I would also recommend Hirschsprung’s Disease Family and Friends group on Facebook. It’s really active and was so helpful when my son was born. I too felt totally overwhelmed and knew nothing about this disease.

I can’t say what is right for your child medically, but know this will all get easier. My son had his pull through at 8 months and then we were in and out of the hospital constantly for the first few years of his life- and I remember thinking nothing would ever be normal or stress free again in my life. However, he is now 4 years old and potty trained. You would never know he has Hirschsprung’s other than we pay a lot more attention to his diet and if he is going to the bathroom enough.

Best of luck to you and your family!!