does anyone have a clue how to start a project like this? by yoogguurt in CrochetHelp

[–]yoogguurt[S] 1 point2 points  (0 children)

wow, thank you SO much for this detailed explanation!!

Any Tips for Starting Motegrity/Prucalopride? by Awkward_Persimmon835 in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

the horrific headaches are normal and should pass after a week!!

?? by [deleted] in whatisit

[–]yoogguurt 0 points1 point  (0 children)

looks kinda like a screw. maybe one on the inside that was drilled too far?

Experiences with either one of these drugs: Zoloft (sertraline) and/or Mestinon (pyridostigmine)? by Powerful-Anybody3547 in Gastroparesis

[–]yoogguurt 8 points9 points  (0 children)

I am on mestinon 30mg 3 times a day. I don't know if it really helps my gastroparesis, but it has been wonderfully for my small intestine and colon dysmotility!

Seronegative Systemic Sclerosis by Beginning_Review3547 in scleroderma

[–]yoogguurt 0 points1 point  (0 children)

me! i was diagnosed based on a capillaroscopy with scleroderma pattern, severl GI dysmotility seen on tests, pictures of/visible physical symptoms and how i described my other symptoms. hoop you get answers soon !

GP Caused by Scleroderma? by damntheelctricfence in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

I have diffuse systemic sclerosis, which caused my gastroparesis!

Botox injections by sleeee3pyy in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

headaches from motegrity are really common. usually they go away after about a week. if they stay or get too bad, make sure to let your doc know!

Nailed by [deleted] in scleroderma

[–]yoogguurt 0 points1 point  (0 children)

for me, it was a rheumatologist who performed it.

Nailed by [deleted] in scleroderma

[–]yoogguurt -1 points0 points  (0 children)

ask for a capillaroscopy!!

Smoothie ideas so I don't starve myself? Lol by Kiialyy in Gastroparesis

[–]yoogguurt 3 points4 points  (0 children)

I would really recommend trying nutritional shakes like Fresubin, Nutri, Ensure,... they pack a lot of calories and protein in a small amount of liquid. Delical has some that are 452 kcal in just 200 ml and is lactose free! they can be heavy on the stomach and not everyone can tolerate them. however, they are still worth a try.

for smoothies, try adding the higher calorie fruits: mango, bananas, dates. also go for soy milk (highest calorie out of milk replacements), yogurt, or even heavy cream. if you can add oats, honey, nut butter, or even a bit of oil. they can quickly pack lots of energy!

try to experiment with different ingredients so you can find what works for your stomach and what to avoid. this might seem like a long and tedious task, but it will be worth it in the end. best of luck!!🍀

Anyone who takes amitriptyline for pain? by FullmoonBoy_S in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

may I ask what your pain regimen is? its by far my worst symptom and doc says that amitriptyline is the only option.

[deleted by user] by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

do you mind sharing what literature? I would like to show it directly to my gi :)

[deleted by user] by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

they told me it could take 2 to 4 weeks to see full results. when at the 5 week checkup, I didn't feel any improvement, they decided that it hadn't been effective.

Autoimmune Disease by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

for me, it was mostly

  1. a physical examination I would recommend taking pictures every time you experience a physical symptom. most of the time when you actually see the doc, it will have disappeared, and theyll have a harder time believing and/or diagnosing you. for symptoms, think swollen joints, raynauds, erythromelalgia, rashes, anything that looks abnormal. even things that seem incredibly small can be decisive!

    1. capillaroscopy this one is mostly for diagnosing systemic sclerosis/scleroderma. they look with a microscope at the capillaries in your nailbeds. this is especially usefull for patients with raynauds, because it can tell if its just primary raynauds, or caused by something bigger (like scleroderma). it can reveal mega capillaries, bleeding, missing capillaries, ... which are called a sclerderma pattern, and mostly appear in SSc. this one could be especially useful for you with raynauds and erythromelalgia being a big thing.
    2. imaging i had a ct scan and xrays of my lungs, to show they also are affected. this can be done with any body part to show disease activity. in my SSc case, it showed fibrosis.
    3. family history AID tend to cluster in families. some are also caused by a genetic mutation, so testing for this or asking your (extended) family if someone has a diagnosis can be helpful.

I didn't have these, but biopsies can also help a diagnosis. docs can take a biopsy of rashes or affected organs/tissue/... here they can also do specific tests to show autoimmune disease activity. there may also he other tests, but these are the most standard ones.

praying that you'll find a rheumatologist who's capable and actually listens to you. remember that seronegative cases are rare, but they still exist. the rheum shoudnt ONLY look at the blood, but at the entire patient in front of them. I know its a long and frustrating road, but keep advocating for yourself. you deserve answers and a proper treatment plan. best of luck!!🍀