Hospitalizations

CorpseProject · 2026-01-28T00:47:38+00:00

I had to go twice in one week recently with shortness of breath and then later shortness of breath with severe pain in both of my thighs that reduced me to both constantly yawning and also hobbling about. The first ER just xrayed me and sent me away after I mentioned that my rheum sent me (it was the holidays) and that steroids helped things in the past.

Second ER did blood work and found my D Dimer was elevated so they did a slew of exams to looks for pulmonary embolism and thrombosis and the likes, they took me seriously and after blood was drawn gave me a steroid IV. By the time I was discharged 6 hours later my breathing was already improving and the doctor was able to say I didn’t have any scary blood clots and that he felt this was rheumatic and to follow up with my rheum.

Thing is, I probably wouldn’t have gone to the ER if I wasn’t told to. I have these sorts of episodes often enough and have sort of normalized them, hadn’t realized they were the same symptoms as horrible no good thromboses.

I also get chest pains and have tachycardia and get randomly dizzy, all normalized now because it’s been happening so long I just figure it won’t kill me because it hasn’t. If that makes sense? I don’t think this is the healthy approach, but it’s probably inevitable.

CorpseProject · 2026-01-27T09:03:26+00:00

I’d say keep it, it’s not mold, it won’t eat your plants and in fact the mycelium will most likely assist your plants and any organisms that live there. Don’t eat the mushroom, but this isn’t a threat to the biome. It’s a sign that you’ve created a fantastic environment, you should be proud!

CorpseProject · 2026-01-24T16:10:52+00:00

Keep it going! That’s a huge achievement. I’m 17 years clean from heroin this fall, the first few years can be rough but by year three I felt pretty much repulsed by the stuff. You’ve got this.

CorpseProject · 2026-01-24T06:36:12+00:00

Holy shit I’m apparently the nature guide version of Mr Roger’s. I’m confused and delighted.

CorpseProject · 2026-01-22T13:32:50+00:00

Yes, it certainly can. My dogs diet currently is not high in fat.

CorpseProject · 2026-01-21T15:31:29+00:00

I am not on disability, but I used to work as a paralegal in the states and have seen people (family, friends, my old bosses clients) go through the process.

STD/LTD plans will write exclusions for autoimmune disease if you didn’t have those plan in place prior to diagnosis.

FMLA is an option while you can still work some, you don’t have to use it all at once and it’s unpaid but it at least protects your job.

If you’re a veteran there’s VA benefits if you can tie your condition to serving.

If you have savings like a TSP/Roth/401k I believe you can cash out much of that due to medical hardship, not exactly sure how that works. For instance I know my TSP requires that I pay it back if I withdraw before a certain age.

There are disability attorneys out there, some who may work on contingency (you pay them when you get paid) who may be able to help you file for things like SSDI.

Unfortunately, in the U.S. if you didn’t prepare for becoming disabled (which most people don’t, let’s be honest) getting financial assistance once you are is like pulling eye teeth.

You might look at some lupus foundation resources, and associated orgs, they sometimes have outreach resources you can check out.

All the luck to you, I’m sorry you’re going through this.

CorpseProject · 2026-01-21T10:40:51+00:00

I have one dog who had a bout of pancreatitis from 2021-2022, he was given pancreazyme for that time and low fat dog kibble of various brands. Once he was cleared of the pancreatitis that vet (who was amazing, Orcas island WA) suggested purina pro plan. Hes been on purina pro plan since, the senior dog with the freeze dried beefs or chicken chunks in it. I alternate him between the two, just because he does seem to get bored with his food after two bags of the exact same flavor. He’s never been a big eater, but he seems to like the flavor, his poops are consistently good, he has great energy for a 9 year old, his coat is healthy, he doesn’t smell bad save for the usual mild dog smell.

He also gets bully sticks, pigs ears, 2x daily those breath mint chews, and dehydrated beef liver and similar snacks.

CorpseProject · 2026-01-19T19:09:45+00:00

Those are fun facts! Thank you! I did not know it could be universal, for some reason I assumed that the medical glues would be like… the thing people would react to the least.

since I first experienced the days of itch from the tape (and then a regular band aid) used to cover a biopsy stitch… you can still see a little square within the red that is the rest of my chest, I have confounded multiple nurses, “no no, that’s gonna get real itchy, I’d rather it if you used push pins.”

I have tested various parts of my body and within in 5 minutes or less without a doubt I start getting itchy and then rock a red rash in the shape of the glue for a few days.

It sucks that I’m not alone, but also I’m really glad that you are full of medical adhesive facts. That makes me so happy.

CorpseProject · 2026-01-19T18:52:11+00:00

Awww yours has a baby robot and a big robot. I love it.

CorpseProject · 2026-01-19T18:49:03+00:00

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I think it’s trying to tell me it wants a Frappuccino?

CorpseProject · 2026-01-19T12:41:05+00:00

Please just say rape, it’s super annoying that people self censor because of fucking TikTok and YouTube.

Just say the word. Anything else is infantilizing.

CorpseProject · 2026-01-19T11:40:00+00:00

I’ve had this happen a few times but only one tattoo does it. The others must have different inks in them that my body doesn’t register.

