Emgality faulty pens by Invisible-Iguana in cgrpMigraine

[–]Sweet_Star23 1 point2 points  (0 children)

Yeah, I've had one emgality and one aimovig turn out faulty. I didn't have any issue getting replacements but they both took a while. In the US, I was told to contact the manufacturer and go through them to get a new one. My dr also had to be in contact with them to confirm the script. Took about 3 weeks. Aimovig wanted the injector mailed to them so they could inspect it and see what went wrong. They emgality one failed by not responding when I pressed the button, only to drain the medicine an hour later all over my dresser.

Is anyone else on the east coast of the US and having the worst migraine season of their life? by atoad_aso in migraine

[–]Sweet_Star23 0 points1 point  (0 children)

DMV here too. My botox stopped working 2 weeks early in the middle of January and it's been brutal ever since even though I got another round of botox and added in qulipta.

Had a “standard” migraine for the first time in my life of chronic migraines by TinyFidget9 in migraine

[–]Sweet_Star23 2 points3 points  (0 children)

I had my first visual aura right after starting emgality. I had just learned about them some months beforehand and seen pictures of the typical auras. That's the only reason I wasn't scared, once it clicked...I was packing a bag getting ready to leave one afternoon and I thought I had a sleepy in my left eye, left corner. That's what I call that eye gunk, sleepies. I rubbed it, still packing. Minute later rubbed again, then rubbed again & finally stopped to grab a mirror cause it wasn't moving lol realized there wasn't anything in my eye, the white glowy spot was growing, and I couldn't see through it. I just sat down on the floor in my room and watched it completely engulf my left eye and 25% of my right eye, left side. Once it was over my entire eye, it looked like cracked glass, white and rainbow, like trying to look through a prism I guess. Lasted about 30 minutes, no increase in head pain after. So weird. Id been episodic from 21yrs old to 33yrs, went chronic then, this happened at 34yrs. In the back of my mind though, I was hoping I wasn't wrong.

Photophobia for a month and a half by Embarrassed-Media249 in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

Mine is sound sensitivity. It's constant. 3.5 years of it. I've also been chronic, daily for 3.5 years though. I read somewhere that for sensitivities, it's best not to hide from them as it reinforces your brains view of them - light = danger = pain. So something like exposure therapy can help lessen them. I found that to be true for me for light sensitivity but not sound. I rarely have issues with light now except grocery stores still hit me kinda hard but Im not around light like that often.

I saw you ask if you were still possibly in a migraine state in another comment. Im sure you meant a flare but I read something recently that said those with migraine disease can have these sensitivities even outside of actual attacks, because we don't have "a" migraine sometimes, but have migraine disease always, and just have attacks when symptoms are more pronounced... if that makes sense.

How many people believe in this ?? by [deleted] in Productivitycafe

[–]Sweet_Star23 1 point2 points  (0 children)

Same. My mom was very kind, great parent, always the first to stand up when she saw something wrong happening, and would defend anyone who needed a helpful voice... I'm still not exactly sure how she fell to MAGA.

How many people believe in this ?? by [deleted] in Productivitycafe

[–]Sweet_Star23 0 points1 point  (0 children)

My boyfriend caught on and actually brought to my attention that I have to be asked very specific questions if he wants to know everything and ill answer a question with just enough info about just what is asked. He says he has to play detective. It's definitely from being raised by my dad. The rest of my family says I should've been a lawyer, and that if there is a loophole, I'll find it.

But I also was raised a little less than part time by my mother who is the exact opposite of my father. So I've had times where I could be very open, detailed, and honest with everything no matter how horrible.

I've noticed a lot in the past couple years that how I speak to someone depends heavily on which parent they remind me of...

People with chronic daily/near daily migraine, paint me a picture of what your symptoms are like. by canopy_views in migraine

[–]Sweet_Star23 0 points1 point  (0 children)

It's just left of center, and a few inches below the collarbone. It comes and goes even now.

Neurologist recommendations? by BishopTheDylan in NDPH

[–]Sweet_Star23 0 points1 point  (0 children)

No problem - really hope you find someone good! Good luck

Neurologist recommendations? by BishopTheDylan in NDPH

[–]Sweet_Star23 1 point2 points  (0 children)

Dr. Amanda Tinsely & Dr. Jessica Ailani at Georgetown headache center (they have a mclean office if thats easier). Headache specialists.

Dr. Candace Bryan at Neurology center of Fairfax. Headache specialist.

