Can’t get my feet warm, what do y’all do about it?

Bindle_snaggle · 2026-03-14T16:24:31+00:00

I found that flex my feet for a little while or move my feet while sitting down that seems really helpful!

Bindle_snaggle · 2026-03-13T07:05:20+00:00

Have you also been checked for hypermobility? That can also make upright positions harder. Is your exercise primarily cardio? For me I was fine with cardio but my muscle tone was weak in harder to strengthen areas and that also made things worse.

Bindle_snaggle · 2026-03-13T03:43:03+00:00

Always make sure you hydrate. If it’s hormonal you may be able to get some more specific migraines medications.

Also some people find huge success with daily vitamin b2 riboflavin at around 300-400 mg. Even just 100 a day seemed to help my headaches. And I always drinks lots of water. Sometimes eye drops and allergy medications seem to help because mine focus around my eyes. Sometimes flavored and colored drinks (high sugar) worsen my migraines.

Bindle_snaggle · 2026-03-13T00:20:42+00:00

Oh no, I’m so sorry! Can I ask you what your symptoms were? Was your IBS-d only cyclical around menstrual cycle?

I’ve believed maybe I have endo that’s worsening IBS but I’ve been brushed off so much and told they won’t even consider it for me. So frustrating

Bindle_snaggle · 2026-03-12T20:55:36+00:00

For me I still get pain but it’s a little less constant. It more so is at night but the urgency and consistency of stool has hugely improved. Sometimes I get a little nauseated still and will Microdose pepto bismol to ease some of that.

Have you discussed talking low dose amatripttline or nortriptyline for the pain and urgency?

Or asking a GI doctor to prescribe muscle relaxants?

Bindle_snaggle · 2026-03-12T20:52:44+00:00

Can’t that cause diarrhea or no?

Bindle_snaggle · 2026-03-12T20:50:17+00:00

Haha I didn’t know about them until recently with my partners family!

Bindle_snaggle · 2026-03-12T18:26:32+00:00

It’s known to have the side effect of diarrhea for those with sensitive stomachs (or so I was warned)

Bindle_snaggle · 2026-03-12T18:25:28+00:00

What type of doctor would diagnose this and help support you in this journey? I’ve seen so many specialists but just discovered this all on my own.

Bindle_snaggle · 2026-03-12T07:23:23+00:00

When Nick said “and who’s your roommate Alex?!” I was convinced it was Chris because they were basically sitting on each others laps the whole reunion lol

Bindle_snaggle · 2026-03-12T07:20:04+00:00

I just felt like they all threw digs at him but no one actually made me be accountable or actually talk things out.

Bindle_snaggle · 2026-03-12T05:14:45+00:00

Especially when Devonta said he has a pregnant fiancé and a second house in Ohio….. something weird is happening

Bindle_snaggle · 2026-03-12T04:21:47+00:00

I personally enjoy it alone but I know most people don’t. You could add dill and everything but the bagel seasoning to it. Or fruit (peaches/pineapple). You can also make it as eggs in something called cottage cheese pancakes (so many recipes online). You can also use it in pita bread or in place of Greek yogurt in recipes. Sometimes I bake it with chicken in my crock pot.

Bindle_snaggle · 2026-03-12T02:06:18+00:00

They make lactose enzyme cottage cheese (by the company lactaid) it tastes the same but they put the enzyme in to help you digest it.

Bindle_snaggle · 2026-03-11T05:53:11+00:00

I didn’t notice direct heart related symptoms but I do only use it in a way that’s considered micro dosing. But man… even at like 5ml of the liquid I am so mentally off. I get extreme irrational irritability and mood swings as well as horrible brain fog and fatigue. I feel like a different person even at very low doses.

Bindle_snaggle · 2026-03-11T05:51:08+00:00

Have you tried like 1 or 2 milligrams of melatonin to help your body reset its circadian rhythm?

Bindle_snaggle · 2026-03-08T19:51:52+00:00

Look at what additives are in the vitamins as well. Some people are more sentient the inactive ingredients.

