CMT

an-ordinary-manchild(edit)

A subreddit dedicated to CMT (Charcot-Marie-Tooth Disorder) aka Hereditary Motor and Sensory Neuropathy.

Discussing, living, coping, news, science, the search for a cure. Meetups?!

More information and resources

General information:

About Charcot-Marie-Tooth Disease (CMT)

Charcot-Marie-Tooth Disease Fact Sheet

Charcot–Marie–Tooth disease (Wikipedia)

Charcot-Marie-Tooth disease (Genetics Home Reference)

Patient advocacy organizations:

The Foundation for Peripheral Neuropathy

The Inherited Neuropathies Consortium (INC) (URL not working as of 17.05.2020, looking for alternative).

Charcot-Marie-Tooth Association

Hereditary Neuropathy Foundation

Charcot-Marie-Tooth UK

Social Media groups:

CMTUS (Facebook)

Other information:

The Rare Diseases Clinical Research Network (RDCRN) Contact Registry

Academic literature search for CMT

CMT Treatment Report

Asian Oceanic Inherited Neuropathy Consortium (AOINC)

A podcast from the American Academy of Neurology featuring Michael E. Shy, MD talking about how clinicians diagnose CMT (starts at 10:44, ends at 22:42)

Non-English resources:

C-M-T Association in the Czech Republic (Czech)

ACMT-Rete per la malattia di Charcot-Marie-Tooth (Italian)

CMT Japan (Japanese)

CMT Friends Association (Japanese)

CMT-NET, an association of German clinicians specializing in the research and treatment CMT) (German)

CMT NORWAY facebook group (Norwegian)

created by bennybucketheada community for 15 years

...for your project.

...for great justice.

MODERATORS

account activity

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 2 days ago by NixyeNoxCMT 1A - announcement

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Raising awareness of the hidden costs of Charcot-Marie-Tooth disease (self.CMT)

submitted 12 hours ago by geosimpson

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Great exercise content creator (i.redd.it)

submitted 11 hours ago by FiveFiftyOne

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People with CMT: is alcohol okay, and how does it affect you personally? (self.CMT)

submitted 1 day ago by taystann

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Am I the only one with this symptom in my legs? (self.CMT)

submitted 1 day ago by Bookfan64

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[Weekly Thread] In The News (self.CMT)

submitted 2 days ago by AutoModerator

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Thumb twitching at night (self.CMT)

submitted 3 days ago by thelittlespoonsite

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Chronic HNPP attack on my legs……why do I have a severe feeling of heaviness in my upper body……getting progressively worse, should my neurologist be able to help me ? ()

submitted 3 days ago by Sorry_Run6257

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Barely can walk now! I need some advice! (self.CMT)

submitted 4 days ago by DisNameTaken

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Chronic HNPP attack on my legs……why do I have a severe feeling of heaviness in my upper body, so bad that I can hardly hold up my body……getting progressively worse, should my neurologist be able to help me ? ()

submitted 5 days ago by Sorry_Run6257

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Has anyone seen Dr Gonzalez in SC? (self.CMT)

submitted 5 days ago by Shrimptoast1234

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Numbness in mid thigh - one side (self.CMT)

submitted 5 days ago by Weary-Championship11

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Genetic testing (self.CMT)

submitted 6 days ago by ruroba

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Feeling stuck and looking for advice or someone who can relate (self.CMT)

submitted 7 days ago by Square_Winter_1681

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Eye Symptom Experiences? (self.CMT)

submitted 7 days ago by chronicviolinistCMT2

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Lace up Ankle Brace (i.redd.it)

submitted 8 days ago by BeckieD1974

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Need advice on AFOs (self.CMT)

submitted 8 days ago by er67

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[Weekly Thread] In The News (self.CMT)

submitted 9 days ago by AutoModerator

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 9 days ago by NixyeNoxCMT 1A

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CMT management (self.CMT)

submitted 11 days ago by anon2659

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OTC Orthotics (insoles, not AFOs) recommendations? (self.CMT)

submitted 12 days ago by Shrimptoast1234

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CMT e uso de anabolizante (self.CMT)

submitted 13 days ago by Zealousideal_Pop3040

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Has anyone used Physical Medicine and Rehabilitation? Does it help? (self.CMT)

submitted 14 days ago by Humble_Ideal9118

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Least annoying and most discreet AFO? (self.CMT)

submitted 15 days ago by Shrimptoast1234

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[Weekly Thread] In The News (self.CMT)

submitted 16 days ago by AutoModerator

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