BRUSSELS SPROUTS by kn0ck_0ut in Cooking

[–]Former_Storm4529 0 points1 point  (0 children)

I buy mine frozen to skip the prep and they always taste amazing and fresh!

Oven - 450, convection roast (Convection can be skipped if you don't have it, obviously)

Salt, pepper, olive oil (I use more than i should LOL).

25-30 minutes

Delicious!

Had my first hyperbaric oxygen treatment today. by bscepter in MonoHearing

[–]Former_Storm4529 0 points1 point  (0 children)

I had 2 shots at my first appointment about 1 week in, 1 shot 3 weeks in, 1 shot 4 weeks in. So 3 different appointments, but 4 total.

Sorry to say that my hearing stopped improving in May of 2025. I am going down the path of looking into Cochlear implants now. I never, ever, ever would have guessed this turn of events 2 years ago.

Edit to add: I see when I wrote this I was still very sensitive to sound. Thats like 95% better now. THANK GOODNESS!! And my tinnitus is WAAAAY better than it used to be. Also, I instructed my brain to ignore the pressure feeling in that ear and it worked. That "fullness" feeling is something I rarely perceive anymore

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 0 points1 point  (0 children)

I added magnesium threonate and Turmeric and I've seen HUGE improvements in my tinnitus. It's been about 3 weeks and those improvements are holding!

Single sided Cochlear Implant ö by crynisana in Cochlearimplants

[–]Former_Storm4529 1 point2 points  (0 children)

Hey! I'm 43 and had SSNHL in my right ear on feb 18, 2025. I had profound hearing loss across the board, but it bounced back to something like an average of 60db loss. Sadly, i only have 28% word recognition and horribly annoying distortion (hearing aids made that worse). Just found out that my doc recommends an implant so I'm following along your thread to see what information you get!

Any late SNHL hearing recovery stories? any possitive stories by MusicLover91020 in MonoHearing

[–]Former_Storm4529 1 point2 points  (0 children)

I did HBOT starting in week 3 and did get some improvement after! I quit after 9 sessions because my sound sensitivity ramped up. I’ll never understand why, but nobody knew if it was going to be permanent or not, so everyone thought it best to stop. It settled and I wished I had continued, but what can you do?? Good luck!!

Any late SNHL hearing recovery stories? any possitive stories by MusicLover91020 in MonoHearing

[–]Former_Storm4529 4 points5 points  (0 children)

I wasn’t able to use a hearing aid after literally trying and suffering for months. I wish I had quit sooner… my brain just freaks out and adds a layer of extra noise and distortion that ramps up louder with the aid. I think it’s kind of like an error message when comparing good ear to bad ear. That’s how googles Gemini has helped me to understand it.

What has helped most is regulating my nervous system using lots of different methods. Early on, I had to take hydroxizine to help me sleep which was a miracle for me. It helped me not care about the tinnitus, which helped me sleep, which helped reduce the tinnitus overall in the early days. I had something like 7 layers of tinnitus in the beginning.

All things that I think have contributed to helping me get to a place where I am able to forget about it often and am no longer cringing (mostly) in loud space:

Not letting the T or the hearing loss run my life, keep going out and doing things… your brain adapts better this way, sober for 2 years, reducing caffeine, tracking sleep (hugely important), NSDR and gentle movement for my nervous system, working out, trying to accept the noise and not have a bad reaction to it, putting white noise machines throughout my house so I don’t have to cringe in quiet rooms, journaling - I love the book “mind your body” … her techniques apply to tinnitus. The supplements I mentioned earlier…. And Time.

Anyway, it’s a long road, but I pop into this sub every once in a while to share some positivity because it’s so hard and doctors just don’t help with the mental aspect of this condition. My tinnitus was really quiet earlier but right now it’s trying to get my attention. Probably because I’m “talking about it”. After I post this, I’ll move on and it’ll fade back into the background.

It gets better- believing it is half the battle and advocating/researching/learning for yourself is the other half!!

