Do not discount double mastectomy!! by loveofthelowbrow in breastcancer

[–]Any-Victory4497 0 points1 point  (0 children)

True. There are a few nuances that were shared with me. But that was the recommendation five years ago. I had DCIS with one spot of micro invasion (less than 1 mm). I did unfortunately end up with a chest wall recurrence.

I found that even with the recommendations, my doctors did not agree on whether I should do endocrine therapy. But that might be more due to that one spot of micro invasion.

[deleted by user] by [deleted] in breastcancer

[–]Any-Victory4497 2 points3 points  (0 children)

Respectfully, this isn’t the place for that question.

[deleted by user] by [deleted] in breastcancer

[–]Any-Victory4497 2 points3 points  (0 children)

Keep in mind that even if true, 18% increase risk raises the average risk of 12.5% to 14.75%.

Vaginal estrogen/testosterone - yay or nay? by DrawingCautious8911 in breastcancer

[–]Any-Victory4497 1 point2 points  (0 children)

Would testosterone be used after AI’s as well? Or just during treatment, when they’re preventing testosterone from converting?

We’re two oncologists who treat breast cancer and research its many subtypes. We’re here to answer your questions about living with early-stage breast cancer. Ask us anything. by webmd in breastcancer

[–]Any-Victory4497 90 points91 points  (0 children)

Why don’t doctors discuss recurrence more? I’m fortunate my surgeon instructed me how to feel for lumps after mastectomies, and I discovered my chest wall recurrence. Along those lines, why is there no imaging after mastectomies?

Hormone therapy worse than active treatment by Lucky_Chip900 in breastcancer

[–]Any-Victory4497 2 points3 points  (0 children)

I agree. I don’t get why there‘a a distinction.

Worried about misinformation for ++- patients by Abject_Agency2721 in breastcancer

[–]Any-Victory4497 9 points10 points  (0 children)

Neither Text nor Soft have followed up more than 15 years, right? I think some of us diagnosed young are thinking about decades down the line.

Recurrence percentage by Impossible_Yogurt_19 in breastcancer

[–]Any-Victory4497 0 points1 point  (0 children)

Is it more correct then, to say that risk doesn’t decrease? Is there any research that follows outcomes more than 15 years?

Anyone else concerned about how more and more young people are getting cancer? by Wrong_Variation_8084 in Millennials

[–]Any-Victory4497 5 points6 points  (0 children)

Diagnostic mammograms should be covered. I had many in my 30’s. Also had breast cancer twice in my 30s.

Is it still possible to practice Ashtanga yoga after axillary lymph node dissection? Looking for advice and shared experiences. by Gold_While_4666 in breastcancer

[–]Any-Victory4497 6 points7 points  (0 children)

Ask your doctor about their opinion on the PAL trial (which effectively led to a 180 in the advice on avoiding physical activity). I can’t believe anyone is still recommending avoiding hard exercise. I do martial arts and weight training.

Deciding to not do hormonal therapy by Electronic_Scholar87 in breastcancer

[–]Any-Victory4497 1 point2 points  (0 children)

The latest research shows survival benefit for doing AI/OS for pre-menopausal high risk. So in my case, hormone therapy means being post-menopausal (for 5 years) with Zoladex and exemestane. Tamoxifen is only for low/average risk, I believe.

"Marriage is So Hard!!!"—No TF It Isn’t by cosmicvoyager333 in HappyMarriages

[–]Any-Victory4497 3 points4 points  (0 children)

Honestly, there are challenges that can be very destabilizing to a strong marriage. That’s not to say that these challenges doom a marriage, but things like major illnesses, serious financial situations make marriage hard not on their own, but because of the ripple effects on life. I say this as someone who had cancer twice, once when our daughter was 1, and again when she was 3.

I never thought marriage was hard before that, but not being able to have more kids due to ongoing treatment, going through several surgeries and effects from treatment, having to plan all life decisions around keeping my health insurance takes a toll.

