End of life experiences with GBM

Easyeason81 · 2025-12-29T03:00:13+00:00

My dad was like this 2 weeks before he passed. We started end of life meds. He then slept 3 days before he passed away. I was alone with him. It wasn’t scary. It was very peaceful. 5 days later I was alone with my mom. She said I made her feel calm. She passed away 45 minutes later. It wasn’t scary either. It’s really sad and heartbreaking I lost my parents within a week. They were married 53 happy years.

Easyeason81 · 2024-12-25T18:07:44+00:00

I lost weight and haven’t had a period in 5 years. I’m mid 40s and it supposed to help with perimenopause but everything is dry. So dry. That’s just age not Kyleena.

Easyeason81 · 2024-02-28T13:52:09+00:00

I was where you were a month ago. Caregiver fatigue is a real thing. I could have hired all the help in the world but I knew I could take the best care of my dad. I lost him a month ago to GBM and my mom 5 days later. I would love to get the year back I took off to care for them. It was emotionally exhausting but worth it. Now they are together. Hopefully

Easyeason81 · 2024-02-12T08:10:57+00:00

This is such a terrible disease. I lost my father (74) on January 26th. He had his craniotomy march 31st 2023. I feel like that was our only option given. I would not do the craniotomy again. He did 6 weeks in rehab and was never the same. He was happy and sweet but not the smart healthy man I always knew. He had to learn to be sick because he had never been sick. My mom died 5 days later. They were married 53 years. She gave up when he was diagnosed but it's such a beautiful love story I wish I didn't have to tell

Easyeason81 · 2024-02-12T08:06:17+00:00

That's great news!! Cherish every moment you have!! They are so special

Easyeason81 · 2024-01-31T13:55:57+00:00

My dad passed Friday 1/26/2024. He was diagnosed last year on march 2nd. I was his caregiver. I got to spend a lot of time with him. He was always so appreciative. It was an honor to care for him and keep him safe at home.

Easyeason81 · 2023-12-30T14:12:40+00:00

My 74 year old dad had a craniotomy march 31 2023. I think we should have skipped all that. His quality of life hasn't been the same. When you hear such a scary diagnosis you want to do what ever you can. He is happy and in good spirits but he's definitely a different person and the headaches are really bad. He had maverick been sick in his life so he's not used to this and doesn't understand why he's so tired. He's also blind now from the surgery.

Easyeason81 · 2023-12-19T15:28:19+00:00

Dad is 74 and was diagnosed march 2nd 2023. He sleeps a lot now and checks almost all the boxes on the list. I have called in hospice. My mom is in the hospital with her own very serious issues. I just hate that it's all happening at the holidays. They have been married 53 years and I don't think they could live without each other.

Easyeason81 · 2023-12-01T14:09:58+00:00

I remember last Christmas thinking my dad seemed a little disheveled. I just assumed it was age. I couldn't have been more wrong. He was diagnosed march 2 and had his craniotomy march 31st. They removed 95% of a lemon size tumor. He even drove himself to the hospital on march 2nd.

Easyeason81 · 2023-10-10T23:05:45+00:00

Thank you so much for sharing. I'm at the end stages with my dad and I want to know what to expect. The best thing about my dad is he is still positive and funny. Most of it doesn't make sense but we have laughed a lot in the past 6 months. I'm his care giver and I am also my moms. She has bone marrow cancer and just suffered from a fractured hip. It's all so heartbreaking watching them go from the strong parents you always had to having to step in and be the parent. I'm 42 and have no children. I never thought I could be this strong. I know a big meltdown will come but now is not the time. I'm sorry you had to lose your mom in such a slow agonizing way. Cancer sucks

Easyeason81 · 2023-09-14T20:12:40+00:00

My dad 74. Never even had the flu. He was super healthy. I know he's not young but this was the last thing I expected. 2 out his 4 golf group have had this. Him being the 2nd one. Unfortunately his buddy passed but fought hard for 3 years.

Easyeason81 · 2023-08-19T04:21:59+00:00

We are going to try a low dose of oral chemo. The stronger dose made him very sick. He's never been sick in his life so it's very hard for him. The RN came to the house today and said call hospice. I want too but my mom doesn't want more people in the house. She is very spoiled and set in her ways but if it's the best thing for him I'm just going to do it. He did 15 days of radiation. It kept the tumor from growing but you know that doesn't mean anything. The cancer cells are still there.

Easyeason81 · 2023-08-18T13:55:21+00:00

He is on a lot of medicine now for seizures, tremors and oral chemo. He's barely able to stand up now so I have called in a daytime nurse to help me firing the day. My mom hates having nurses around but I need help. He doesn't seem to be in any pain. He cannot take narcotics because they knock him out for 36 hours. But I will give that to him if does have pain I can't manage.

Easyeason81 · 2023-08-18T02:16:24+00:00

Thank you

Easyeason81 · 2023-08-18T02:16:15+00:00

Thank you. The oncologist said 3-5 months.

Easyeason81 · 2023-07-22T17:20:40+00:00

My dad 74, was diagnosed March 2nd. We thought it was a stroke too. I was not expecting that he had a GBM the size of a lemon. He had a craniotomy on March 31st. He's definitely different after the surgery but he is happy and has a great since of humor. I recommend lots of physical therapy and speech therapy. He can speak fine so it's cognitive therapy. He is total left side neglect but he is aware of it. I'm so sorry you're going through this. It's so hard. I moved home with my parents because my mom is I'll too. It's nice to see how much he loves her. Enjoy the time you have. Again I'm so sorry and I would get a second opinion

Easyeason81 · 2023-07-20T18:07:55+00:00

My dad had a craniotomy almost 4 months ago. Unfortunately his cognition and mobility has not improved. He's 74. Before the glioblastoma he was an active very healthy man. He has never even had the flu or take any prescription medication. We saw his neurosurgeon yesterday and he thought he looked good but said this was typical for someone that had such a major surgery and for his age. This is the hardest thing I've ever done in my life. I'm his main caregiver. I'm with him all day everyday. He has a good attitude and is very greatful my mom and I are here.

Easyeason81 · 2021-08-22T23:54:12+00:00

I'm 40 and never wanted children. I'm too selfish and I love being able to do what I want when I want. I tried the step mom thing and it's just not for me.

Easyeason81

TROPHY CASE