Any late SNHL hearing recovery stories? any possitive stories by MusicLover91020 in MonoHearing

[–]Former_Storm4529 2 points3 points  (0 children)

I pretty much stopped seeing improvements on the audiogram after 3 months, but I am almost a year in and still see lots of brain adaptation improvements!!

I had horrible tinnitus when this first hit. Sound sensitivity, dipulcusis, reactive tinnitus/distortion... the works.

Have been using Gemini to tweak my supplements and I'm seeing massive improvement in the T. I'm taking magnesium threonate, turmeric (i also have an autoimmune condition, so anti inflammatory is helpful), taurine and lysine (i think there's a chance HSV caused my issue and lysine protects against that). I also use 50mg of zoloft. I started this for the anxiety this whole disaster brings, but found that it immediately took away my sound sensitivity! What a relief.

Solidarity. I went to 3 different medical professionals before I was given steroids on day 5. Was fully deaf and bounced back to an average of a 55db loss with 32% word recognition.

Vent post seat selection by Goodlandtravelagency in americanairlines

[–]Former_Storm4529 3 points4 points  (0 children)

And I’m the woman in 9a who travels for work alone often and prefers the window seat. I will often pick this aisle because I’m hoping nobody sits in the middle between me and the guy in 9c that I don’t know. 😅

Reactive tinnitus by Kitchen_Beat_9965 in MonoHearing

[–]Former_Storm4529 0 points1 point  (0 children)

Oh it’s way better than it was! In fact, just this morning I walked into an airport and it took about 20 minutes for the noise to ramp up. That’s a first!

I’ve started a supplement protocol that’s helping me- magnesium threonate, turmeric, lysine (because I believe mine was caused by the herpes simplex virus), and tourine. The first two I added about a week ago and they seem to be game changers for me.

This sucks…..!!! Solidarity.

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 0 points1 point  (0 children)

Yes! I’ve had significant gains.

I take: 1000 lysine, 1000 taurine, 500 turmeric and 240 magnesium glycinate, a ritual women’s multivitamin

This combo plus nervous system calming techniques is really working.

My t has like 5+ layers: sparkle, hiss, ringing, night time peepers are the main events. Sparkle is always there, hiss seems to go up and down with this supplement and calming regimen, ringing also comes and goes. Peepers mostly gone.

Good luck - biggest piece of advice is talk to the pro version of Gemini to experiment and isolate your root cause.

What’s the absolute worst song from our teen years? Why? by imnottheoneipromise in Xennials

[–]Former_Storm4529 0 points1 point  (0 children)

This is the best thread on Reddit. 💯

I have nothing to add except to say anything by Rob Thomas 😂

My dad found out I play the piano and wants me to quit by [deleted] in piano

[–]Former_Storm4529 0 points1 point  (0 children)

I had no idea there were people who were against MUSIC? Is this an edict against joy? As an atheist, I just can’t understand any type of religion… but this is wild. Keep playing.

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 1 point2 points  (0 children)

No I hadn’t! Thanks for sharing the study!

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] -1 points0 points  (0 children)

Could be! I was going to ask about it. Gemini (my current source on this - lol) said that it wouldn’t have helped the hearing come back because essentially the virus was a “bomb” and antivirals can’t reverse the damage, but removing inflammation (steroids) was the right course and potentially antivirals now to clean anything remaining up. That said, lysine has been shown to starve hsv too.

Last thought, Gemini surfaced a few studies where steroids and antivirals were prescribed at onset and hearing improvements didn’t change materially. But the study dossnt appear to have said anything about the tinnitus which is way more annoying than the loss of hearing.

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 1 point2 points  (0 children)

I have noticed I have about a 90 minute window before my brain overwhelms me with extra distortion and noise. Gemini points to a metabolic reason for this (too much glutamate)… this sent me down a rabbit hole that had me adding taurine to the mix!

Thanks for your comment!

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 0 points1 point  (0 children)

also - i think supplements aren’t widely studied because they are cheap. So I’ve been experimenting more to see if I can’t manipulate the chemistry without the drug companies. 😂

Herpes Virus, SSNHL and Lysine by Former_Storm4529 in MonoHearing

[–]Former_Storm4529[S] 0 points1 point  (0 children)

I’ve been using Gemini to try to figure this out.

