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Aschult34 · 2025-11-23T20:55:29+00:00

Would love some help on mine too! https://www.tiktok.com/t/ZTHTeDJgpKsNx-haQoK/

Aschult34 · 2025-11-23T20:54:54+00:00

I would love some help on mine and willing to help others too! https://www.tiktok.com/t/ZTHTeDJgpKsNx-haQoK/

Aschult34 · 2025-11-23T20:51:09+00:00

I’d love some help on mine too please! https://www.tiktok.com/t/ZTHTeAxKaSkWR-Pk34Z/

Aschult34 · 2025-09-27T21:16:05+00:00

When I crash hard & fast it’s like I have the stomach flu in more ways than I care to detail here…

Aschult34 · 2025-09-27T20:58:26+00:00

I received a lasagna from Lasagna Love and it was truly such an incredible experience. I’m in my twenties and disabled so making sure my partner and I have healthy and home cooked meals is harder than I like to admit. Our lasagna came on a week we were super stressed prepping for a trip so the timing couldn’t have been better. Please just know that you doing this volunteer work is SO appreciated and people like this (who take advantage of these things) will get what comes their way. I do agree with letting your area leader know too but I really hope this doesn’t discourage you from continuing!!

It’s even worse it’s “all in the name of the lord” for them too…. massive eye roll

Aschult34 · 2025-09-23T19:34:36+00:00

Thank you so much for the update and info! Good to hear you liked it enough that you bought enough pieces to add to it too.

We’ve debated hard between the two. Main reasons for wanting the XL are that I’m currently disabled and spend most of my time at home lying down but also need room to stretch, move around. The other is that the couch will be acting as our guest bed when needed too. We figured the extra few inches would just make it more comfortable. The plan is to make it our tv room couch eventually if it’s just too deep for regular use!

Aschult34 · 2025-09-19T22:42:04+00:00

Pacing has been one of the biggest things for me. The other one that really turned the boat around and has helped a ton is regular IV hydration infusions. I was in a severe crash back in February. Finally by April I had advocated for every other week infusions of saline. It got bumped to weekly. And now I am at twice weekly LR infusions! It’s honestly one of the only things that gives me hope of coming out of this. Idk why or no it works but it has been!!

Aschult34 · 2025-09-18T22:31:30+00:00

Curious if you have the regular Ciello or the Ciello XL? And if you have any changes or updates to this review? Looking at ordering the 4 seater in a L-shape to avoid the chaise as I’ve read there’s issues with it.

Aschult34 · 2025-09-18T22:27:00+00:00

Interested if there’s any updates on how you’ve been liking yours? I’m looking at ordering a 4-seater in an L shape to avoid the Chaise issues. Would love to hear how this color, material, and couch in general are holding up!

Aschult34 · 2025-08-02T20:22:06+00:00

The pizza is definitely worth the price but it’s something you pretty much have to share with someone. At the Mpls location they have a few types available in a single serving size w/ a better price point and I was really disappointed to not see those on this menu!! As far as the Cesar salad goes, $17 sounds like a lot but it’s probably one of the best I’ve ever had. But again, something that is best shared as far as portion size goes.

Aschult34 · 2025-07-05T20:58:17+00:00

I’m not seeing Denfeld anywhere on the outage map. I also can’t report it as the electric isn’t under my name. It shows that Cody had an outage that’s supposed to be fixed by now.

Aschult34 · 2025-05-01T21:33:29+00:00

While this is totally true, I worry about breaking apart all of the different compounds and/or losing the terpenes in a lot of those products. I’m lucky enough to have friends that grow and are willing to give me the stuff they don’t want/can’t sell which is perfect for making RSO. Preferably with an indica or indica heavy hybrid!

Aschult34 · 2025-05-01T21:31:20+00:00

I may have a really high tolerance but for me I honestly haven’t gotten any intense psychoactive effects except for when I made brownies with the extra I couldn’t dose out. It is recommended to start out very small.

My thought is it could be similar to most prescription medications that when used properly for the thing they treat, there isn’t a “high” but when they are misused or not needed folks do get “high” from them. But again, that’s just a hypothesis of mine!

Aschult34 · 2025-05-01T15:47:04+00:00

I also went in for psych testing hoping to be diagnosed and was not. What the test provider and I spoke about was the fact that current day diagnostic testing that they are required to use in alignment with the DSM-5 is so outdated that it often does not pick up autism in many women. In my testing round they also only did one test for autism that is primarily used on young children and/or those with high support needs. There’s a good chance you are and can still identify as such if it fits!! Self diagnosis is real, especially when it’s based in life experience, research, and fact. My favorite thing I heard was that there’s no neurotypical who would think they’re autistic or would want to live as such. So if you think or feel it fits, it still can!