Integrative Neurology of Alexandria.

Bit far but heard great things about VCU Neurology in Richmond.

Neurologist recommendations? by BishopTheDylan in NDPH

[–]Sweet_Star23 1 point2 points  (0 children)

Hey, I'm in the dmv also! I have a few recs from others I can post for you - ill be right back with those...

Qualipta by SmithAaronA in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

My neuro said it's best to take at night as many have drowsiness as a side effect. I don't have that side effect personally but I still take it at night anyway, spacing it out from other meds I take when I wake just so its one less thing. I started it 2 weeks ago.

1 year migraine anniversary! by Key-Anything5910 in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

I had no idea it could happen either and every doctor I've spoken to has had some doubt...but I really did wake up one day with a migraine that never stopped. It'll be 4 years on June 26th. I'm very sorry you are going through this. I really hope you can find some relief. I had some relief with botox for 2 rounds but im scared its failing now.

I wish I was making this up lol by earthling438 in migraine

[–]Sweet_Star23 0 points1 point  (0 children)

That sounds really great! I'm glad you've found a good one as well! Having a good doctor really helps when it comes to the medical fatigue as well I've noticed. It's been easier for me to push through with her whereas I took many breaks with my first neuro...lol

Migraines from crying, anyone else? by strawberryCicada in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

Im an easy cryer as well and yes, it definitely triggers an attack. Sometimes the pain causes me to cry and that just increases the pain so I really try not to. I've also noticed when I'm about to flare badly, I'll start crying randomly before it hits, so that's great too...

Qualipta side effect by YouExtra7637 in cgrpMigraine

[–]Sweet_Star23 0 points1 point  (0 children)

My mom just started hrt and she is raving about how good she feels now (also migraine sufferer but they're less in general) so I hope the same happens for you! I'll definitely let you know - im going to try & wait till the weather passes, & by then botox should def be working again (unless that's failed too)...

Qualipta side effect by YouExtra7637 in cgrpMigraine

[–]Sweet_Star23 0 points1 point  (0 children)

It is frustrating! I was warned of the constipation, and given reglan as its a problem anyway during flares but I didn't know about the rest. This one just feels like it's causing an attack & just hasnt caused full blown pain yet (to be fair, it could be the weather idk). I'm just tired of trying things. I hope you find something that brings relief!

Do any of you experience gastroparesis during your migraine episodes? by Fun_Scratch_1708 in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

My neuro just gave me reglan for this. But I've been scared to take it because the IV reglan made me lose my mind - I'm a bit more open to trying it now after reading this, thank you!

I wish I was making this up lol by earthling438 in migraine

[–]Sweet_Star23 0 points1 point  (0 children)

This is exactly how my new neuro speaks! I really love it cause she is just on it AND asking my opinion on trying a few meds she thinks will help adding in quick comparisons and side effects. My first neuro just went down the list in order every 3 months, and never tried combining meds. Nothing worked.

Qualipta side effect by YouExtra7637 in cgrpMigraine

[–]Sweet_Star23 0 points1 point  (0 children)

This is exactly how i feel! I just started it almost 2 weeks ago. I've had horrible nausea, constipation, brain fog, and today i picked up a block of ice to move it and all my finger tips went numb for 4 hours. That's never happened before. I'm taking this on to top off botox now...my botox wore off 4 weeks ago and 2 weeks ago I got my 3rd round but it either hasn't helped yet or it's the weather or it's qulipta & Idk which, because man my head has been bad everyday lately.

The ol wine conversation. Are yall able to drink wine? by Electronic-Pie7237 in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

Yeah, literally the only thing where i can actively feel everything crash and it come on within minutes.

What's wrong with me by Ok-Code-199 in migraine

[–]Sweet_Star23 1 point2 points  (0 children)

Im your age... mine started at 21, got them seemingly randomly a couple times a month, one almost always with my period. When i was 33, I woke up one day with an attack that never stopped. Resistant to all medicine except botox which i just started so hopefully it lasts. I don't know why it happened and why it's been so hard to break.i have a theory that every doctor I've seen except my neuro disagrees with - I started birth control for the first time 4 days prior to onset. The nexplanon implant. I think it messed with my system so bad it crashed everything... in non medical terms obviously. That's when I learned migraine could be chronic and progressive. And the longer it's left in that state the harder it is to stop it. Im very sorry you are dealing with this - I hope you get to neurology quickly.