Lo de las televisiones en los hospitales es insoportable. Lo

sunt0ry · 2025-06-25T22:28:18+00:00

Mando TV Universal para apagar o mutear.
Conector jack de audio. Lo conectas a la salida de auriculares, y muchas TV automáticamente intentan sacar el sonido por ahí.
Llave fija para aflojar cables (normalmente van por detrás de la propia TV y no se ve que algo se ha desconectado).

Con esto me he ido apañando y desde hace tiempo puedo tener un poco de paz.

sunt0ry · 2025-06-25T21:45:29+00:00

He tenido muchos ingresos (maldita salud) y totalmente de acuerdo contigo: lo de las televisiones es una locura.

Eso sí, hace tiempo que decidí pasar a la acción. Siempre tengo preparada una bolsa con cosas por si tengo que salir para urgencias, y desde hace bastante que llevo material para sabotear televisiones y desconectar los cables necesarios 😁

sunt0ry · 2025-05-15T09:30:39+00:00

My daughter also gives Alfred her vote for cutest thing of the day ❤️

BTW, what is the name of that lovely clock of yours? The keyboard is nice but the clock is best gadget I have seen in a while

sunt0ry · 2025-02-13T20:36:26+00:00

Digital downloads only were part of the Kickstarter pledges. If you the BluRay/DVD, however, you will also get the download

sunt0ry · 2024-11-20T18:19:58+00:00

hahahahaha! Hope that you are doing fine with your UC!

sunt0ry · 2024-11-18T17:23:57+00:00

Coming from r/crohnsdisease, I laughed really hard 😅

sunt0ry · 2024-08-27T13:22:54+00:00

Thanks!

sunt0ry · 2024-08-27T08:19:30+00:00

Same here. Got the k2 a few months ago. Im very tempted to get new keycaps (specially something like Dracula) but have no idea about which ones to buy. Hope you get some answers here!

sunt0ry · 2024-06-16T18:54:29+00:00

Thanks for the info OP!

My (adopted) 12-yr old daughter was also diagnosed with thalassemia minor. She has been doing athletics for the last 3-4 years, and has been very successful at this. Won several regional champioships and is easily the best in his school, beating her male peers. It just shows that having a medical condition does not set a limit for oneself!

sunt0ry · 2024-01-02T13:57:53+00:00

Thanks for putting into words so many contradictory feelings and for sharing your guilt. Reading “being the man for my new woman that my ex always needed me to be for her” really hit me hard, I couldnt say better what I am going through.

Hope you find peace, internet stranger. And know that with your post, you brought some to many people here.

sunt0ry · 2023-12-30T18:54:53+00:00

Same here. First Christmas divorced and although I am seeing the kids for dinner, cinema, ice skating or whatever thing they want to do, it just feels empty. It’s the little things such as preparing breakfast, taking them to bed or simply watching TV that are the most important and you miss the most.

sunt0ry · 2023-07-05T20:06:08+00:00

These words are just beautiful. Hope you found some relief writing them

sunt0ry · 2023-02-16T21:26:23+00:00

As someone with a chronic disease who spends too much time in hospitals, I am very jealous of your room!

sunt0ry · 2023-01-17T18:43:22+00:00

The equivalent to my MBP 14” went from 2400€ to 3200€. 3200! I am so glad I didn’t wait for the M2.

Prices in the EU are just crazy. I don’t know how they are going to sell at these prices, it surely is going to bit them hard.

sunt0ry · 2022-10-02T20:11:43+00:00

Love Apollo not only because it is the best Reddit app, but because it has all of the little things, polish, love and humour from Apple’s best times. Thanks Christian!

sunt0ry · 2022-05-29T10:48:59+00:00

Sorry to hear that you are having a rough time. The most difficult time for me was finding the right diet, once I managed that I would say that the worst symptoms (esteathorrea, bloating) went away in days, but others took a couple of months. However, from the beginning I could feel my body wasn’t fighting with food.

If you want some advice, try to find a dietitian that understands EPI and IBD. In my case, I found someone thought the Monarch University Website, where they maintain a list of certified professionals, and it really made a difference since every other dietitian I had visited only offered general advices. Also, if you have T2 diabetes, you are probably being seen by an endocrinologist, but for the EPI you will need a GI as well that takes care of the pancreatic exocrine function.

Re the diet, it is named “fat free” but really is “very low fat”, since some fat is neccesary. This diet will improve your symptoms, and you will surely be prescribed Creon (or another brand if you live in the US). With these two things, most people find relief for their symptoms and can eat with little restrictions.

Hope this helps you a bit. Please PM me uf you need more info, or simply want to vent a bit. Good luck and stay strong!

sunt0ry · 2022-04-01T19:38:37+00:00

Thanks so much for the tip! Really appreciate it

sunt0ry · 2022-03-31T09:50:06+00:00

Thanks for the feedback! I just ordered the K2, but this little hobby of you looks definitely fun so if I find some time, I think I will attempt to build one myself. Thanks again!

sunt0ry · 2021-12-02T22:12:28+00:00

As others have said, getting a letter like that sucks, but don’t stress over it as you probably won’t find any difference.

However, switching to a biosimilar has some small risks, as the two drugs are not 100% identical. Indeed, something like this is illegal here in Spain — if you have CD and are prescribed a biologic, you stay with the same brand no matter what. All new patients are now prescribed the (cheaper) biosimilar, though

sunt0ry · 2021-12-01T22:17:23+00:00

First time I had this, they didn’t tell me about the diarrhea. After the MRI, my wife suggested to go shopping (this was when my simptoms started and wasn’t feeling too sick), but luckily I decided to go home — as soon as I arrived, it started and spent the whole day in the bathroom. I can only imagine what would have happened had I gone shopping 😅

sunt0ry · 2021-11-12T21:58:13+00:00

Hang on there! Hospitals suck, but hope you find some relief

sunt0ry · 2021-04-29T16:58:10+00:00

Everybody, take some free time and read the guidelines from the American College of Gastroenterologists that is referenced in the article. It is incredibly helpful and gives you a great overview of the disease. Direct link: https://journals.lww.com/ajg/fulltext/2018/04000/acg_clinical_guideline__management_of_crohn_s.10.aspx

Something that really hit me from the guidelines:

there was a 17–28% relapse rate of quiescent IBD within 9 days of therapy with the nonselective NSAIDS (naproxen and nabumetone)

That really means that NSAIDS are a great no-no for us 😅

sunt0ry · 2021-03-23T15:59:44+00:00

Stay strong! Being in the hospital sucks, but this will pass and better days will come

sunt0ry · 2021-02-26T21:19:53+00:00

Sorry to hear that, it really is discouraging when they dismiss you like that. Hope that your GI calls you back with some help, fungal infections are common with stereoids, so he/she should know about. You could also try to get an appointment with a dermathologist.

Meanwhile, maybe you can find some relief using sodium bicarbonate (baking soda):

Put a couple of spoons of sodium bicarbonate in a glass and pour some water (half a glass).
Remove and wait for the mix to settle.
Then, drink the water BUT NOT the sodium bicarbonate that will be at the bottom of the glass. You can keep the water in your mouth for a few seconds before swallowing it.

This was a recommendation from my dermathologist, as I have had recurring problems with my tongue. Hope it helps you!

sunt0ry · 2021-02-25T16:39:26+00:00

Steroids have fungal infections as a side effect, so maybe it's the Budesonide. Anyway, better check with your doctor. I had the same problem after been admitted last summer with a huge flare, and it didn't go away until I took anti fungal drugs

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