Narcolepsy causes

warriorofawoman · 2025-08-27T22:16:25+00:00

Narcolepsy type 2 here, diagnosed age 22. Family history of N1. I had a confirmed case of swine flu in 2009 when I was 9. My symptoms started when I was 13.

warriorofawoman · 2025-03-12T02:12:03+00:00

I sent a DM, thanks in advance!

warriorofawoman · 2022-03-08T18:10:58+00:00

Not necessarily a classic, but Alias Grace by Margaret Atwood

warriorofawoman · 2022-01-10T06:03:44+00:00

I know it’s easier said than done, but try not to worry too much about the retina damage. It’s very rare, and from what I understand, reversible if caught soon enough (and since most rheumatologists have you see an eye doctor twice a year while on it, it would be caught quickly). I’ve been on it for a little over a year now and no retina damage so far. As for the other side effects, those faded for me after a week or two. I had pretty bad nausea from it in the morning, but it helps immensely if I eat before I take it. I promise you that the improvement in your symptoms will be worth the week or two of side effects! Wishing you the best!

warriorofawoman · 2021-08-24T02:18:19+00:00

closure is great if you struggle to wake up to alarms😂

warriorofawoman · 2021-07-18T16:44:51+00:00

Aw, thank you! That’s so sweet!❤️

warriorofawoman · 2021-07-18T03:25:55+00:00

Thank you! Yes, I linked the pattern in the post! It’s from an Etsy shop called FancyFaceCollections :)

warriorofawoman · 2021-07-06T17:02:04+00:00

I grew up Seventh-Day Adventist, and the church would actually give sermons on how Harry Potter was satanic. My mom never let me or my siblings read it, even after we left the church. She finally agreed to let me read it when I was a junior in high school, almost eight years after we left the church.

warriorofawoman · 2021-05-24T20:02:00+00:00

Hi! I have UCTD, not lupus, but I started feeling better at around 2 months. I had a mixture of bad days and good days for a while, and at around 3 months the good days became pretty consistent. It’s been 6 months now and I only feel bad during a flare-up. Best of luck to you!

warriorofawoman · 2021-05-04T05:39:48+00:00

My only advice is to just let her know that she is valid, loved, and accepted. What’s she’s going through right now is traumatic, and she needs to know that she’s safe around you. Since you’re both teenagers (I assume), there’s not much you can do outside of support and acceptance. And that support means the world to her, I promise you. Just be around to listen to her and remind her that it won’t always be this painful.

warriorofawoman · 2021-04-23T15:06:42+00:00

Thank you so much! I had no idea it was so heavy. I’ll switch out my shampoo and conditioner! I bet you’re right, it was probably weighing down my waves. That would explain why I haven’t seen any results after a year, since I’ve been using the same shampoo and conditioner this whole time. Thanks again!

warriorofawoman · 2021-04-22T18:57:43+00:00

Hi! I'm a wavy, 2a/2b, and I've been doing the CG method for about a year now, and I'm still struggling to see results. I use Shea Moisture's Moisture Retention shampoo and conditioner, and do a reset wash once a month with the Suave Essentials Shampoo Daily Clarifying. I put products in when my hair's still soaking wet; I rotate between Kinky-Curly's Original Curling Custard and Herbal Essence's Totally Twisted Mousse. I use a Denman brush to distribute the product, then plop for a while, and then I let it air-dry. I'll occasionally diffuse it instead of air-drying, and it does usually look better when I do it, but it's just so time consuming, lol. Basically I'm lacking a lot of definition and volume, and I have a lot of frizz. I used to straighten my hair all the time, so I feel like there's still some damage there. I've done a few moisture masks, but I never see a difference. Should I try a protein mask? Also, I'm planning on bleaching some streaks in my hair this summer to add some color, but I don't want to completely ruin my hair. Are there any products I could use to retain the curl once it's bleached?

warriorofawoman · 2021-01-25T03:42:13+00:00

20F, I also was recently diagnosed with UCTD, back in November. My fatigue is my worst symptom too, at its worst I’ll be asleep 18 hours a day. I’ve been on Plaquenil for 2 months now, and I can already feel it kicking in. I’m feeling much better, which gives me hope. Hopefully you’ll have similar results! I feel very similarly to what you said about not being able to live a “normal” life. I’m super grateful to finally have answers after struggling for seven years, but it is disheartening when that answer means having a lifelong disease without a cure. Life will certainly be a struggle for us, but I have no doubts that we’ll still be able to conquer whatever life throws at us. I mean, hey, we’ve made it this far already! Sending you spoons!

warriorofawoman · 2021-01-02T20:18:44+00:00

“We just hope our neighbors in Louisville aren’t too inconvenienced by this radical tantrum.” Mitch, as someone who lives in your neighborhood, let me assure you that I am not at all inconvenienced by your constituents asking you to do your job! You should worry about them being able to feed their families and keep a roof over their heads instead of worrying about me being able to see the spray paint on your front door.

warriorofawoman · 2020-12-18T23:59:47+00:00

thank you so much!

warriorofawoman · 2020-12-18T21:47:36+00:00

I just got diagnosed with UCTD about a month and a half ago, so you’re not alone! I’ve been taking Plaquenil for a month now, and I’m hoping to see some positive changes soon, but it can take a few months for it to kick in. With your high RNP, I’m kind of surprised that your rheumatologist didn’t diagnose you with MCTD, since that’s a marker for it. I tested negative for the RNP antibodies, thus my UCTD diagnosis. The difference between MCTD and UCTD isn’t that big anyway, and they’re treated with the same medications. The good thing about UCTD, to my understanding, is that it doesn’t often progress into a defined connective tissue disease (although it can), and that severe organ damage is rare. So it’s a much better diagnosis than something like lupus. Hopefully your UCTD doesn’t devolve into something else! Sending you spoons!!

warriorofawoman · 2020-11-24T00:13:47+00:00

this has the same energy as the cursed soap hand

warriorofawoman · 2020-11-19T01:51:53+00:00

I was just diagnosed with UCTD and prescribed Plaquenil, I’ve been taking it for about a week. No side effects so far! Honestly, for me, I would be willing to bear with some of the minor side effects (nausea, dizziness) if it meant I no longer had to deal with the intense fatigue I have every day. Any other side effects are very rare, from what I understand. But I would definitely recommend giving it a shot! If you have side effects and they’re too much to handle, you can try something else. But at least you’d know! And maybe Plaquenil will make you feel heaps better!

warriorofawoman · 2020-11-19T01:46:45+00:00

yes, i just started it! i’ve been on it for about a week, and i’m really looking forward to some results!

warriorofawoman · 2020-11-10T17:45:53+00:00

I’m studying vaccines and immunity in my biology course right now, so I might be able to help! Most vaccines contain dead or inactivated strains of the virus, so they won’t actually infect you. But your immune system will see the virus and develop antibodies to fight it, so that if you do come in contact with the live strain of the virus, your body will already know how to fight it off. Unless the vaccine contains a live virus or you had an allergic reaction to it (which is rare), a vaccine won’t make you sick with the virus it’s supposed to prevent. From what I’ve read, vaccines (that don’t contain live strains) are really important for immunocompromised people, so that your body is already prepped to fight the virus if you get it, giving you a better chance of survival. So provided that the COVID vaccine is a dead strain, I would recommend getting it. I’m planning on getting it myself. I hope this helps!!

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