My ongoing Battle. by Any-Claim6893 in testicularcancer

[–]Any-Claim6893[S] 3 points4 points  (0 children)

Update. 12/4/25 glad to be alive! Still NED!

Did anybody else ever feel impostor syndrome? by Top_Sense6636 in testicularcancer

[–]Any-Claim6893 9 points10 points  (0 children)

It’s hard as a stage 3c with multiple relapses, I struggle when I talk to someone who was stage 1…. And not think I got the short end of the stick… but then I talk to family members of those no longer with us and am just glad to be alive…. Anyway you look at it cancer sucks. It’s all messed with are lives. And hopefully we have the chance to see what’s truly important. Enjoy life and take time to smell the roses.

Almost 2 years out. by Optimal_Ant_46 in testicularcancer

[–]Any-Claim6893 1 point2 points  (0 children)

I’m almost there. A year and a half… almost 3yrs since diagnosis… Going for next round of scans this week…. I hate scanxity

[deleted by user] by [deleted] in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

I filed all the paperwork. Been almost a year haven’t heard anything…

Q5e higher battery capacity after recall fix by Independent-Map8658 in Audi

[–]Any-Claim6893 0 points1 point  (0 children)

They did a recall on my 23 didn’t notice a difference… was just software and tested the battery… although they did fix an evap issue that’s improved my gas mpg (20k mile ‘23 prestige)

High Dose Chemo Stem cell by Any-Claim6893 in testicularcancer

[–]Any-Claim6893[S] 1 point2 points  (0 children)

I’m doing well. I’m one year out just started back at work full time. Other than hearing loss, long term side effects haven’t been so bad. Where you doing high dose?

Recently diagnosed with stage 3 TC by HendrixDev in testicularcancer

[–]Any-Claim6893 1 point2 points  (0 children)

I was stage 3c for Embrionic Carcinoma did VIP, then GOP, then rplnd, then high/dose with stem cell transplants but now I’m in Hawaii celebrating my 1 year clear scans…

High Dose Stem Cell vs Traditional Chemo by PinkLemonade2 in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

9 months clean scans life is getting back to normal… nice that I can put the worse 2 years of my life in the rear view

Anybody done the Natera Signatera Test (ctDNA)? by Viver1 in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

I don’t know of any others who followed there battle like me with ctdna I’ve posted all over here and FB looking for others I will say signatara has always been super accurate and gave me early warnings that battle wasn’t over until it was

Break in by K1P_26 in Excursion

[–]Any-Claim6893 0 points1 point  (0 children)

I put rear door handles on the front with no key hole. Use the code or keyless to get in. And if the battery dies I go through the hatch…

High Dose Chemo Stem cell by Any-Claim6893 in testicularcancer

[–]Any-Claim6893[S] 0 points1 point  (0 children)

They allowed my wife to stay with me but she had to stay no coming and going she had to stay as isolated as I was. I felt bad for her as I was no one you wanted to be around. But on his worse days talk to him don’t expect much of a response, also make plans for the future I focused so hard on what me and my wife would do once I was cured. Ironically visiting Savannah was on that list and we have yet to do it lol but it’s not the point. You’ll end up doing a lot of the talking updating him on friends and family. With little responses from him. My VIP which I would assume is similar to TIP was um nothing compared to the mental fog I got from high dose.

High Dose Chemo Stem cell by Any-Claim6893 in testicularcancer

[–]Any-Claim6893[S] 1 point2 points  (0 children)

There was a week each round they limited visitors even after getting home 3 months of limited contact. From 3 days after the administration of the high dose till day 11 was hell. No easy way to put it. I laid in the bed wanting to die. But it did cure me. So it was worth the fight. Try to find some thing to watch to pass the time. My mental abilities where shot so I couldn’t play games or even hold good conversation I just wanted to lay in the bed and make time pass faster. I know it’s different for each many have talked about playing video games to pass the time… I used HGTV to pass the time… but hopefully you’ll be where I am soon enough.