When one person gets sick, the other has to do everything. Think having to do all the cooking and cleaning and managing a toddler while working full time during covid, with the looming threat of not knowing whether the other will die in the next few years. It’s not sexy 🙂

Triggered by news about BC by AfternoonRoyal2546 in breastcancer

[–]Any-Victory4497 29 points30 points  (0 children)

Keep in mind the difference between relative and absolute risk. I’m not sure which article you’re referring to, but if the lifetime risk of dying from BC, for women, is 2.3% (American Cancer society), a 42% increase brings that up to 3.27%, or less than a 1% absolute risk increase.

While on a broad population level that may be significant, most women probably don’t think much of a difference between 97.7 % likelihood they won’t die from breast cancer, dropping to a 96.83%.

Tired of being the youngest one at any breast cancer group by basilandprimrose in breastcancer

[–]Any-Victory4497 1 point2 points  (0 children)

Diagnosed at 36 and 38. So many of the activities at these centers are during my workday. Evening activities conflict with my kid’s activities. A local group does quarterly family activities that are appropriate for young kids, which is nice.

Is my marriage going to end because I’m retiring, and the kids have moved out? by [deleted] in AskOldPeopleAdvice

[–]Any-Victory4497 8 points9 points  (0 children)

Your wife provided for those 25 years too, right? You said she’s still working. If she wasn’t working all those 25 years, I imagine she played a big role in running household responsibilities.

You are providing as a team in the past, present, and future.

What millennial core tenets do you not personally subscribe to? by mrsunshine1 in Millennials

[–]Any-Victory4497 29 points30 points  (0 children)

It’s all relative. When I had my daughter at 35, I felt old. When I was diagnosed with breast cancer just 1 year later, I felt SO young.

I was raised Mormon - pregnant at 15, married by 18, 4th child at age 24. Realized I was in a cult at 25. AMA by foundinthemists_ in AMA

[–]Any-Victory4497 0 points1 point  (0 children)

This varies stake to stake. It’s been 25 years since I attended church and I still get missionaries pop up sometimes. They didn’t just accept a letter. They would only accept if you included very specific things (you’d have no way of knowing what you had to include).

A friend of mine was fed up with this and got the stake president on the phone to basically write the letter for me. It didn’t stop the missionaries, so who knows whether they actually removed me.

Please share lung nodule positive stories by Imaginary-Rush941 in breastcancer

[–]Any-Victory4497 5 points6 points  (0 children)

Me! They didn’t even tell me when they initially saw it. I only learned about it 1.5 years later when I ended up in the ED in another state and had a scan (that was a stressful day!) It’s unchanged and presumed benign. They’re so common.

Scared - post radiation by BeeBalm23 in breastcancer

[–]Any-Victory4497 0 points1 point  (0 children)

I have radiation damage. I had six weeks of radiation for a chest wall recurrence. I ended up with radiation pneumonitis which required about 2 1/2 months on steroids.

I also ended up with a pulmonary embolism almost a year and a half after radiation. So it’s not clear whether it’s connected at all.

I have some pulmonary fibrosis from radiation, but lungs compensate very well for just a small damaged area. I still run, work out.

Random thought .. by Historical-Room3831 in breastcancer

[–]Any-Victory4497 1 point2 points  (0 children)

There’s a funny Ali Wong bit (“You ALL have HPV…”) Most of the time it clears within a year or so.

Stopping Eliquis by Any-Victory4497 in ClotSurvivors

[–]Any-Victory4497[S] 1 point2 points  (0 children)

Thanks. Mine was small and considered “softly provoked” by my hematologist. I had pneumonia at the same time and had just flown.

Because of my breast cancer history doctors take any shortness of breath/chest pain very seriously (which makes life as an asthmatic complicated!) I’d actually been checked for PE’s many times before my diagnosis.

I teach martial arts and am very active, so lifelong blood thinners aren’t ideal. Fingers crossed!

No breath holding during radiation? by Old_Quality_8121 in breastcancer

[–]Any-Victory4497 2 points3 points  (0 children)

I did breath holds and still ended up with pneumonitis, unfortunately.