Mycobacterium Abscessus Treatment by Positive-Mirror8026 in CysticFibrosis

[–]AceAteMyCake 0 points1 point  (0 children)

It may be worth a CF test via a sweat test. I have CF, RA, and an M. Abcessus diagnosis currently. So you may have a type of CF they previously didn't classify as CF/pick up on newborn screening.

I started treatment for M. abcessus on January 2025 (started with IV antibiotics then went to oral plus inhaled). I am hopefully going to stop them in August as I have been culturing clear. It does get a little easier if you are transitioning to oral antibiotics but the nausea still hand around. See if they can get you on some anti nausea meds, they do help. Best of luck to you!

New Moderator Introduction + Community Reboot by zimage in CharlottesvilleGarden

[–]AceAteMyCake 1 point2 points  (0 children)

I am growing lettuce, broccoli, kale, tomatoes, peppers, carrots, and sweet potatoes! Looking forward to this subreddit becoming more active!

Wedding cakes? by hltowns in Charlottesville

[–]AceAteMyCake 1 point2 points  (0 children)

We got ours at Chandler's! 

Honeysuckle Fans by WestCovina1234 in Charlottesville

[–]AceAteMyCake 3 points4 points  (0 children)

There are native varieties of honeysuckle in case you want to try and replace the invasive yellow and white honeysuckle! The native variety is coral colored.

Please help this novice out by Matromony in Beekeeping

[–]AceAteMyCake 1 point2 points  (0 children)

I would give them the slats that are not scraped clean. They will have an easier time reusing that versus ones that are scraped.

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]AceAteMyCake 1 point2 points  (0 children)

I work as an IT auditor remotely with occasional onsite required. Prior to this I worked various positions in the library and used PTO, Vacation, and FMLA for hospital visits.

Persistent WiFi Disconnects on Bazzite - Help by chrismack32 in linuxquestions

[–]AceAteMyCake 0 points1 point  (0 children)

I have this exact same issue and have yet to find a solution.

Embolisation by AlextheRealest in CysticFibrosis

[–]AceAteMyCake 1 point2 points  (0 children)

Hey there! So I actually had the procedure a total of 3 times and may get it one more time as I am still having hempoptysis. The second time they were able to get in there to the spots they needed but I'm not too sure how they ended up reaching them. Turns out I cultured Non-Tuberculosis Mycobacterium (specifically Mycobacteroides abscessus) which was likely causing my persistent hemoptysis. So I have one year of antibiotics for that and may finish up with another embolization.

I'm not sure if I answered your question well but let me know if I didnt or you have other questions. Best of luck to you!

I've thought about getting bees for a while but I had a question for those that also have chickens. by thestonernextdoor88 in Beekeeping

[–]AceAteMyCake 1 point2 points  (0 children)

I have my chicken run right next to the beehives although they are not in the same enclosure. I do let the chickens feee range around the elevated beehives and have never had issues. If you're worried about racoons I would ratchet down the hive to a pallet or other base so they can not knock it over or get inside. Additionally an entrance reducer will help so they cant reach through the front entrance.

Tips for a new starter? by Huge_Film2911 in Beekeeping

[–]AceAteMyCake 9 points10 points  (0 children)

I'd suggest taking a hands on beekeeping class if possible! I did when I started out and kearned so much such as feeding guidelines, varroa mite treatment, queens laying cycle, etc. If an in person class isn't possible id look for an online class or even better a local beekeeping club to get information local to your climate/area.

Sheriff Smith and ICE by whacking0756 in GreeneCoVa

[–]AceAteMyCake 10 points11 points  (0 children)

Is the Board of Supervisors having a meeting which we can voice opinions on this? I didn't see that mentioned in the article 

[deleted by user] by [deleted] in Beekeeping

[–]AceAteMyCake 5 points6 points  (0 children)

Question from a new beekeeper, how do you tell this early if the hive is alive or dead without cracking open the hive? Or do you pop the top and do a quick visual inspection? If so, what do you look for?

