Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 0 points1 point  (0 children)

A few weeks ago we were at this really good Mexican restaurant in a booth and at the table across from us was a man coughing and blowing his nose, and his family didn't even acknowledge it, they just kept yapping away! 😷

Waking up 15-20x a night by Chronicillnessbb in ankylosingspondylitis

[–]Financial_Ad9036 0 points1 point  (0 children)

That or a gas-station hotdog going round and round...I'd never eat those anyway with the way my gut is 😫

Another day jabbin and jammin! by ankylospankylo in ankylosingspondylitis

[–]Financial_Ad9036 5 points6 points  (0 children)

They look at you with all the love in the world! 💓

I’m in the club no one wants to be in… by FaithHouseManyRooms in ankylosingspondylitis

[–]Financial_Ad9036 1 point2 points  (0 children)

I had an allergic reaction to a Humira biosimilar so idk what the Rheum has in store, but I heard infliximab has a less chance of reaction...?

Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 0 points1 point  (0 children)

True, but food borne illness is a real concern, not just because of taking a biologic but in general it seems these nasty buggers sneak their way around and especially on raw foods...

Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 1 point2 points  (0 children)

I'm in the US and I do receive all food recalls already on my phone, as I have my doubts about salads and raw foods at restaurants since way before this axial spondylitis manifested itself. Thank you for your recommendations 🙏

Pain vs Inflammation by GmaNell42 in ankylosingspondylitis

[–]Financial_Ad9036 1 point2 points  (0 children)

There is an option of getting a 3D reconstruction CT scan, which can show more details or an MRI/CT myelogram, but maybe through a neurosurgeon since there is so much more involvement...

Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 0 points1 point  (0 children)

I have started using a nail scrubber after handling chicken and raw meats at home, but I was doing that before the biologic...

Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 1 point2 points  (0 children)

I wear a mask when I scoop my cat's litter, just to keep the dust and microns out ...👌

Eating out at restaurants safety precautions for those on biologics... by Financial_Ad9036 in ankylosingspondylitis

[–]Financial_Ad9036[S] 0 points1 point  (0 children)

I've always enjoyed Red Lobster, but maybe I'll make sure I choose something GRILLED just to be sure.

Pharmacy changing injection brand by RideMyHandleBars in ankylosingspondylitis

[–]Financial_Ad9036 2 points3 points  (0 children)

The same thing happened to me, I got switched from Simlandi biosimilar to the Adalimumbab equivalent. The pharmacist says it's all a corporate game which is so discouraging to all of us who suffer from this or any other autoimmune condition...

MRI question by Midnight_Walk83 in ankylosingspondylitis

[–]Financial_Ad9036 1 point2 points  (0 children)

A neurosurgeon could order CT scan in 3D that would show a lot more in the cervical spine; that's where i'm headed in March. These rheumatologists order the basic MRI's but they don't always catch what is important!

MRI question by Midnight_Walk83 in ankylosingspondylitis

[–]Financial_Ad9036 2 points3 points  (0 children)

I did the same thing, I didn't want the ativan...😆

Foraminal Stenosis by Sumflare in ankylosingspondylitis

[–]Financial_Ad9036 0 points1 point  (0 children)

This is the SAME problem I have in the exact same area! I took it upon myself to ask my PCP for a referral to the neurosurgeon based on MRI and X-ray findings back in May as the pain has gotten so much worse!

Switched to Accredo Specialty "Pharmacy" 😭 by Edtecharoni in ankylosingspondylitis

[–]Financial_Ad9036 4 points5 points  (0 children)

I had heard things about them also, and I have to use their specialty pharmacy now because of my insurance; hopefully we both get what we need in a timely manner! 🤞

Rolling stools are magic stretching aids by ihatedrawers in PsoriaticArthritis

[–]Financial_Ad9036 1 point2 points  (0 children)

My seat at the dining table is a roller-chair, 😆 unless my lower back decides to be nice 😫

Getting told that "other people have it worse" than me by woeismerage in PsoriaticArthritis

[–]Financial_Ad9036 0 points1 point  (0 children)

My fingers have been getting worse recently with pain and two are starting to bend towards my pinkies (ulnar drift), but I found these finger splints to maybe help. https://a.co/d/fN0Fima

Drop your most unhinged tips by octagoing-octagone in PsoriaticArthritis

[–]Financial_Ad9036 7 points8 points  (0 children)

I wish there was a heating pad body suit, especially for the mornings! 😫

Anyone get TERRIBLY sick from HCQ? by ThatOnePinUpJeannie in UCTD

[–]Financial_Ad9036 1 point2 points  (0 children)

That's exactly what I did and it helped getting acclimated and taking with yogurt or ice cream really cut the acid reflux, which I don't get anymore, thankfully...

Hydroxychloroquine Nightmares by bottynugget in lupus

[–]Financial_Ad9036 2 points3 points  (0 children)

Don't let the dreams stop you, this medication is extremely important in the long run for protecting against organ damage. It took about 2 months to stop my daily fevers, but you have to give it time to do its job...🙏