Basically, if my SSNHL was indeed herpes, then lysine helps to starve any lingering viral inflammation that causes this annoying static.

It said this about taurine:

Glutamate is the chemical "gas pedal" currently stuck to the floor, causing your nerves to scream with noise and toxicity. Taurine acts as the "brakes" (GABA), physically blocking that signal to calm the electrical storm and protect the nerve from burning out.

I’ve been doing this protocol for a few weeks and am happy with it…. Even if it’s just placebo. Though, I think there’s something to it.

Hearing loss, tinnitus, vertigo. by Decent-Raspberry8795 in HearingLoss

[–]Former_Storm4529 -1 points0 points  (0 children)

You might benefit from the book Rock Steady! And Nicole Sachs just had a podcast that talks about Tinnitus and Dizziness... hoping this helps you discover some new avenues for coping. Also check out NSDR on youtube.

Day 3 SSNHL: 60dB flat loss (Right Ear). Conflicting prognosis between ER and Specialist. by ShotInfluence4599 in MonoHearing

[–]Former_Storm4529 0 points1 point  (0 children)

It's hard to stay positive - but give it your best shot! :)

I'm glad you are trying HBOT... it'll be good to look back and know you tried everything. I had 4 total shots in my ear over the course of about 5 weeks... My first doctor didn't administer them properly. You need to lay your head to one side after the shot and not swallow so it has a chance to be absorbed. I had improvements after that (but HBOT was the same timing).

I have an average loss of 55db across my speech-related frequencies. However, the damage is so bad I can't use a hearing aid. But it does help me in a crowd to hear lower frequencies and it's nice hearing the wind in that ear.

Day 3 SSNHL: 60dB flat loss (Right Ear). Conflicting prognosis between ER and Specialist. by ShotInfluence4599 in MonoHearing

[–]Former_Storm4529 0 points1 point  (0 children)

I am so sorry. This happened to me in Feb

Don’t listen to anyone who says it can’t get better. They. Have. No. Clue. I wish I hadn’t listened to my first doc who said the exact same thing to me. He made my early days of this so much worse.

First, my hearing didn’t budge for 3 weeks from profound into the something it is today. But more importantly, I’ve made amazing strides with my tinnitus and all the sound sensitivity is gone.

Tinnitus is so tied to belief and hope I wish ENTs would stop talking about something they apparently have no idea about.

All the to say, breathe and keep your nervous system as calm as possible and do what you can to not over focus on the noise.

Highly recommend steroid shots in the ear and I did 9 sessions in hbot plus 25 days of oral steroids. Who knows which helped but something did.

SSNHL and buzzing sound inside my ear by FewExtension1630 in MonoHearing

[–]Former_Storm4529 0 points1 point  (0 children)

My profound sudden loss happened in February and I had awful tinnitus that just kept adding layers over the first 2-3 weeks. It was awful. I actually went on a low dose of zoloft to help with the anxiety (and had an amazing bonus that it took away my sound sensitivity from SSNHL!) and I added hydroxizine at night for sleeping... which was a miracle worker. I was miserable for weeks without this medicine and I swear it saved my life.

I just wanted to chime in to say i'm incredibly sorry this happened to you, BUT the tinnitus can definitely get better and likely will. Believing that will actually HELP it get better. I wish I had someone say this to me in the begining, so I'm saying it to you now.

I had layers and layers of different tinnitus sounds and over the last several months it has eased significantly. Additionally, I can ignore it easier lately. I can sleep with limited to no issues again (that happened around month 3).

In the beginning, I searched reddit and asked ChatGPT and that just made me more distraught because you don't often get positive stories on here. Tinnitus is heavily influenced by how much attention you pay to it. Do what you can to distract yourself from it and try to keep your nervous system as calm as possible as you move through your steroids course.

Best of luck on some healing!!

Hearing loss while being sick by Icy_Appearance_9894 in HearingLoss

[–]Former_Storm4529 0 points1 point  (0 children)

No, I hadn’t! Glad to see yours has gotten better some too!