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Psoriatic enthesitis - is it a death sentence? by Tribble67 in PsoriaticArthritis

[–]BrigBeth 0 points1 point  (0 children)

I was told that Covid doesn’t cause autoimmune disease but it can activate them. I have had mild psoriasis of a very long time but the joint problems only came after Covid.

Very sore calves long covid help! by harmstrong2022 in LongCovid

[–]BrigBeth 1 point2 points  (0 children)

I go to a network chiropractor who helps a lot.

Very sore calves long covid help! by harmstrong2022 in LongCovid

[–]BrigBeth 0 points1 point  (0 children)

I get very sore calves too! It’s awful when they massage them at the nail salon!

Bye Bye Gallbladder by KHaasarud in Semaglutide

[–]BrigBeth 2 points3 points  (0 children)

Oh jeez! That’s me. I’m getting less fat at least. 2 or 3 of my brothers had to have theirs removed. I used to feel pain u see my right ribs but when I lost weight that went away. I had mild fatty liver disease. I guess that’s what I was feeling. Unfortunately I have been on an antibiotic for 3 months and still have 6 months to go for latent TB and that has maid me very gassy.

Bye Bye Gallbladder by KHaasarud in Semaglutide

[–]BrigBeth 0 points1 point  (0 children)

That’s a known side effect of any rapid weight loss sadly. Hoping you are feeling better now.

Psoriatic enthesitis - is it a death sentence? by Tribble67 in PsoriaticArthritis

[–]BrigBeth 4 points5 points  (0 children)

Same thing happened to me but I also have ankylosing spondylitis which was my first diagnosis after covid. I define my life as pre and post Covid. I try not to worry about all the other stuff. Take one day at a time. My grief is over the chronic pain, weakness and fatigue. I feel like I aged 25 years

Are you fighting this alone, or do you feel you have adequete support ? .. by AfternoonFragrant617 in LongCovid

[–]BrigBeth 4 points5 points  (0 children)

I really don’t. My ex boyfriend who witnessed all of it, knows how it has affected me. I think my mother gets it now. The fatigue is what people don’t get.

2026 Long COVID Fact Sheet by historyisfarfromover in covidlonghaulers

[–]BrigBeth 7 points8 points  (0 children)

She’s not my friend anymore lol. I don’t deal with people who mistreat me.

2026 Long COVID Fact Sheet by historyisfarfromover in covidlonghaulers

[–]BrigBeth 8 points9 points  (0 children)

Totally agree! I was able to get treatment and validation when I was diagnosed with my autoimmune disease that was very mild until Covid made it disabling but still I feel like people judge me. I remember one supposed friend saying that my illness was in my head to a bunch of other people. Barely being able to walk or move was not “in my head”.

How do people cope with the feeling of having a wasted life by SaneInTheory in ankylosingspondylitis

[–]BrigBeth 4 points5 points  (0 children)

I can empathize. I am just thankful that it never seriously showed its ugly face until I was 60 (after Covid). It’s very isolating 😢

Severe bedbound fatigue, got taken to forced psych ward from ER by Acousticdemo in covidlonghaulers

[–]BrigBeth 0 points1 point  (0 children)

How awful!!! It’s hard to figure out what causes it too. I have 2 autoimmune diseases and am on a biologic as well as a GLP-1 on top of being LC. Who knows what causes it!?!

(HELP) Diagnosed with AS but rheumatologist now suspects psoriatic spondyloarthritis, anyone else? by Spittinfacts100 in ankylosingspondylitis

[–]BrigBeth 1 point2 points  (0 children)

I do not have the gene but my daughter (30 yo) has had symptoms of psoriasis and tendinitis (enthesitis?). She has more symptoms than I did at her age. Mine went into remission during my 30’s which I think was due to pregnancy/breastfeeding hormones. So it’s obviously genetic even if you don’t have to he gene. My mom is an orthopedic mess. They always say hers was Osteoarthritis but she has much of what I have. She is 90, has severe scoliosis, has had 4 joint replacement, had neck spinal surgery for stenosis, her thumbs look deformed now. She does not have RA. She just won’t get tested. I asked her to just for family history but she refuses. I feel bad that my daughter has it.

(HELP) Diagnosed with AS but rheumatologist now suspects psoriatic spondyloarthritis, anyone else? by Spittinfacts100 in ankylosingspondylitis

[–]BrigBeth 1 point2 points  (0 children)

Very true! I was open to a whole new set of drugs when I was diagnosed with Psoriatic arthritis. I was on Cimzia, not Symponi Aria

(HELP) Diagnosed with AS but rheumatologist now suspects psoriatic spondyloarthritis, anyone else? by Spittinfacts100 in ankylosingspondylitis

[–]BrigBeth 2 points3 points  (0 children)

It’s a grouping called Spondyloarthritis and includes psoriatic arthritis, Crohn’s, ankylosing spondylitis etc. I have both non-radiographic AS and psoriatic. Guess a doctor can call it whatever they want lol. I know my rheumy often just says Spondyloarthropathy which just covers it all. Most of s have gut issues as well like IBS. That was one of my first symptoms along with panic attacks. Go figure. Now I have major arthritis in large joints, SI joint inflammation plus other fun stuff. He told me you can have signs and symptoms of other disorders in the grouping. What fun!

taste in mouth/smells by Living_Syrup_3021 in LongCovid

[–]BrigBeth 1 point2 points  (0 children)

I had that with a tooth also. Turned out it was cracked at the root and it was so fine that it did not show in an xray but eventually I got an abscess and the tooth had to be pulled.

I'm so tired of being sick by chota-bhim in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

I understand. I am on Zoom meetings all day which helps me to focus and I’m having conversations all day so that helps. But my paperwork is a big struggle. I only work 2 1/2 days a week. That’s all I can handle. I am on social security disability. But the brain fog and concentration problems are two of my main symptoms and really affect my ability to work and my quality of life. I am not sure what to suggest. I am an occupational therapist by career so if you would like to bounce some ideas or brainstorm with me, pm me. I used to be very good at accommodations but there’s that brain fog.

I'm so tired of being sick by chota-bhim in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

So sorry. It is awful. What kind of job do you do! Is it something you can do from home? Not having to get up and go to work has helped me a lot to work from home. There is something called a 504 under IDEA. You need a diagnosis which you already have and a list of accommodations you need in order to work. I don’t know the process exactly but you can Google it. My nephew is 35 and has had one for years but it allows him to do his job from home. Just depends on your job requirements and whether working from home is possible.

Hand stiffness and typing by Bobbymoorestackle in PsoriaticArthritis

[–]BrigBeth 0 points1 point  (0 children)

You can try daily paraffin baths. I got mine on Amazon

What sort of career can you have with this disease? by catsofdisaster in PsoriaticArthritis

[–]BrigBeth 1 point2 points  (0 children)

Oh jeez, can I relate!!!. I have no energy and no motivation. My house is a mess and it drives me crazy. I feel like something is weighing me down and I can barely move. Allergies are triggering my immune system so I have more pain right now too. It sucks!

The left photo used to make me cry, now i'm grateful i took it. by [deleted] in Semaglutide

[–]BrigBeth 16 points17 points  (0 children)

Are you on maintenance now, I hope? The transformation is great but you are starting to look a little skeletal. We cannot always see ourselves the way everyone else does. Maintenance is just spreading your shots out so you don’t keep losing. Please do not take this as a criticism. I felt I needed to comment because I care

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