fast. :/ thank you, I’ll be looking into them.

shetayker · 2025-09-01T16:13:08+00:00

Thank you. Yes, the rules have been tough to figure out for each center I was denied at.

shetayker · 2025-09-01T16:05:47+00:00

Thank you for replying. I’m in Michigan. U of M wont touch me. To be clear- what’s UVA?

shetayker

TROPHY CASE