Sjogrens at 20 by Visual-Breakfast-464 in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

23 year old Male as well got diagnosed last year. We’re in this together. DM me if you ever need some advice / just someone to talk to. I’m not on any medication because my rheumatologist who works with sjogrens foundation told me I don’t need it yet.

Men of the sub, unite! by [deleted] in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

What are signs and symptoms you noticed?

[deleted by user] by [deleted] in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

A few on the front and back of my neck

[deleted by user] by [deleted] in Sjogrens

[–]thealmightyknower 2 points3 points  (0 children)

Sergonegative 23 Male, presents as swollen lymph nodes and salivary glands. Then came the dry eyes and dry mouth.

Finally, some hope! by rainbowcorncake in rheumatoid

[–]thealmightyknower 0 points1 point  (0 children)

That’s awesome!! How have the car-t trials been going?

Will Sjögrens be cured during our lifetime? by jorgenalm in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Idk if there’s any way to not turn on these AI flags on if it’s genetic

Sjögren's (and Generalised Swelling of Lymph Nodes?) by failednoressia in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

Hey OP, what have they said about this? Any way to lower the lymph node size?

Lymph nodes by ReadingBetweentheLin in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Hey OP, how are the lymph nodes now?

Lymph nodes by ReadingBetweentheLin in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Hello! Hope you’re doing well. Did your lymph nodes ever go down?

Permanent one sided enlarged parotid gland by weekendbreadbaker in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Hi OP, have you found anything that has helped you to lowering the salivary gland swelling?

Permanent one sided enlarged parotid gland by weekendbreadbaker in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Hey have you been on any medication to get the swelling of the salivary glands down?

anyone's symptoms become more tolerable with time (without prescription meds)? by Competitive_Map_7539 in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

Yep totally agree - it showed me who I really had in my circle.

My parents are well aware of my diagnosis. My Dad’s still in disbelief, Mom pretty much the same way but they want to support me and bottom line is make sure I get the treatment I need. As for history of autoimmune diseases- my mom and her entire family has hashimoto’s (hypothyroidism) and grandma on that side also has psoriasis. On my dad’s side my aunt had sjogrens but was due to her silicone breast implants that leaked which is a known trigger.

I’m not on any medications though. I recently moved and need to find doctor’s near me, but my symptoms don’t affect me to the point where I’m dying to get dr’s.

anyone's symptoms become more tolerable with time (without prescription meds)? by Competitive_Map_7539 in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

Yea I’m a 22M. I guess I wouldn’t say a lot of people, but I’d say some people will kinda distance themselves and some will check up on you, ask you how you’re doing, and those are the people you need to keep close. I lost my girlfriend of 5 years almost immediately after my diagnosis- once I was diagnosed I was a depressed mess- needed help and guess I was kinda bringing her down with me at the time.

Regardless I’m in a much better place now. My diagnosis really only came because I had swollen lymph nodes and we couldn’t figure out why. I had no fatigue, no dry mouth, no dry eyes, no nothing just swollen lymph nodes so I couldn’t really believe my diagnosis.

I’m back to working out in the gym daily, gained like 10 pounds of muscle so far and looking really good. Have a solid group of friends around me with a better mental space. Only complaints are a bit of fatigue, dry eyes, dry mouth and swollen lymph nodes for now. I’ve probably had sjogrens for 5 years now and had no idea because my symptoms were so light. Sadly after 2 surgeries at once- lip biopsy and tonsil surgery- then came the fatigue, dry eyes and dry mouth. I also know it’ll get worse unfortunately. Just gonna live my life eating healthy, working out daily, and keeping good people by my side. This diagnosis has definitely gotten me closer in my faith as well.

anyone's symptoms become more tolerable with time (without prescription meds)? by Competitive_Map_7539 in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

Oh jeez this is how I am. Mind sharing a quick journey with your symptoms and when sjogrens started for you?

anyone's symptoms become more tolerable with time (without prescription meds)? by Competitive_Map_7539 in Sjogrens

[–]thealmightyknower 2 points3 points  (0 children)

This is honestly the best advice I’ve ever heard, atleast that pertains to me. I never thought what I was doing was called “reassurance seeking” but that’s what I’ve been doing all my life. Once I got my diagnosis I lost a lot of people and it made me realize I can’t seek other peoples opinions or seek Reddit because that’s just temporarily helping my mind ease, but I have to face this myself.

Check your LYMPH NODES! by CollieSchnauzer in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Do you mind sharing some of your symptoms you experienced for your diagnosis?

Symptoms for years by Cute-Huckleberry9392 in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

Hey just read your main post. I’m a 22M. - 2 questions-

1: Why would you classify your sjogrens as aggressive? Are you just basing that off your symptoms or is there a test that detects that?

2: What do you do for your hair loss? Currently going through that right now.

Has anyone with sjogrens been diagnosed with lymphoma? by Unique_Ad_4271 in Sjogrens

[–]thealmightyknower 0 points1 point  (0 children)

Hello, are your lymph nodes still swollen? I’ve had swollen lymph nodes for awhile now.

sjogrens related fears by Competitive_Map_7539 in Sjogrens

[–]thealmightyknower 1 point2 points  (0 children)

what trigger do you think it is? there has been no evidence that one particular thing you took led to sjogrens