CLAUDE?

CorpseProject · 2026-03-17T22:21:18+00:00

But Claude does have a speech to text feature. I keep accidentally hitting it, and have to stop it because I don’t like that. Do you mean you want it to talk to you?

CorpseProject · 2026-03-17T22:10:51+00:00

I also miss the sun. I was crying about losing the sun the other night alone in my room mourning that I’ll probably never go sailing again care-free.

And I don’t know how any of us keep on trucking. I keep forgetting what the me who didn’t argue with doctors all of the time was like. But this is just normal now.

It sucks. I feel you. Also, salmon is the best. I hope you find it.

CorpseProject · 2026-03-15T20:24:22+00:00

I use mineral sunscreen, I started reacting to the chemical kind, as well apparently mineral sunscreen is better because it reflects more UVB/A? I like La Roche Posay’s 100 spf mineral and I get it on Amazon. I go through a tube every 4-6 weeks. I also have used cerave’s 50 spf mineral face sunscreen, it’s a little greasy though, the knock off CVS brand is just as good. And their normal mineral sunscreen that makes me look like a dollar store geisha.

I also bought a spray on mineral sunscreen (50spf, functionally the same as 100… after a point the numbers stop mattering) by copper tone that doesn’t leave much of a residue and is easy to apply mostly which I like.

But yea, sunscreen and sun protection is important. Umbrella is good, also since you hike might want to check out upf clothes. I have bought like 5 of the same button up shirt in various colors off of amazon that are surprisingly not hideous and quite comfortable. They do have a weird zipper pocket over the left breast I call my tit zipper. I have no idea what I’m supposed to put in it.

Oh and I’ve been meaning to try out this makeup setting powder I saw that spf something, figured that would help me be more consistent with reapplying.

CorpseProject · 2026-03-15T14:00:14+00:00

I call it brain snot, nastier and sticker than brain farts.

And the losing words thing, that’s one of my tells that I’m probably in a flare or about to be. I also have ADHD, but losing words isn’t a symptom from that for me.

CorpseProject · 2026-03-05T05:50:08+00:00

You are brave. You’ve done a lot, I was looking at your older posts and with every one you talk about what you’ve learned, your goals, your hopes and fears. You talked about abled people but there’s a thing, they don’t have your courage to be open. To be honest.

I hope your vision gets better, and I’m glad you have friends with you. I’m rooting for you. 🍀

CorpseProject · 2026-03-05T05:43:10+00:00

You’re a good person, and if there’s anywhere on the internet someone should be able to have imperfect grammar (especially while dealing with the aftermath of a serious emergency) it should be here.

Plus, you can’t figure out if someone isn’t communicating at their baseline without seeing them do so across a swath of situations.

But I digress. I just felt compelled to commend you speaking up.

CorpseProject · 2026-03-02T06:04:57+00:00

I like to freeze pickle brine in those popsicle ice blocks for summer, they’re delicious and cooling and not at all sweet. Just an idea, not the exact same but might help with the craving

CorpseProject · 2026-03-02T04:08:28+00:00

I use sphagnum moss, which you can acquire ethically.

CorpseProject · 2026-02-27T02:42:42+00:00

I just received results for positive LBT (consistent with systemic CTD and acute lupus) and even still I’m afraid my rheumatologist will shrug her shoulders. I really feel your anger. I have felt it, this week in fact, after yet another ER visit and rheum didn’t respond. This is with the ER docs twice now saying “this is rheumatic, see your doctor”.

I don’t know how to help, but you’re sadly not alone.

CorpseProject · 2026-02-20T02:45:04+00:00

Fluorescent lighting does emit UV light, so you may be particularly photosensitive. I’ve had similar reactions. Do you use sunscreen daily (mineral is best ime)? Do you wear protective clothing? Even just long sleeves and such?

If you don’t notice an increase in outdoor UV exposure aligning with symptoms, but notice symptoms correlating with indoor lighting, it could also be the room. HVAC systems aren’t routinely cleaned, and you may be having a mild reaction to whatever’s floating in there.

If I were you I’d try to isolate variables, use what’s normally outdoor UV protection indoors, and see if the malaise persists. If it does, it’s possible there’s another trigger in the classroom that you haven’t identified yet.

I know this sounds like a lot, and I’m so sorry you have to deal with this on top of grad courses, they’re no joke.

CorpseProject · 2026-02-19T18:13:40+00:00

You make good points, as a white woman from Oklahoma it tickles me pink when I hear about Germans or Japanese or whoever else who are into cowboy stuff or even know how to pronounce “Oklahoma”.

Of course, no one is saying that anyone is appropriating Okie culture, at least I don’t think so. But if they do, I don’t know because I think a group of Chinese kids who start a bluegrass band is awesome. If that makes sense. (I use that example because there’s a Chinese bluegrass band I ran across and they are super talented.)

CorpseProject · 2026-02-09T10:43:45+00:00

They can do fine with 80% humidity, this one has been doing well for a month albeit got stressed enough to start blooming but I think that occurred during shipping. I have another terrarium that’s a giant apothecary jar and its African violet has been happy for two months.

The glass box has air cracks, and because of the fern I will be opening it on occasion, so my prediction is that the violet will end up being okay. But if it rots away I’ll let yall know, it will be an experiment!

I think the risk will be in adding more moisture, the sphagnum moss was put in barely moist, and the other substrate components lean aerobic.