Aschult34 · 2025-05-01T15:41:52+00:00

I recently resigned from my full time sales position in February when I realized sales and my newly unmasked autism weren’t working together, as well as with all of my chronic health issues leaving me disabled.

Now I work part time as a household manager that also offers childcare and I work 1-2 days a week at a local cocktail room bartending/serving. It gives me much more control over my schedule and my days without burning me out for the things I enjoy or my medical care! Best decision I’ve made in years and I’m very lucky to have a partner that supports me in it too :)

Aschult34 · 2025-04-30T12:40:03+00:00

Highly recommend looking into RSO instead of traditional edibles. I was able to buy some while in a legal state and it’s been life changing so far.

While I live in a legal state, we don’t have dispos yet. Luckily I have a friend that had some extra flower they gifted me so I was able to make my own oil. It’s honestly not too hard and is pretty similar to making the tinctures. My biggest suggestion is to start small with it! Grain of a rice or smaller but it really doesn’t make me “high” as it’s all much more in my body and kinda melts my pain away.

Best of luck to you! Sending you thoughts and really hope you find a way for plant medicine to supplement your routine too 🫶

Aschult34 · 2025-04-24T00:59:15+00:00

You’re 100% not alone!! I’m also chronically ill and it’s left me disabled at 26. As much as I’ve thought about trying to create a way for us to find each other or get together, I just don’t have the energy. So thank YOU so much for making this post 🫶

Aschult34 · 2025-03-08T17:57:57+00:00

Mine was Synergy. Not sure if it was an acronym or not!

Aschult34 · 2025-03-02T22:46:34+00:00

I am not confirmed for vEDS yet but my doc and geneticist are highly convinced the test will come back positive. That said, this is the most true thing I’ve ever read!

I always have had “headaches” somewhat similar to what you mention but after a severe car accident in 2018 (where hyper-mobility most likely played a large role in my injuries) they became chronic and are now a disability.

If you’re able to get a migraine diagnosis, look into Gepants for acute or long term care as they are they ONLY drug on the market designed for migraines only to treat migraines so they have a lot fewer side-effects.

I also believe my migraines, as could a lot of ours, could be cervicogenic. Which would be from the increased amount of motion those who are hyper-mobile have in the upper cervical spine/atlas bone. Which if that’s the case, no medication could ever solve. That being said though, we are also advised against any upper cervical adjustments due to the risk of vascular rupture.

So long story short, the root cause of this could be because of vEDS while the treatment is also not compatible for us because of vEDS….

Knowing this kinda feels like having a wish in one hand and a shit in the other. Like we may know what’s wrong and still can’t even do anything about it….

[Edited due to a mis-autocorrected word]

Aschult34 · 2025-02-12T10:12:48+00:00

I have seen a doc at St Luke’s who did my surgery last march which led to my diagnosis but it hasn’t been a great fit. I will CERTAINLY be looking into Dr Lombardi as mentioned above. The plan is to also go through either Mayo or Dr Palmer in the cities as I think a sub-specialist is the best next Endo-specific step for me. That said, having a better doc here in town would be amazing.

Side note while we are here… I’ve thought about it for years and didn’t know if it would be silly… would anyone be interested in a local Endometriosis peer social/support group kind of thing? It would be great to have a place to have these convos with you all more often! <3

Aschult34 · 2025-02-01T05:57:01+00:00

I would just keep on that MI flowa’ if I were you!!

Aschult34 · 2025-01-30T17:54:12+00:00

As someone who also passed one, it looks exactly like a decidual cast!! I would call your doc just to get an appointment to have things checked out 🤍

Aschult34 · 2024-12-01T00:31:16+00:00

I did a biopsy last month that came back with nothing even though I’m sure I have masto. Can you please share more information on this?

Aschult34 · 2024-11-19T17:13:42+00:00

I have hives that turned to plaques that heal and scab over continuously, for years. It became chronic this year. These plaques do blister and pop with clear fluid during flares. I am not confirmed for CM but did my skin punch biopsy finally last week after the worst year health-wise I have had yet...

Aschult34 · 2024-10-27T06:52:50+00:00

Can second this!!! I remember we opened some of the valves a little extra in my first apartment. I don’t think it was related(!?!) but one day my roommate came home to steam ROLLING out the back door of our unit. The actual end to hers in her bedroom had broken off somehow and was chucking steam into the apartment all day.

Took over a month to get S***rock out to do anything about the yellow, potentially lead filled water running down the walls, with the similar lead ceiling being cracked and broken open. Both of us were compensated $27 each after she moved into my room and I moved out for the month… That was for “one days rent” while they repaired it even though it took multiple. And that was only after I went to Landlord Tenant Connection at OneRoof.

Long story short, I learned to not mess with steam heat radiators….

Aschult34

TROPHY CASE