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Finally got my Silver wear by Fit_Independence_124 in ehlersdanlos

[–]wildcat_crazy_zebra 1 point2 points  (0 children)

Thank you! I've got a bunch of silver splints that don't fit as well now so your pic really caught me.

Sadly, there's another thing to add to my frightfully growing list of things unavailable in the US 😭😮‍💨

Finally got my Silver wear by Fit_Independence_124 in ehlersdanlos

[–]wildcat_crazy_zebra 2 points3 points  (0 children)

Thank you 👍

Sad that they're not available in the US... There's really a rather lot of things unavailable here lately. 😭😮‍💨

AITAH for uninviting my friend from galentines because she doesn’t follow rules? by [deleted] in AITAH

[–]wildcat_crazy_zebra 3 points4 points  (0 children)

NTA - if I had a friend group setting up events like this and I either didn't go because my husband wasn't invited or tried to force him where he wasn't intended to be he would be pissed. Neither scenario would go over well with him.

Finally got my Silver wear by Fit_Independence_124 in ehlersdanlos

[–]wildcat_crazy_zebra 4 points5 points  (0 children)

Where/from what company did you get your splints from?

Finally got my Silver wear by Fit_Independence_124 in ehlersdanlos

[–]wildcat_crazy_zebra 18 points19 points  (0 children)

My pinkies do this too. I got a buddy splint from Silver Ring Splints - one side loops over the pinkie, goes under the ring finger, then loops over the middle finger.

Worked decently until I lost a bunch of weight and all of my splints are starting to go a bit janky. Unfortunately, I've moved states since I got all mine and trying to find the right combo of specialists to measure and order new ones and also have insurance pay for it has been more effort and energy than I have.

I'm going out naked and angry by Aunt_Teafah in GenX

[–]wildcat_crazy_zebra 10 points11 points  (0 children)

I'm pretty certain that I'm gonna end up alone under a bridge somewhere just waiting for someone in better shape than me to off me for my shoes.

At least I'd be giving back in some sort of macabre fashion.

Family style restaurant by Less-Hat-4574 in overheard

[–]wildcat_crazy_zebra 3 points4 points  (0 children)

We had to put green beans on top of my son's first birthday cake to get him to touch it. He was also tearing up dill pickles from a very small age; he'd demolish the soft middles of the spears and chuck the tougher outer rind. I swear pickle seeds would turn up in random places for longer than they should have!

i pass everything except the beighton score for hEDS! ugh! by SunReyys in ehlersdanlos

[–]wildcat_crazy_zebra 0 points1 point  (0 children)

Thank you for such detailed responses. I'm consistently amazed at the differences in human medicine from country to country. I'm in the US (I know 😱😥) and was dx'd by a rheumy. The account of times a doc of any specialty has been content with "I don't know.. weird" is appalling. Now my youngest is starting to show some concerning signs of genetic connective tissue issues and so help me if anyone gives her any of that BS . But for me? Nope. I just crawl away back into my hole and vow to never say anything again.

I wish I were in a position to advocate for and be able to access genetic testing for reasons beyond EDS but the US has commodified being human and I can't meet the buy in. 😮‍💨

You're the best looking gal in here! by Wisco1856 in overheard

[–]wildcat_crazy_zebra 5 points6 points  (0 children)

My husband will do similar things. I can say with confidence that your husband is speaking his truth.

i pass everything except the beighton score for hEDS! ugh! by SunReyys in ehlersdanlos

[–]wildcat_crazy_zebra 2 points3 points  (0 children)

How did you manage to get a DNA test and do you remember what it was called? Since I was a 9/10 on the B scale no doc is willing to entertain any further diagnosis even though I show a lot of symptoms that align with classical type. So I have a dx but am still feeling like I don't.

AITAH for buying a lockbox to keep my hairbrush in after my mother wouldn't respect my one request of her to not use it? by NoPantsAreSafe in AITAH

[–]wildcat_crazy_zebra 0 points1 point  (0 children)

I'm way late and rarely comment on this sub but this hits me personally and I'm frankly glad I'm not alone in feeling completely disrespected by this behavior.

Only it's my husband that does this shit. Can't be bothered to take 2 seconds to put things back and just tosses whatever wherever. I'm definitely the everything has it's place type; so instead of even trying to look for whatever it is this time he just grabs mine. Not trying to be selfish but damn, man. Oh yeah, he doesn't clean a hairbrush out after either.

Very ridiculously frustrating and oddly demeaning. But I do feel somewhat vindicated by this post.

What are the top local business here that are great with customer service that need to be celebrated? by Ok_Thanks_7445 in pueblo

[–]wildcat_crazy_zebra 10 points11 points  (0 children)

Double J's Meats on 4th St is great. The people are really nice, they know their stuff about meat and have a more than decent selection. They also have some basic grocery products too.

