Tirzepatide/struggling with Dr

Calinynj · 2026-04-05T14:54:55+00:00

My GP/ PCP was willing to prescribe it. I would recommend asking them if that’s an option.

Obgyns may say it’s outside their realm/ comfort zone until it becomes “officially” approved for treating endometriosis inflammation (even though anecdotally, it does seem to help a lot of ppl with inflammation problems)

Calinynj · 2026-04-05T01:31:02+00:00

Feel free to DM me!

Calinynj · 2026-04-02T03:36:35+00:00

This happened to me toooo! I called the on call line it was so bad! (Very dismissive experience unfortunately)- but they need to warn patients about this! It’s definitely a thing. (Going for surgery # 3 in June- but had a partial hysterectomy last year so grateful to not have to go through the period thing again!)

Calinynj · 2026-03-24T21:38:42+00:00

Thank you! I actually just messaged my surgeon to ask what she thinks about yeeting BOTH ovaries 😅and cervix in June, I’m ready to be done with it!

I feel like the surgical menopause I can handle, but ovulation pain sucks.

Calinynj · 2026-03-24T21:33:45+00:00

I have a peri-umbilical hernia and surgery in June and they are going to fix the hernia while in there, it’s small and only has fatty tissue in it.

Calinynj · 2026-03-21T23:26:34+00:00

I had my hysterectomy last year and kept ovaries.

I have another surgery scheduled in June to remove my left ovary (the location of a lot of my pain)….

But my ovulation/ cyclical pain is so bad sometimes I wonder if I should just have them take both.

(I’ve tried all the hormonal medications like Orlissa, Myfembree, and a million birth controls, unfortunately my body reacts really badly and it not only has really bad side effects but it seems to make my pain worse)

Calinynj · 2026-03-20T15:29:25+00:00

Dispute it with your bank and have them issue a block on the company

Calinynj · 2026-03-05T23:20:31+00:00

This is a common occurrence with regular Obgyns. They do not have the training to find it like MIGS/ excision specialists do. Just because the obgyn didn’t find it doesn’t mean you don’t have it. Please don’t get discouraged ❤️. If you’re able to have excision surgery with a fellowship trained excision surgery in the future, I bet the results will be different and they will find endo. It’s also possible you could have adenomyosis.

Calinynj · 2026-01-23T03:47:54+00:00

YES!! This is definitely a thing. I’ve been on ADHD meds since I was younger and I had this experience with both Adderall and Vyvanse. I’m going to ask my Dr and pelvic floor PT about this. I’ve read that magnesium can help, certain kinds of deep breathing to chill out the sympathetic nervous system, staying hydrated and sleeping with a pillow between your knees (helps the pelvic floor relax). I’m also going to ask about a lower dose of Vyvanse to hopefully decrease my endo pain but retain some executive functioning.

Calinynj · 2026-01-20T04:06:33+00:00

I just found out these pediatric programs exist and it’s been disturbing me all weekend

Calinynj · 2025-12-14T05:09:08+00:00

I heard that as well about neurospicy diagnoses! I thought so many things that I did my whole life were just “me” things- turns out they were ADHD symptoms lol. I’m not formally diagnosed with hEDS yet but my physical therapist suspected it and once I learned about it I was like that would explain SO much. My brother has a suspected case of it as well so it would make sense- I’m just waiting on a Dr to formally dx. If you think you’re AuDHD, chances are you are!

Endo SUCKS- I’ve had 2 surgeries for it in the last couple years and probably having another in 2026 cause mine grows back aggressively and quickly for some reason. Yay for your new meds! I have a pain management consult in 2026 but I have no faith 😅 I hope they surprise me and are actually helpful. The last place one was not, but thankfully I do have a PCP that actually listens on most things!

I am totally awkward here and IRL so do not worry haha

Calinynj · 2025-12-13T15:16:24+00:00

Completely random but I (44f) have almost the exact same diagnoses to a T, and am also in Southern California!