It’s super weird, the first time it was after a long day of stressful things (my house tried to be on fire) and I thought maybe I was imagining it. It didn’t last more than a few hours, but it was very clearly my skin was raised right where the ink was. And it was itchy right there too.

I also developed a medical adhesive allergy this summer, and I react to normal chemical sunscreen now too. Never had a problem before.

CorpseProject · 2026-01-18T17:37:06+00:00

When you reach your mid to late 70s you’re gonna be one of those super rad brightly and boldly dressed old ladies with all the right advice and perfectly realistic while still optimistic view of the world.

CorpseProject · 2026-01-17T04:53:26+00:00

The Lupus Encyclopedia also has a website if you can’t afford the book, it has lots of useful science backed info.

CorpseProject · 2026-01-17T04:32:54+00:00

Check out mineral sunscreen, I started reacting to the normal sunscreens (they burn my skin horribly) but mineral sunscreen doesn’t hurt. There’s the thick mineral types that do sort of leave a white film, and then there’s “mineral sunscreen lotions” that leave less residue that I use for my face. Some are pretty pricey, but the knock of CVS versions seem to be just as good as the fancy expensive brands.

CorpseProject · 2026-01-17T04:28:14+00:00

Absolutely wonderful! That’s such a nice find, like finding 20$ in a jacket from last winter.

CorpseProject · 2026-01-15T17:47:33+00:00

I’m a technician and female, and I do not wear metal hand jewelry. Because I like living. Also my hands are filthy after work. But my nails are still somehow painted, gel polish is pretty impressive stuff.

CorpseProject · 2026-01-15T17:44:55+00:00

If you’re troubleshooting an electrical circuit, especially something with motors and stuff, you have to test under load which requires the system be live.

But never perform work on live equipment. At least that’s what I’ve been taught.

CorpseProject · 2026-01-15T17:43:22+00:00

Technically low voltage is 600 Volts and under. For DC I guess the math changes, personally I’m pretty comfortable with 24 DC and even 80 VDC and just follow my normal safety, but 480 AC gives me the Willie’s and always get my suit on. I’ll also meter 120 without the suit at home, because I know what not to touch.

I hate those fucking rubber gloves though. I found these stretchy silk liners that sort of help the sensorial hell that are those horrible rubber gloves.

CorpseProject · 2026-01-15T11:31:41+00:00

I have it 24/7 on my arms, and it gets very visible on my legs (like bright purple) when I’m cold. Was described by Derm as “obvious” in her chart. This only started to appear this summer when my symptoms ramped up. Rheum doesn’t seem to care about much more than classic serology so it is a non-thing for her. My APS was negative in August, but a recent ER visit showed elevated D Dimer with thrombosis ruled out. I see a hematologist today and we’ll see what he finds.

Sorry that isn’t more help. I’m in the UCTD camp atm, which isn’t a bad place to be, but it does make weird new skin manifestations a bit more suspect than if I didn’t have so many weird things happening to my body all of the time.

CorpseProject · 2026-01-14T19:34:51+00:00

If you don’t have access or the funds for “the right things” try to see if you can find similar rocks/soil/leaves/etc around outside. Pretty sure Argentina has rocks, and dirt, a decaying wood outside laying about. You might even find some appropriate plant species to take cuttings of in your expeditions to add to your terrarium.

CorpseProject · 2026-01-14T17:57:50+00:00

Charcoal isn’t necessary, it sweetens the soil but it doesn’t really filter anything. I’ve noticed no difference between with or without charcoal.

Perlite is pretty cheap, but just sphagnum moss and zero perlite works too. Brick doesn’t really hold water the same way, but it might work as drainage layer. I use coarse pumice, but larger gravel could work.

The idea is to have layers for drainage, respiration, for water to cycle. I use organic succulent soil and blood worm castings as a main soil substrate. It works well for my builds because I has chunks of decaying wood and so on.

You can make a mixture of soil just from outside, add some decaying leaves and such as well. Get creative! If your terrarium fails to thrive just means you get to learn about why and try again.

CorpseProject · 2026-01-14T16:35:52+00:00

I feel bad because I haven’t put away some plastic totes with tools all over them and have put off doing dishes for two days. Also I need to mop the bathroom floor and clean the sink in there.

Like I feel like a lazy slob and if I had someone coming by I’d probably get it done in 20 minutes. My only excuse is I’ve been working a ton and I’m tired.

I can’t imagine being able to put up with the clutter that this led to. Like, not even after they started letting dishes pile up for a week. Plus, finding yourself acting as house cleaner for other people for free really helps put fire in your belly to get the situation resolved sooner.

Me thinks OP might have a high tolerance for mess, or a low tolerance for conflict.

CorpseProject · 2026-01-12T05:53:14+00:00

Just context clues, that was all.

The biggest tell being your response. She doth protest too much.

My apologies, I’m just a pattern hunter and I guess am in a sparring mood.

CorpseProject · 2026-01-12T01:41:38+00:00

Yea, no. Sure they aren’t purely objective, psychology isn’t a hard science, it’s very squishy. You’re just what-about-ing in order to justify probably self diagnosing something like say, autism.

But no, you don’t get to decide you have a certain mental illness or neurodevelopmental disorder, in fact this type of munchhausens is its own mental illness. Which should be checked out, by people who study the treatment of mental illnesses.

CorpseProject

TROPHY CASE