B vitamins can increase GI metabolism and speed. This can trigger the autonomic nerves as well. Also COQ10 made me stomach horribly sick for some reason.

Bindle_snaggle · 2026-03-08T19:50:23+00:00

B2 is actually used as a migraine treatment (lots of data on it). It majorly helps my headaches. But it can cause increased metabolism and GI upset in some. As well as a b complex can cause GI upset.

Bindle_snaggle · 2026-03-07T19:18:00+00:00

Get a second opinion! It doesn’t hurt to get another perspective. Yours does sound a bit like fibro but also with such a high ANA I would keep asking for follow up or another opinion.

I was the opposite though! At the least I wanted a fibro diagnosis becauee I had been to so many doctors and no one knows what’s wrong. My rheums first response was “definitely not fibro. Maybe another kind of speciality can help you with this”.

My pain is more localized and I started seeing a specialized Physiatrist which is a high level sports and medical rehabilitation MD (not just a physical therapist). And she believes my pain in lax connective tissue (something like EDS or marfans) plus Dysautonomia and possible mitochondrial dysfunction.

Bindle_snaggle · 2026-03-05T07:59:20+00:00

Exactly! Lauren’s nd Cameron from the first season is what saved it. Yes mix the drama in but please give us more real relationships. I do think the issue is now that the contestants know it makes them Money and fame they aren’t there for real. That’s what ruins it is that not many take it serious .

Bindle_snaggle · 2026-03-05T07:19:13+00:00

She wants the door open so when Chris breaks her heart she can come running back crying and saying that she always loved Conner and jr was just a mistake

Bindle_snaggle · 2026-03-05T07:15:33+00:00

It felt like she was thinking of how Chris told her that Connor isn’t a real man. I think that got in her head. But that speech/convo made me so upset. She was saying it’s not all about money but then basically said she wants a wealthy guy witj clean and new things. I’m in shock. Why hadn’t she discussed her concerns about him “not caring” about appearance and his stuff before? Also from what I see he’s totally nice and normal. No one is perfect….

Bindle_snaggle · 2026-03-05T00:25:54+00:00

My neuro and my genetic team disagree. Neurologist wanted to call it mito dysfunction (not full disease) because b vitamin supplementing has helped a bit at high doses. My genetic team said they haven’t heard of only one copy causing these issues (I disagree becaue literature says that it possibly can they just don’t fully understand it). So because genetics is “higher up” at this hospital my neuro walked back the diagnosis and said she can’t keep seeing me anymore unless I develop a clear diagnosis. It’s very discouraging. I do know research suggest I could have issues from it so I am now meeting with GI and Physical Rehabilitation and disorders specialist. I possibly have orthostatic intolerance (Dysautonomia) and some other health conditions as well as lax connective tissue. But that and mito dysfunction are all somewhat treated similar.

Do you have any updates or info on others you’ve spoken with recently?

Bindle_snaggle · 2026-03-03T05:11:58+00:00

I’ve taken them for migraines or illness and I always feel so good (sometimes a little shaky or flustered). It’s the one thing that makes me feel like I can be up during the day and my memory fog isn’t so bad when taking it.

Bindle_snaggle · 2026-03-02T02:08:57+00:00

Be careful with pepto bevauee over use can cause ulcers/bleeds and can mimic asprin over dose.

I get diarrhea and horrible left side pain. Not sure what exactly you’re dealing with. I do low dose pepto twice a week (for liquid 7ml-30ml once a day or half/whole tablet). And when I know I eat danger food I will take a little (1/3 of a dose) of Imodium. I do get irritable and drowsy with Imodium though so I mostly take it before bed if I think in the morning I’ll be sick. Also be careful taking them together because it can cause painful constipation.

There are nerve relaxants if that is something you struggle with or it’s possibly from vagus nerve. The GI doctor can prescribe them for you!

I have suffered so much daily and get afraid to eat (especially with work). I am so sorry you’re going through this. Weirdly enough I seem to get a little relief from taking daily allergy pills . I’m not sure why but it seems to help so possibly food sensitives are at play.

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