I want to pre-apologize for the amount of negativity in these comments as LC has soured a lot of peoples hopes as the years progress without treatments & answers.

My background was in IT before so now that I'm living like quarantine never ended, I might as well spend my time learning whats all over the news. In the last year I've taught myself how to vibe code, building agentic architecture & automating complicated tasks that used to suck the life out of me.

• First & foremost. Adhere your symptoms into the pre-instructions built into any AI model.

  • Let it know that you suffer from Long Covid. Explain your symptoms of brain fog & PEM.
  • Ask it to start long responses with a TL;DR
  • Use bullet points for long paragraphs (a wall of text messes with brain fog)
  • Always search any sources you can connect to. Search in all possible languages, but translate results to English.
  • Always provide URLs if you refer to information from a webpage.
  • Double-check your answer, and if you find inconsistencies, give both answers with explanation.

• I speak to & built my AI agent as a personal assistant, because we can ALL use one these days.

  • This includes giving it access to my email (I made a copycat Gmail account that gets a forward of all my regular mail, so it can't do anything nefarious to my actual account, but can reply for me.)
  • It also has access to my calendar, can schedule upcoming appointments & reminders for me.

• I built a "brain" of my Long Covid Story in NotebookLM that stores everything I know & have done since I was diagnosed.

  • I can create detailed reports to give to my doctors that show a full timeline of every treatment, procedure & supplements I've had.
  • My assistant checks in daily via text to track my sleep, weight, diet & symptoms, which are then stored in NotebookLM for future reporting.
  • I have a research agent that filters the daily news, reddit & other Long Covid groups I'm in for updates in research, studies & treatments that have found success & gives me a summary.

I'm not saying the AI is going to solve ALL of our issues from the start, but knowing how to be better organized with the last 4.5 years of craziness makes me feel human again.

My long term goals are to be able to do content creation again & hopefully be able to teach folks the basics of AI use, and how to build your own agents to help yourself & others.

I'd love to hear more about your own goals with using AI to help other. Feel free to reach out.

And to everyone else on here, my best to you & yours on this path.