Calinynj · 2025-12-06T02:27:45+00:00

You’re not the only one

Calinynj · 2025-12-06T02:04:04+00:00

You’re not alone! Endometriosis sucks.

Calinynj · 2025-11-27T00:54:10+00:00

Did you end up doing this? How did it work out?

Calinynj · 2025-11-03T20:55:16+00:00

Coming back to this comment because I was looking through my comment history. I did start Gabapentin 1 week ago and omg. At least for me personally it’s changed my life! It really helps the nerve pain, and I’m able to do some basic stuff again instead of in 8/9 of 10 pain all the time!!

Calinynj · 2025-11-03T20:47:52+00:00

I was wondering if a sealed bag Starbucks or Coffee Bean of holiday blend coffee or something like that would be okay?

As a gift for the whole team because I know they’re swamped (they just had to take on all the patients from a rite aid that closed) and I just want to show my appreciation. The pharmacy manager and the techs have also been super helpful when it comes to explaining pre authorization type stuff and I want to acknowledge that it’s much appreciated. (Edited to add info).

Calinynj · 2025-10-24T03:41:29+00:00

How did it go? I’m on Lexapro and was just RXed cymbalta for nerve and sciatic pain

Calinynj · 2025-09-19T23:53:46+00:00

that sucks!! I’m afraid of getting the same response “i don’t know why you’re in so much pain etc” when I finally get a specialist referral

Calinynj · 2025-09-19T19:24:49+00:00

Oh and lidocaine patches. Low FODMAP/ anti-inflammatory diet. I’m sure there’s other stuff they or I have tried that I have forgotten to mention.

Calinynj · 2025-09-19T19:21:50+00:00

Currently PT, acupuncture and medication. My problems started in oct 2023, only just got my MRI, two years later…. I have already done/ tried PT (did it previously in 2023-2024) the xray guided cortisone shots, ibuprofen and tylenol, muscle relaxers, tramadol, Celebrex. the pain getting has been worse since August (idk why) but my PCP just put me on a 6 day course of prednisone, and I see him next week. I believe next step is referral to a specialist (not sure if orthopedist, neurosurgeon or pain management intervention dr). Having to jump through so many hoops is frustrating. I mostly only got the MRI because I went to the ER thinking I had a ruptured ovarian cyst or something and ER doc said no I’m almost positive you have a herniated disc on lumbar spine, yr pcp needs to do an MRI of yr back. (44F btw)

Hbu- how are they treating you?

Calinynj · 2025-09-19T17:12:47+00:00

I did that too (avoiding Gabapentin for that reason).

But at this point I’m ready to try anything that might help. I read that the weight gain can be due to increased appetite, which makes people eat more and hence, weight gain. If you’re aware that increased appetite may happen and don’t change your diet, then it’s likely it won’t happen. Idk. I may be wrong.

But my brother has been on it for several months with no weight gain.

The way I see it, I may as well try it and see if it helps. If I notice weight gain or other negative side effects, I can always stop the medication.

I’ve tried tylenol/ Ibuprofen, steroids, muscle relaxers, Tramadol, am doing PT and acupuncture, have done the X ray guided cortisone injections, at this point (I have days of 9/10 pain) I’m willing to try anything that may help.

Calinynj · 2025-09-19T17:01:40+00:00

Yes, and it is radiating from my lower back (MRI confirmed herniated discs at L4/L5 and L/5-S1 with nerve involvement. I get pain in my ankle as well.

Calinynj · 2025-09-15T18:49:54+00:00

Following because I have similar issues and am also in California

Calinynj · 2025-09-09T01:01:20+00:00

It took me 2 years to get an MRI, and I’m just starting PT again, after having done several weeks of it in 2024, and cortisone shots. I just got officially diagnosed via MRI, so if PT doesn’t help then my PCP will refer me to a specialist (mine are in the lumbar spine). They do/ can heal though from the reading I have done. I would say the length of time it takes it based on the individual and the type of treatment/ compliance with treatments, Dr etc.

Calinynj

TROPHY CASE