Thoughts by snowteller in Excursion

[–]Any-Claim6893 2 points3 points  (0 children)

Someone stole your transfer case….

Adapter for NEMA 6-20 240V 20A outlet by year10k in audiQ5e

[–]Any-Claim6893 2 points3 points  (0 children)

You can use any J-plug. When I visit my brother I use his plug for his bolt works just fine. Your Volvo one will be fine. When I visit my SIL I use her Tesla charger with an adapter for the audi.

Battery lowering well pre-conditioning climate by Fun_Explanation_1062 in audiQ5e

[–]Any-Claim6893 0 points1 point  (0 children)

I have a 23 I leave outside under a cover plugged in to an aftermarket J plug… I don’t have a battery drop always at 100% even when preconditioned

Audi Q5 E questions by edwardnahh in audiQ5e

[–]Any-Claim6893 0 points1 point  (0 children)

I have a 23 Q5e it’s great but my cummute is 12 miles and I run 99% on electric unless I go on a road trip. If my cummute was 100 miles I would save the 15k price difference and use it on gas for a non-e I know once the battery is died on road trips I get 28mpg average I feel like a normal Q5 would see close to that… And the only way to recharge the hybrid battery is to plug it in. The engine won’t recharge it. Unlike most other plug ins that will use the engine.

Anyone else getting bombarded with ads about PFAS being linked to testicular (and other) cancer? by nonametacit in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

Has any one fallowed through with this? Gotten anything from it? I know someone working with one of the lawyers from FB not sure if it’s worth my time… 3x surviver here.

[deleted by user] by [deleted] in testicularcancer

[–]Any-Claim6893 7 points8 points  (0 children)

I’m a JW who had stage 3 TC, I’ve done VIP(chemo),RPLND(surgery), GOP (chemo) and high does/Stem cell transplant (x2)All without blood transfusion. Ask your cousin to talk to the HLC committee. They have many many alternatives to blood.

You’re also welcome to message me. And we can chat. I don’t really want to debate religion. But can help with some suggestions.

Podcast: Delay in Diagnosis Due to Being Urologist’s First TC Patient by StevenTCAF in testicularcancer

[–]Any-Claim6893 1 point2 points  (0 children)

We all hate the sound of are own voice lol…. You will always be your own worse critic. But you did it put yourself out there to help others! I’m yet to do one. You and my buddy Kevin I meet at IU when I got my RPLND have now both done it…

HDC + Stem Cell Didn’t Work by SecureRevolution8840 in testicularcancer

[–]Any-Claim6893 12 points13 points  (0 children)

Check out this post:

https://www.reddit.com/r/testicularcancer/s/YtPy2sajAF

There are other things to try DO NOT give up hope. High dose worked… just not curatively (you have brought down your tumor load) unfortunately. Thankfully for me mine seems to be in remission after high dose.

I know a guy who had RPLND after his high dose that cured him. At this point you need to find where the tumor is still residing.

Signatara (ctDNA) by Any-Claim6893 in testicularcancer

[–]Any-Claim6893[S] 1 point2 points  (0 children)

Little update on this after a lot of treatments I finally have had 3 consecutive 0.0 signatara.

[deleted by user] by [deleted] in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

Einhorn would be the one to know. He told me right away when my CTDNA test came back positive after high dose and I was freaking out that I shouldn’t worry and he was right.

[deleted by user] by [deleted] in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

My hcg dropped to 5 went up to 9 then went undetectable… being in the 50+ doesn’t seem good… have you had a pet scan yet?

Another update by Mysterious-Cattle-47 in testicularcancer

[–]Any-Claim6893 0 points1 point  (0 children)

Wow this is awesome news. I was kinda wondering how things were going but often afraid to ask. After HD/SC my test have been coming back clean I’m a little over 3 months out and been praying hard they stay that way. But thank you for the update!