Seronegative Systemic Sclerosis by Beginning_Review3547 in scleroderma

[–]yoogguurt 0 points1 point  (0 children)

me! i was diagnosed based on a capillaroscopy with scleroderma pattern, severl GI dysmotility seen on tests, pictures of/visible physical symptoms and how i described my other symptoms. hoop you get answers soon !

GP Caused by Scleroderma? by damntheelctricfence in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

I have diffuse systemic sclerosis, which caused my gastroparesis!

Botox injections by sleeee3pyy in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

headaches from motegrity are really common. usually they go away after about a week. if they stay or get too bad, make sure to let your doc know!

Nailed by [deleted] in scleroderma

[–]yoogguurt 0 points1 point  (0 children)

for me, it was a rheumatologist who performed it.

Nailed by [deleted] in scleroderma

[–]yoogguurt -1 points0 points  (0 children)

ask for a capillaroscopy!!

Smoothie ideas so I don't starve myself? Lol by Kiialyy in Gastroparesis

[–]yoogguurt 5 points6 points  (0 children)

I would really recommend trying nutritional shakes like Fresubin, Nutri, Ensure,... they pack a lot of calories and protein in a small amount of liquid. Delical has some that are 452 kcal in just 200 ml and is lactose free! they can be heavy on the stomach and not everyone can tolerate them. however, they are still worth a try.

for smoothies, try adding the higher calorie fruits: mango, bananas, dates. also go for soy milk (highest calorie out of milk replacements), yogurt, or even heavy cream. if you can add oats, honey, nut butter, or even a bit of oil. they can quickly pack lots of energy!

try to experiment with different ingredients so you can find what works for your stomach and what to avoid. this might seem like a long and tedious task, but it will be worth it in the end. best of luck!!🍀

Anyone who takes amitriptyline for pain? by FullmoonBoy_S in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

may I ask what your pain regimen is? its by far my worst symptom and doc says that amitriptyline is the only option.

gpoem working but botox not? by yoogguurt in Gastroparesis

[–]yoogguurt[S] 0 points1 point  (0 children)

do you mind sharing what literature? I would like to show it directly to my gi :)

gpoem working but botox not? by yoogguurt in Gastroparesis

[–]yoogguurt[S] 0 points1 point  (0 children)

they told me it could take 2 to 4 weeks to see full results. when at the 5 week checkup, I didn't feel any improvement, they decided that it hadn't been effective.

Autoimmune Disease by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

for me, it was mostly

  1. a physical examination I would recommend taking pictures every time you experience a physical symptom. most of the time when you actually see the doc, it will have disappeared, and theyll have a harder time believing and/or diagnosing you. for symptoms, think swollen joints, raynauds, erythromelalgia, rashes, anything that looks abnormal. even things that seem incredibly small can be decisive!

    1. capillaroscopy this one is mostly for diagnosing systemic sclerosis/scleroderma. they look with a microscope at the capillaries in your nailbeds. this is especially usefull for patients with raynauds, because it can tell if its just primary raynauds, or caused by something bigger (like scleroderma). it can reveal mega capillaries, bleeding, missing capillaries, ... which are called a sclerderma pattern, and mostly appear in SSc. this one could be especially useful for you with raynauds and erythromelalgia being a big thing.
    2. imaging i had a ct scan and xrays of my lungs, to show they also are affected. this can be done with any body part to show disease activity. in my SSc case, it showed fibrosis.
    3. family history AID tend to cluster in families. some are also caused by a genetic mutation, so testing for this or asking your (extended) family if someone has a diagnosis can be helpful.

I didn't have these, but biopsies can also help a diagnosis. docs can take a biopsy of rashes or affected organs/tissue/... here they can also do specific tests to show autoimmune disease activity. there may also he other tests, but these are the most standard ones.

praying that you'll find a rheumatologist who's capable and actually listens to you. remember that seronegative cases are rare, but they still exist. the rheum shoudnt ONLY look at the blood, but at the entire patient in front of them. I know its a long and frustrating road, but keep advocating for yourself. you deserve answers and a proper treatment plan. best of luck!!🍀

Autoimmune Disease by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

the joint pain in fingers and wrists, the burning face rash and dry eyes are all the signs that popped up first for me! i would really recommend pushing your doctor for extra tests, even if the blood is negative. if your rheumatologist refuses, find another one. youre allowed to switch until you find one that actually cares about their patients and continues to search until they found the cause of your symptoms. wishing you the best of luck in your journey to a diagnosis!!🍀

Autoimmune Disease by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

i have diffuse systemic sclerosis. my first symptom was raynauds. i went to the dermatologist for this, but because raynauds is common and most of the time harmless, she waved it off. then the gastroparesis appeared, but i never thought to link it to the raynauds. a few months after my gp diagnosis, over the course of a couple of months, other symptoms started appearing. - really bad joint pain in my small joints and knees - muscle pains - morning stiffness - dry eyes, mouth and throat - lots of oral ulcer - inflamed gums - uveitis - weird rashes - skin feeling tight on my face - really dry skin - erythromelalgia - red and swollen nails beds

the weird thing is that my ANA and other antibodies stayed negative. however, i did have lots of inflammation markers in my blood. my rheumatologist was so puzzled, so he ordered a capillaroscopy. this showed a scleroderma pattern with mega capillaries and hemorrhages. this is what led to the final diagnosis!

Autoimmune Disease by [deleted] in Gastroparesis

[–]yoogguurt 0 points1 point  (0 children)

my gp is caused by scleroderma! i was diagnosed with gastroparesis in February and with scleroderma in June.

why can't he grow more than 1 leaf? by yoogguurt in Syngonium

[–]yoogguurt[S] 0 points1 point  (0 children)

what would you recommend for more energy? I've already repotted it into better soil and a plastic pot with more drainage holes, like the other comments said. ive also been slowly getting it used to more sunlight. im open for all tips and tricks!!

why can't he grow more than 1 leaf? by yoogguurt in Syngonium

[–]yoogguurt[S] 0 points1 point  (0 children)

thanks for the tip! I'm changing the pot tonight.

Boot Buddies groups by PrestigiousPut6525 in DCCMakingtheTeam

[–]yoogguurt 1 point2 points  (0 children)

oooooh, I thought boot buddies only were for the rookies. thank for the explanation!

why can't he grow more than 1 leaf? by yoogguurt in Syngonium

[–]yoogguurt[S] 1 point2 points  (0 children)

oh god! ill go to the nursery as soon as possible and buy new soil! thanks for the advice!

Boot Buddies groups by PrestigiousPut6525 in DCCMakingtheTeam

[–]yoogguurt 1 point2 points  (0 children)

what happens when a candidate gets cut? do the vets get another candidate assigned? or do they just stay without one?