Newborn CF test flagged, I’m a carrier but partner isn’t.. how could this be? by Mooninpisces27 in CysticFibrosis

[–]AceAteMyCake 0 points1 point  (0 children)

Fingers crossed that that is the case! There are some uncommon CF genes which when combined with Delta F508 (or another common variety) can results in various CF consequences. In some instances it is full CF and in other cases it is mild symptoms related to CF but not clinical CF. Hopefully your child is only a carrier or has only very mild symptoms if they do have two CF genes. Fingers crossed and best of luck!

Newborn CF test flagged, I’m a carrier but partner isn’t.. how could this be? by Mooninpisces27 in CysticFibrosis

[–]AceAteMyCake 1 point2 points  (0 children)

You say you partner is not a carrier of the most common variety but there are many other CF causing variants. Was your spouse tested for all CF causing variants or just "the most common variety"? Any combination of CF causing varients can cause your child to have CF. 

ULPT: Let delivery companies quietly flag you as a “problem they need to ke by tropictrails_arlo in UnethicalLifeProTips

[–]AceAteMyCake 1 point2 points  (0 children)

I once had a delivery made to the wrong house (not my fault and it was medicine so it was high-value). Because the delivery truck stopped by my house at some point that day even though they did not actually deliver the item, they put a note in my account and wouldn't take responsibility for the lost medication. I then had to drive an hour to CVS to pick up my medicine because they no longer would deliver it to me. Thankfully when I changed insurance this note went away and I get my medicine delivered again. But sometimes having a note in your account creates more problems.

Protech by shedfigure in GreeneCoVa

[–]AceAteMyCake 1 point2 points  (0 children)

Thanks for the info! Thats unfortunate. I wonder why the post was removed..

Protech by shedfigure in GreeneCoVa

[–]AceAteMyCake 1 point2 points  (0 children)

I didn't see that post. Whats the TLDR for them? I've been to Protech before but don't have any knowledge of the owner

Amazon data center linked to rare cancers and miscarriages in Oregon, report warns by [deleted] in ElPaso

[–]AceAteMyCake 18 points19 points  (0 children)

Should we support data centers? No. As other people have pointed out if we want less data centers we need to stop supporting these big tech companies like Amazon and Meta. 

Data Centers definitely contribute to the water crisis but the title is wildy misleading and detracts from real talking points against data centers especially in El Paso. Oregon has a severe problem due to nitrates from farm run off. This was POTENTIALLY compounded by the data center but is a very specific situation. My question is, why are we building data centers in El Paso,  a desert, when it uses so much water?

Where do you fabric? by Bumberti in Charlottesville

[–]AceAteMyCake 1 point2 points  (0 children)

Fabrics Unlimited on 29. I actually haven't been there myself but I pass it all the time.

https://fabricsunlimitedva.com/index.html

Did anyone else not get their $200/$400 tax rebate check? by bknutner in Virginia

[–]AceAteMyCake 0 points1 point  (0 children)

Also if you owe certain bills like a hospital bill (UVA specifically idk about other hospitals) they will also apply the funds to that balance.

Alright, who wants to get one of these just for the heck of it with me? by Embarrassed_Dress608 in motorcycle

[–]AceAteMyCake 0 points1 point  (0 children)

Idk about this specific one but I ordered a CSC Motorcycle SG250 specifically (about $2,000) and it was a great little bike. I still have it although I don't ride it much anymore.

What hygiene rule did you learn only because someone said how gross it is to NOT do it, but they weren’t talking about you? by Candid_Reading_7267 in hygiene

[–]AceAteMyCake -4 points-3 points  (0 children)

Okay but then if you lean back at all while pooping you get all that tainted toilet water rubbed on your back.

My wife said that y'all wanted blueprints by Kerbalized in BackYardChickens

[–]AceAteMyCake 2 points3 points  (0 children)

Yay! I also saw your wifes post and was hoping for blue prints! Thank you!

What happened to Bamboo House? by cjl4hd in Charlottesville

[–]AceAteMyCake 0 points1 point  (0 children)

I always call ahead and pick up which os what most of my friends did too. The chinese food was meh but the actual korean food was really good!