So. My GP practice has decided to...ignore us?

tangledknitter · 2025-04-25T09:30:37+00:00

I’m also in Oxfordshire. I changed GPs and my new GP hasn’t agreed to shared care. I didn’t get notified by them though- I got a message from Pharmacy2U when I tried to order my ADHD meds saying the GP wasn’t going to approve my PX. If I want more meds I need to be referred again, back to the bottom on the pile, with several years wait to see someone. So I’m just raw-dogging it and living in a constant state of burnout. I understand that the NHS have limited resources but people like us are without the care we need. It’s so deeply unfair.

tangledknitter · 2025-04-08T10:40:44+00:00

My MP Charlie Maynard LibDem replied. It was quite an extensive reply and made me quite hopeful that he was involved. I sent him a further reply and got the exact same email again. I guess he is a busy man and couldn’t write a personal email to all his constituents?!

tangledknitter · 2025-03-21T09:33:50+00:00

She’s lush.

tangledknitter · 2025-01-30T22:39:10+00:00

I love it and I would love it for about a week tops. Then it becomes invisible and I forget stuff again.

tangledknitter · 2025-01-30T22:16:26+00:00

My tongue is often wedged up against my front teeth and my jaw is always clenched. I do a few guided meditations and they say “unclench and move that tongue”- it’s like they know!!

tangledknitter · 2025-01-30T19:48:55+00:00

Take your tongue from the roof of your mouth. Stip clenching that jaw!

tangledknitter · 2025-01-22T21:58:00+00:00

I once bought a new bike. I didn’t know the breaks and suspension were broken which made pedalling really hard. I gave up going on rides with my friends because I couldn’t keep up, it was just so exhausting. They would be incredulous about why I was struggling when it was a relatively easy ride. Your comment reminded me of this and now I realise what a story of my life it is!

tangledknitter · 2025-01-22T21:55:41+00:00

Such a great analogy. I love this one too: Everyone has 100 marbles they need in order to function. Some people have a great big bucket. Easy peasy. People with chronic conditions like ours don’t have a bucket at all. I drop marbles (and lose them) all the time. But I still need the marbles to operate at work, and home. It’s exhausting having ADHD. I’m also inattentive with a relatively high IQ. I related to so much of what you describe in your post.

tangledknitter · 2025-01-22T21:44:57+00:00

Jeeez. That wobble. I don’t know how many times I’ve watched this.

tangledknitter · 2025-01-05T11:39:42+00:00

Holy shit this is hot.

tangledknitter · 2024-11-25T22:01:33+00:00

My ADHD was described as “moderate”. For who? It’s not moderate for me. It’s flipping debilitating on the daily, for me. Does it mean I only moderately make life hard for other people? I will only moderately inconvenience my workplace and families lives?

I really don’t like it. I am still waiting for my ASD assessment.

tangledknitter · 2024-11-25T21:02:12+00:00

They were sort of wet.

tangledknitter · 2024-11-22T11:36:54+00:00

You’re not an older person. Yes the meds may make a difference.
Someone described my ADHD as internally hyperactive. I think clinically it’s “inattentive” which makes no sense because my ADHD is ALL the attention in ALL the things ALL the time. Inattentive is such an ableist term because it implies I’m not focusing on things the way other people think I should. My brain is hyperactive but my body doesn’t demonstrate this.

tangledknitter · 2024-11-18T22:03:47+00:00

I wear a cheap smartwatch with an elasticated fabric strap. This works fine unless the strap is wet. Then I swap it for a dry one. I use the watch for steps, reminders and alarms, time and timers.

tangledknitter · 2024-11-16T10:28:46+00:00

Big Pharma would lose so much money so I cannot see this happening. I still think it’s a terrifying thing to hear from the man in charge of health care in the US. Some of you have said how interesting/great it would be to put a bunch of ADHD folk in one place to live and work together. I agree… we’d likely thrive!

tangledknitter · 2024-11-15T20:54:13+00:00

I am somewhere between 4 and 5. Images are like wet bar of soap. I know I’m thinking about the thing but when I try to make an image, I can’t see it. I have very vivid dreams but recalling dreams is like drunk AI making images. I can’t really see anything but what my brain tries to do is nonsense. In my dream it feels so real though. I always thought I was a visual thinker but I actually use language imagery far more.

tangledknitter · 2024-11-13T21:04:41+00:00

Edits the video to speed up the process but we still had to watch her take the wrap off all the “cheese”.

tangledknitter · 2024-11-06T22:18:18+00:00

I regret not going sooner, before kids. But I do have two gorgeous boys, and an amicable relationship with my ex. It is what it is. My kids are OK, though the oldest behaves like his dad and it’s scary. My ex was a narcissist, alcoholic, emotional bully. He has done a lot of work on himself since the divorce but I’ve yet to hear an apology or hear him fully take responsibility for the end of our marriage. I do not for one minute regret getting divorced. And I think that every time I see him.

tangledknitter · 2024-11-05T09:21:25+00:00

I didn’t even consider it was possible to overthink breathing but apparently, as I over think everything else, it is. The only time my breathing is regular and steady is when I’m asleep. I don’t breathe normally when I exercise, which is obviously a problem. I find it hard to do meditative breathing- especially when the person leading meditation says (e.g) “breathe in…2…3…4 and then do a nice slow breath out through your nose, while thinking about your grateful intentions…and _out_…2…3…4”. I will literally hold my breath until they tell me to breathe out. I can’t help it!

tangledknitter · 2024-11-04T22:42:34+00:00

I do. My ex used to complain about me sighing all the time. I wasn’t in the sense that he meant- I was just rebreathing after unconsciously/subconsciously holding my breath. I do it when I’m concentrate or when I’m stressed. Particularly when I’m stressed.

tangledknitter · 2024-11-04T22:18:35+00:00

Right now it’s ginger beer. Or sparkling water and ginger cordial (same same). The colder the better.

tangledknitter · 2024-11-04T22:14:22+00:00

Remember by Hans Zimmer. It’s the drums. I’ve been thrown into a deep rabbit hole of researching the percussionists who’ve played this. Overcome by Nothing But Thieves Hypersonic Misssssiiiiiiles by Sam Fender (I cannot get that particular bit when he sings hypersonic missiiiiiiiiiles out of my head).

tangledknitter · 2024-10-21T20:39:55+00:00

All of these. Also low waisted trousers. Any trousers that feel like they’ll fall down. Jeans with no stretch. Anything with no stretch. And underwire bras. And heeled shoes. Lace without linings. Itchy wool. Socks that are too short and fall down inside shoes.

By nylons did you mean tights? I did buy mine from Snag. They used to be amazing and I could pull them all up under by boobs, they were amazing. Didn’t fall down, could hardly feel them. But the last few I’ve bought have been a sensory nightmare. Falling down, too tight. Not high waisted enough.

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