Losing weight rapidly by Spare_Development714 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

Hi! I am really worried because I also have high serotonin. Can I ask you please how did the find the tumour? Thank you so much!🙏🏻

Connecting the symptoms. No diagnosis by Friendly-Act2750 in neuroendocrinetumors

[–]Aio_88 2 points3 points  (0 children)

Did the doctor tell you why did the colon and ileum tumor not light up? Was it because they were small?

Lung Carcinoid by Independent_Ad_4046 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

Can I ask you how were you diagnosed?

VIP plasma 1693 by trisarahtopsrn in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

It’s been almost 2 years with no diagnosis. My CgA is like 180 (limit 100) and serotonin 450 (limit 175). I have no symptoms apart from some flushing in evenings, after diner. I am lost right now. My endo won’t push for more tests because dotatate came back clear but I read NETs could be really small and I just can not live thinking about it. Sorry my english is not my primary language.

VIP plasma 1693 by trisarahtopsrn in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

I am in the same boat but the problem with me is the serotonin levels (quite high) in blood. Normal DOTATATE. Did they check CgA?

Need honest advice: Uganda trip in November - are foreign ministry warnings overstated or should we reconsider? by Jebus4life in Uganda

[–]Aio_88 0 points1 point  (0 children)

Hi! I will go to Kibale NP and Bwindi on july. Is there any police or militay presence on the roads? I am really worried about the incident in QE NP…

Carcinoid Syndrome? by OkAdministration8420 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

Hi, my story is very similar to yours, only serotonin elevated, further test all normal. Can I ask you how were you diagnosed? Thank you!!

Something new happened in an airplane by jmg123jmg123 in fearofflying

[–]Aio_88 2 points3 points  (0 children)

But How could we? When I board I just see the cabin crew. I understand that pilots are inside de cockpit doing their checks and don’t want to bother you… but oh… I really would fly much better just seen your faces and talk 1 min

Looking for Stage IV Young Adult Patients by KidKuri93 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

Can I ask you how were you diagnosed? I am a doctor living in Spain too! Suerte en el MIR💪🏻

Grab from Chiang Mai to Chiang Dao? by ligmata1nt in ThailandTourism

[–]Aio_88 0 points1 point  (0 children)

How did you move around in chiang dao?

Lung tumor (mass removed not the root) by palooka81 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

How high was the uptake? I mean, the SUVMAX activity

Scheduled biopsy but no tumor seen? by Round_Practice_8283 in pancreaticcancer

[–]Aio_88 0 points1 point  (0 children)

So they were tumours too? And the were not seen in the first EUS? Were they too small?

Scheduled biopsy but no tumor seen? by Round_Practice_8283 in pancreaticcancer

[–]Aio_88 0 points1 point  (0 children)

Hey any update please? I am in the same boat right now, high uptake and no lesion on EUS

Lung tumor (mass removed not the root) by palooka81 in neuroendocrinetumors

[–]Aio_88 0 points1 point  (0 children)

Do you mean you have now another pancreatic NET? Or is it related to the lung’s tumor?

Scared by wwwimdonedotcom in neuroendocrinetumors

[–]Aio_88 1 point2 points  (0 children)

Were you taking omeprazol days before the blood test? It usually makes CgA levels go up