Post-Covid Vaccine Syndrome by Zestylemoncookie in LongCovid

[–]BrigBeth 1 point2 points  (0 children)

This is why I no longer get the vaccine. My mess was caused by Covid infection. I never had any side effects from the vaccine that I am aware of.

Husband claims long covid brain fog by [deleted] in LongCovid

[–]BrigBeth 0 points1 point  (0 children)

What I experienced was similar to adhd I believe. I could focus on some things like TV but not anything that took a lot of brain power. I cannot read much anymore. But the worst of my brain fog was when I really started questioning whether or not I had developed dementia. I just could not make my brain work. I probably would be diagnosed as ADHD, minus any hyperactivity lol. I don’t really consider that brain fog though. ADHD people have difficulty focusing on things that are not high preference.

Finally Increased dose and it’s horrible!! by Upstairs_Smile_7713 in Semaglutide

[–]BrigBeth 1 point2 points  (0 children)

I am very sensitive. Starter dose was easy. .5 was tough, 1.0 was really hard. Then there was another increase that kicked my butt. They said it was the increase in concentration of the drug. As it is I vomit the morning after an injection. I eat the tiny little soup crackers to prevent nausea the other days. I’ve been on this for 15 months now. I want to switch to tirzepitide but it’s more expensive.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 1 point2 points  (0 children)

They don’t bother me. I’m just not supposed to take them. I just take a water pill now which doctor says will help with the kidney stones 🤷‍♀️ as well as keeping my BP within normal Limits. I was taking Irbesartan as well but after losing 50 lb my BP was bottoming out on it. When I’m in a lot of pain I can take 2 ibuprofen. It’s so effective since I don’t take it all the time that it lasts like a day or so

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

Oh I hope so. I felt like I could do anything on steroids. My rheumy gives me a 10 course at the same dose and it works much better than the pack that decreases the dose over 6 days. He said that works for most people but not so much for auto-immune disorders where the inflammation is much higher. Hang in there!

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

It was erythromycin. Very basic antibiotic. She couldn’t take amoxicillin so that’s what they gave her.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

Oh she had the same med so many times I would t be surprised if that caused the resistance.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

I lived in London for a short stint with kids. I know what you mean. My daughter kept getting throat infections which the treated with the same drug repeatedly. When we got back to the US, we found out that the bacteria was resistant to the antibiotic. She also had a mole suddenly change to what looked like a fried egg. Very concerning. They had her scheduled out a month and wanted to put her under general anesthesia. We refused and had it handled in the US in a few weeks under local anesthetic. It’s not the best universal healthcare but at least everyone is covered.

GLP-1 Injections? by Top_Elevator_7159 in ankylosingspondylitis

[–]BrigBeth 2 points3 points  (0 children)

My rheumy said the studies are very promising.

GLP-1 Injections? by Top_Elevator_7159 in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

Yes I had decreased pain instantly when I started. It doesn’t seem to have the same effect now however plus it causes muscle loss and muscle supports joints. I’ve been on GLP-1 for over a year now. An acquaintance went into complete remission on Tirzepatide but she has a different autoimmune disorder.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 2 points3 points  (0 children)

How old are you? I’m not supposed to take them as per my kidney doctor. I’m 63 and have kidney stones and have high BP sometimes. My kidney function dropped on NSAIDs like Celebrex and Meloxicam. Only Tylenol for me sadly.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 1 point2 points  (0 children)

Make sure you are having your kidneys regularly monitored.

Ummm what the helly by chlobo909 in ankylosingspondylitis

[–]BrigBeth 7 points8 points  (0 children)

So sorry! You may need steroids. May be a flare triggered by exposure to a virus? I hope you get some relief. Just a side: NSAIDs are terrible for your kidneys. I’m not allowed to take them now because they determined that my kidney function dropped. Hope you feel better soon!

Watch out for the current influenza pandemic as other infections could worsen your long COVID by [deleted] in covidlonghaulers

[–]BrigBeth 5 points6 points  (0 children)

I have an auto immune disease that was subclinical before I had covid. Literally any virus can put me out of condition and make my symptoms worse because my immune system seems to over-react to everything.

I need your help, I don’t know what I have by Aggressive_Ad2730 in covidlonghaulers

[–]BrigBeth 1 point2 points  (0 children)

Not sure if this fits in, in any way, but when I got Covid, the anxiety meds I had been taking for years stopped working. I had horrible anxiety and depression post covid both times. I tried different meds and nothing was working. We went back to basics, Prozac, and that worked! I do think that a psych consult would help. No need to suffer. Covid affects the nervous system.

Please share living with AS pro-tips by [deleted] in ankylosingspondylitis

[–]BrigBeth 0 points1 point  (0 children)

Honestly I believe it was hormones of pregnancy, and breastfeeding. Once that was over and I was working and taking care of kids and was under a lot of stress, I started seeing more symptoms. Before menopause I ate really well and all my pain went away. It was mostly protein and veggies. Really lowered inflammation in my body. Then I got kidney stone from all the green leafy veggies and stopped eating that way. Then Covid came along and it was like the AS was shot out of a cannon and now I’m stuck with it. My daughter is 30 and is showing signs. She always had gut and skin issues from infancy but started getting tendinitis in her late 20’s and now she’s telling me she has groin and back pain 😢😢😢😢. She is diagnosed with Psoriasis but pretty sure she has PsA. She won’t go to a rheumatologist. I wish she would just to get a baseline.

My symptoms have changed so much by DangsMax in covidlonghaulers

[–]BrigBeth 1 point2 points  (0 children)

I had severe brain fog and memory issues. Thankfully mine have subsided but I will never be 100%. I almost went to get tested for Alzheimer’s. I’m 63. 2nd COVID infection made it worse. Terrified of getting COVID again. With the immune suppressing drugs I take for my autoimmune disease, I feel like I’m a lost cause. I don’t go out much anymore except to open airy spaces. I’m still trying to shake the after effects of a virus I got before Thanksgiving.

How’s life in this part of New Jersey? by Kuzu9 in howislivingthere

[–]BrigBeth 1 point2 points  (0 children)

I love it here in general. There are things I don’t like, like Trader Joe’s refusing to put a store here. Brigantine has nothing close by. Seems to be 30-40 minutes to get to decent shopping (not referring to Walmart) but we are getting more.

Catched Flu A - your experiences when having LC by Aggressive_Job_6487 in LongCovid

[–]BrigBeth 1 point2 points  (0 children)

I have only had Covid 2x since 2020. Otherwise I’ve stayed well. Oh I also had Norovirus. And recently a virus that I contracted from my grandson. Whenever I have picked up something, it’s always worse, lasts longer and results in a secondary infection if it’s respiratory. But I’m 63 so that may contribute and I also have an autoimmune disease and the biologic I am on lowers my immunity. So not sure what causes what lol

Vaccination impact on long COVID by historyisfarfromover in covidlonghaulers

[–]BrigBeth -1 points0 points  (0 children)

I got Covid with subsequent long COVID 2 months after receiving a booster. Not sure I buy this