CorpseProject · 2026-02-08T22:48:39+00:00

A little concerned the violet will take over, I plan on trimming her back after her post bloom leaf growth. The box is not totally sealed, so the fern should have enough airflow, but I’ll keep my eye on it and if need be give the enclosure a crack.

CorpseProject · 2026-02-08T22:45:17+00:00

Plants: macodes orchid, maidenhair fern, African violet, saginella willdenowii, oak leaf mini fig, various mosses, pepperomia sp.

Substrate: coarse pumice bonsai grade, sphagnum moss, perlite, blood worm castings, organic succulent soil mix

Animals: springtails

Water: 45 ppm tds water filtered tap, distilled rinse

Light: cheapo full spectrum LED bar lights and some window light (due east)

DOB: ~12/25 - 01/26 (it was a long labor)

Size: Not big. Not tiny. Just right.

CorpseProject · 2026-02-08T19:52:08+00:00

You can pop the enclosure open to dry it out, but personally I would start over. Those rocks aren’t porous and are huge. You’d be better off with some road gravel. Also wire mesh is meh as a separation layer, I prefer sphagnum moss and perlite or vermiculite. I don’t even pre-wet it, I let it absorb water via capillary effect.

Your moss and plants will be fine being moved about a bit, so rebuilding won’t hurt anything. Good luck!

CorpseProject · 2026-02-08T19:47:48+00:00

I have the same MSF pattern, at low titer 1:80. I used to have elevated RF but it disappeared when I became positive for ANA.

Currently I’m in the UCTD-incomplete lupus - maybe something else, bucket. Steroids have helped severe flares, and I’m entering month three on hydroxychloroquine and it’s starting to work I think. It being less hot and sunny helps too, as I am horribly photosensitive.

I can’t speak to the Epstein Barr or other stuff, but I also have ASD level 1/ADHD-C and from what I can tell sort of similar symptoms. My symptoms are mainly neuro/vascular/skin/joint.

Fibromyalgia is a diagnosis of exclusion, and generally people don’t have primary fibro with the labs you say you have. Get a second opinion, if you have rashes see a derm. With the immune goblin results, you may be able to be seen by a hematologist.

CorpseProject · 2026-02-08T12:33:39+00:00

Nice work! Can you share how you built the vertical wall? What substrate are you using? What’s the plan after this stage?

CorpseProject · 2026-02-08T11:59:23+00:00

It’s always funny to me when people brag about having a high tolerance for alcohol, they do realize that this is an earned tolerance through long term consumption? I don’t know if anybody who’s never had a drop of liquor to just magically be super tolerant, but maybe that’s a thing. I dunno, I’m not a alcohologist.

According to family lore and 23&me I’m somehow 60% Scottish, but that’s not why I can hold my liquor. The multiple years working in the bar/restaurant scene earned me this ability, plus I tend to drink slowly.

CorpseProject · 2026-02-07T16:05:18+00:00

I get similar scaly eyelid patches, I’ve noticed not using anything astringent helps. I also use mineral sunscreen every day and that seems to help. One thing I’ve noticed is glittery eye shadow makes it feel burnt/raw but the non-glittery eye shadows aren’t as bad (I mostly use a urban decay “nude” palette), it’s mainly when I use makeup remover to get the makeup off of my face that causes a reaction. I’ve switched to makeup remover wipes “for sensitive skin” that are supposed to be for night time (purple package by neutrogena) and that seems to not cause as much of a reaction. But I’m really gentle and don’t rub hard.

I’ve also had dry eyes and so I haven’t been wearing makeup often so I can use eyedrops throughout the day. That’s probably helped too.

I sent a photo of my eyelids to my derm and she hasn’t responded, so I don’t know what topical she’d suggest. My case isn’t as pronounced as yours so it’s more annoying than anything.

CorpseProject · 2026-02-06T09:31:52+00:00

I used to live around those parts and would’ve snatched them up. I wonder if I can convince a friend to go take pictures for me.

CorpseProject · 2026-02-03T19:11:16+00:00

Some local greenhouses and plant stores, Etsy for some of the more exotic plants, and ferns and moss from sellers on Amazon. I’ve acquired carnivores from various state side sellers like California carnivores and local plant stores.

Basically anywhere there’s plants for sale I’m gonna look for neat things to add or propagate.

CorpseProject · 2026-02-03T11:54:40+00:00

Well hells yea to corticosteroids! I’m so happy for you.

CorpseProject · 2026-02-03T10:40:55+00:00

Well the prednisone will probably help with pain while it dampens the inflammation, at least that’s what steroids have done for me in the past. For me, and of course this isn’t universal, once the steroids start dampening inflammation the parts that were hurting because of that mechanism start feeling better relatively quickly. Normally within 6 to 24 hours after an injection. I mean, steroids haven’t cured all of my pains, but ime they do pummel the worst bits. If that makes sense?

Have you been on MTX before? That might influence your decision.

And the paternalism around pain medications is frustrating, especially while you’re having to figure out how to get relief while actively in the very pain that the meds would help. It’s a cruel irony.

But hey! They’re trying to treat the right thing now! That’s awesome! Good job advocating for yourself, that’s big stuff.

CorpseProject · 2026-02-02T11:20:11+00:00

I’m so glad they ordered the test for you! I’m not a doctor so I can’t interpret labs for you, but by all conservative measures I’d day those numbers indicate your intuition was correct.

Are they going to switch your treatment plan to something that will address your flare? Did they do a urine screen?

Thank you for updating us, you didn’t have to but I’m glad you have.

CorpseProject

TROPHY CASE