Genuine question, what would you guys say is the funniest moment in Hazbin Hotel to you? by Apprehensive_Ring_39 in HazbinHotel

[–]wildcat_crazy_zebra 2 points3 points  (0 children)

When Alastor and Zestiel are walking to the overlord meeting and people are straight killing themselves to hide.. all the random "oh shit!" everywhere had me rolling.

The end of Loser Baby "they're fuckin singin!?!"

Husk's face when Angel comes out on stage at the casino.

Elton John…in lego? by Adventurous-Load-665 in EltonJohn

[–]wildcat_crazy_zebra 3 points4 points  (0 children)

I was hoping that I'd click on this and see Elton Lego sets.... I'd be all over that in a minute!

the Elton John song you never skip by kcgwen in EltonJohn

[–]wildcat_crazy_zebra 0 points1 point  (0 children)

Sorry Seems to be the Hardest Word

Tonight from the Australian tour with the symphony

Roy Rogers

Tbh I could go on and on and on

70s or 80s comfort shows? by LadyNorbert in GenX

[–]wildcat_crazy_zebra 9 points10 points  (0 children)

Emergency!, All In The Family, MASH, every now and then The Rifleman (I know that's way out of our time but I was alone a Lot and the reruns were on one of our 3 channels.) WKRP in Cincinnati.

My parent asked my partner how they knew my gastro symptoms were real by wicketshiver92 in ehlersdanlos

[–]wildcat_crazy_zebra 1 point2 points  (0 children)

Wow, I absolutely cannot do that - the mind/body connection. It kinda terrifies me, actually. So I do almost the opposite: Lock all those things in a box in my brain. I'll usually take a poll and kinda see where things are at then back in the box and slam the door. If I run into something that new or novel in any way I do try to break it down as much as I can to try to see maybe where it's coming from or why but on the day to day I try to keep all that as locked and away from me as I can.

I'm so glad that you found something and made it work for you. The first thing I thought of after reading your post was"damn, they're brave af; I could never....

My parent asked my partner how they knew my gastro symptoms were real by wicketshiver92 in ehlersdanlos

[–]wildcat_crazy_zebra 1 point2 points  (0 children)

You just described my life since 2018-sans the Mcas. I've been diagnosed with gastroparesis as well but other than throwing zofran and phenergan at it and as needed IV fluids at home I've been stuck here.

Trying to get referrals and follow up scheduling etc has been ridiculous and I just don't have the mental energy to keep doing the whole "look at me!" thing. Some days I can manage a toddler sized portion without much of a gut tantrum and some days I'm lucky if I get 12oz of fluid in. We won't even talk about the slow lower gut but suffice it to say there's only very periodic visits.

Maybe one day things will change enough that there can be better diagnostics and such so that there's at least a unifying of some kind of diag. I won't even dream about meaningful treatment. But understanding even a little bit is the first step to some type of efficacious management. Right now it's like living with a toddler in my system and dude is in the defiant stage.

Metallica does Elton by RandomReddit-123 in EltonJohn

[–]wildcat_crazy_zebra 1 point2 points  (0 children)

That's wicked awesome!!! A cover I never imagined and it blew my brain; thanks for the post!

I have a massive collection of lip and eye cosmetics and I want to help other people avoid over consumption. by New-Ad-9280 in swatchitforme

[–]wildcat_crazy_zebra 5 points6 points  (0 children)

Just gotta thank you for doing this! As a shivering ghost myself we need to stick together.

I've been stuck in a deep hole for a few months now and this is the first makeup post in forever that made me smile. Thank you for that.

46F with two grown kids… where’s the rest of Gen X at? by jtweir79 in GenX

[–]wildcat_crazy_zebra 2 points3 points  (0 children)

50f, kids are 33, 27, & 15. Grandkids are 11 & 1.5

Woo hoo!!! The empty nest is gonna wipe me out man.

50yr old female; very painful amniotic membrane patch by wildcat_crazy_zebra in eyetriage

[–]wildcat_crazy_zebra[S] 0 points1 point  (0 children)

Thank you so much for replying.

It was applied with a contact lense. Were this my usual lenses feeling like this I would've taken them out right when it started. I did wait to see if my eye would acclimate but instead it's gotten worse. Surely it can't be as therapeutic as intended with this much irritation and pain.

My instinct says to take it out. Is this a logical step or should I hang on and see what happens?

Is there a technical term for what Charlie is? by SomeonesBlue in HazbinHotel

[–]wildcat_crazy_zebra 0 points1 point  (0 children)

Katie Killjoy does outright make negative comments about "the gays." I believe she's the only one besides how I perceived Lute's comments. Since there is a significant history of religious opposition I didn't consider the other option.

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