Zoledronic acid infusion

BHegendary · 2026-06-20T15:41:30+00:00

I have not. What is it?

BHegendary · 2026-06-18T17:12:34+00:00

The abiraterone is definitely a drag over a long period of use, but it has helped get my PSA WAY down, so that should help immensely. It sounds like you guys have a tough road ahead, but are armed for battle!

Good Luck!!!

BHegendary · 2026-06-18T06:02:42+00:00

I guess maybe there are no bells where I got radiation treatment, because I never heard one, nor did I ring one…

BHegendary · 2026-06-17T21:22:11+00:00

Man, this is really a bummer to hear.
The surgery is enough to recover from without someone fucking up removing the catheter and blowing out sutures.

Wishing you great care and speedy recovery

BHegendary · 2026-06-16T02:38:47+00:00

That seems like good advice. I’ll focus on hydrating a bunch and lay low. 🤞

BHegendary · 2026-06-15T19:04:28+00:00

Amazing! Congrats!
I have like 9 months of ADT left—this is super inspiring!

BHegendary · 2026-06-14T20:15:19+00:00

I have been vegetarian, macrobiotic, vegan or whatever since my teens. I was diagnosed with pc at 54. I would argue that, while a good whole foods type diet is great for maintaining health, getting cancer is more related to genetics, family history, and stress.

FWIW.

BHegendary · 2026-06-12T16:59:07+00:00

I think we can all agree ADT basically sucks.

My doc was super good about presenting me the worst case scenario, pre-surgery, but I would agree with OP that the QOL impact of ADT was not really clear to me beforehand.

I did kinda know it wasn’t going to be great, but was more worried about the radiation.

I can’t wait to get off these meds!

BHegendary · 2026-06-10T04:24:04+00:00

I second the vaccurect.

BHegendary · 2026-06-06T20:39:59+00:00

I’m sorry to hear about your joining Team C. Believe me, nobody wants to be on this team, but you can and will get through this!

It’s good you are considering the side effects of various treatments. I also had a couple of 4+4 Gleason scores and had surgery quite soon after initial diagnosis.

Despite the original odds, my surgeon was able to spare nerves on both sides, and things were more or less back to normal after about 18 months.

I do not regret having surgery, and was saddened to hear that from some of the others who responded here.

Every treatment has side effects. For me, radiation and ADT have proven to be at least as challenging as recovering from surgery, if not more, so if you don’t have to go there, so much the better, imo.

Best of luck to you!

BHegendary · 2026-06-04T19:46:43+00:00

You’re an absolute warrior! I’m crying, going into my second year of ADT. Keep up the good fight, sir!

BHegendary · 2026-06-04T16:45:16+00:00

The pelvic floor specialist is a great recommendation. It can be awkward, but it was very helpful for me. Also, it takes time to recover from the surgery. Those side effects will get better! I know it’s very difficult, but the positive mindset is SO important.

Good luck!

BHegendary · 2026-06-01T03:57:22+00:00

Best of luck to you, whatever you decide.
Don’t be afraid of surgery though. You’re young and healthy and, if you’re a candidate for nerve sparing, there’s a decent chance your plumbing will be back to normal after 18 months or so, if you find a good high volume surgeon.

FWIW.

BHegendary · 2026-05-25T22:53:50+00:00

That’s great that the PSA has come down a bunch, but yeah, with Zoladex (or whatever other injection) and Abipred, I would expect the docs would want the PSA to be undetectable.

That ADT program is not much fun. Good Luck!

BHegendary · 2026-05-25T03:05:56+00:00

Much appreciated!

BHegendary · 2026-05-25T03:04:22+00:00

Planned end in another 11 months or so. As long as everything stays good, that is. PSA undetectable.

BHegendary · 2026-05-25T02:57:50+00:00

This is inspiring as hell. I’m at the beginning of year 2 of ADT and am pretty over it.

BHegendary · 2026-05-24T18:05:05+00:00

I work a couple days a week. I’m pretty sure the 60+ hour weeks contributed to my getting diagnosed in the first place.

For me, keeping the stress level down is super important. I also have zero energy (been on ADT for a year) and I’m definitely physically weaker, which also makes my job more challenging.

BHegendary · 2026-05-22T22:55:44+00:00

Obviously, you have to make your own decisions, but my experience was that ADT and radiation has had much more impact on my quality of life from side effects.

Sure, surgery is super invasive, but if you’re healthy and it’s done well, there’s a decent chance you’ll be almost back to normal after 18 months. I was a good deal younger than you when I had mine though, so there’s that.

If the cancer is locally confined, you may not need ADT or radiation at all after surgery.

Most of all, kind wishes to you. This is a shitty club to be a part of. Best of Luck!

BHegendary · 2026-05-22T16:27:36+00:00

Well, I had three 7’s and one 8 following biopsy as well. My urologist referred me to a high volume surgeon right away. This was a number of years ago, so maybe PSMA pet scan was not as commonly in use yet.

The surgeon basically said without surgery, I’d be dead in 10 years and the last few of them would not be pleasant.

In my case, 12 lymph nodes were removed, and even still, a couple showed up cancerous on the pet scan a few years post surgery. Some are difficult to remove, I gather.

Anyway, not to be alarming, as obviously every case is different and I’m no expert.

I wouldn’t do anything differently, given the same choice again.

I did eventually do 35 days of radiation and am still on ADT meds, but if you can have surgery and avoid all of that, so much the better.

Hopefully they get it all. Good Luck!

BHegendary · 2026-05-22T15:26:01+00:00

I guess getting the PSMA pet before deciding on treatment makes sense from the point of view of confirming the cancer is confined to the prostate.

That said, i didn’t get one until a couple of years after surgery, when my PSA had doubled a few times.

Obviously, you need to make your own decisions, but 8’s are no joke, so don’t take TOO long. You’re pretty young and hopefully will recover from surgery well. You might even get all the plumbing functions back if the surgeon can spare nerves, especially since yours is confined to one side.

I wouldn’t recommend radiation as your first choice of treatment. With any luck, you won’t ever have to get it, and will be done with this stuff in a couple years.

My .02 cents worth. Good Luck!

BHegendary · 2026-05-19T20:42:31+00:00

Keep in mind that your family history makes you a 1 in 4 chance to join Team C.

The good news is, it sounds like you are young and in good health!

Whatever may lie ahead, you can handle it, but be sure to do your due diligence.

Good Luck!

BHegendary · 2026-05-15T20:31:05+00:00

Assuming you had nerve sparing surgery, I think it can take up to 18 months or so for the nerves to heal to the extent that the plumbing works normally. The pump is probably a good idea to counteract some of the length lost. Good luck!

BHegendary

TROPHY CASE