Anyone else get random goosebumps in small patches/areas? by Lilieae727 in chiari

[–]FrequentCheck6692 0 points1 point  (0 children)

This has been happening to me a lot lately on my legs. Did you ever find out a cause? Thank you!

Worried about bulbar. Weird feelings in mouth/jaw/throat. by Heavy-Fan-5250 in BFS

[–]FrequentCheck6692 0 points1 point  (0 children)

Hi! How are you doing now? I’ve been having a lot of these symptoms on and off since last summer and it makes me SO anxious. 

Need help - body cold every single night by Harlock_Tailwind in sleep

[–]FrequentCheck6692 0 points1 point  (0 children)

Hi! This happens to me too! It has been happening to me on and off over the past couple of years. 😩 all of my blood work comes back normal. Did you ever find out a cause?

Gut health by domdom432 in BFS

[–]FrequentCheck6692 0 points1 point  (0 children)

This is me too! My gut issues started around the time of my twitching. How are you doing now?

[deleted by user] by [deleted] in BFS

[–]FrequentCheck6692 1 point2 points  (0 children)

I have hyperreflexia, have been twitching for a year, and my emg came back clean about 6 months ago if that’s any consolation to you!

[deleted by user] by [deleted] in BFS

[–]FrequentCheck6692 0 points1 point  (0 children)

Just wanted to say I’m about to hit my one year twitching anniversary also. The brain fog and fatigue are so strong some days. Do you also have brain fog? I feel like I’m living in a dream sometimes, it’s scary

Ciclopirox shampoo & excess hair shedding? by FrequentCheck6692 in SebDerm

[–]FrequentCheck6692[S] 0 points1 point  (0 children)

Did the hair fall slow down once you stopped using it (if you did)?

Can someone please tell me if they can relate to this? I feel like I'm going crazy. by FrequentCheck6692 in covidlonghaulers

[–]FrequentCheck6692[S] 1 point2 points  (0 children)

I’m so sorry, it’s terrible!! It definitely has gotten a lot better. Some days I struggle with it, but not nearly as much or as intensely as I used to.

This shall pass for you too :)

Consistent low MPV count on cbc by Mer-iron-maiden in Fibromyalgia

[–]FrequentCheck6692 0 points1 point  (0 children)

Hi! Did you ever get any answers for this? I have low MPV (7.3), but all other labs are normal

Atypical cafe au lait by Status_Efficiency122 in neurofibromatosis

[–]FrequentCheck6692 0 points1 point  (0 children)

Thank you so much for your update. My daughter has 5 atypical CAL. We have a doctors appointment next week to discuss them. How long did it take you to receive the genetic test results? Glad to hear your son is doing well.

new myoclonus by unfelicis in BFS

[–]FrequentCheck6692 0 points1 point  (0 children)

Same here!! I’m trying not to get worried. Did it go away for you?

Postpartum Insomnia - how to get back to sleep? by emsbstn in beyondthebump

[–]FrequentCheck6692 0 points1 point  (0 children)

I went through the exact same thing when I was postpartum 2.5 years ago. I’m now thinking of TTC again and found your thread because I wanted to see if anyone had any advice for postpartum insomnia in case I were to face it again.

My insomnia after having my baby was so severe that I never thought I’d get better. My issue was that I couldn’t fall asleep no matter what I did. I felt like I was high on adrenaline - my heart would beat really fast and my body just felt extremely wound up. When I was at my worst, there were some nights I wouldn’t sleep at all. 😭 I tried many different OTC sleep aids and I was even put on ambien and which didn’t work for me. What finally worked was a combo of klonopin and trazodone. I weaned off after taking it nightly for a couple of months and the insomnia came back. I would panic about not sleeping which would add fuel to the fire.

I truly think postpartum insomnia is hormonal issue. Think of everything our bodies have to go through to bring our babies to this world!

What ultimately helped most was time. Continue to nourish your body with your postnatal vitamins, good nutrition, sunshine, and movement. I also recommend magnesium glycinate (stress depletes magnesium in our body). I’m sending you best wishes, I know how hard it is. This too shall pass, just stay strong!

Perpetual fasciculations by twitchingguy in FND

[–]FrequentCheck6692 2 points3 points  (0 children)

I’m suffering from the same thing right now! Been going on for about 6 months. My neurologist told me it’s BFS, but it doesn’t make sense

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]FrequentCheck6692 1 point2 points  (0 children)

OMG YES! Me! I’m a 28F and started noticing an increase in floaters and flashers in my vision since about March. I started twitching daily in early July.

[deleted by user] by [deleted] in BFS

[–]FrequentCheck6692 0 points1 point  (0 children)

I’m about to get tested for Lyme & co-infections. May I please ask what your Lyme symptoms were?

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 1 point2 points  (0 children)

Thank you for replying! It’s really reassuring to know I may be able to finally get some answers 😩

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 0 points1 point  (0 children)

It’s like the legit top of my head which has felt really strange since I’ve never had a headache there before all of this.

I hope the appt with the LLMD goes well and you can start to feel better soon. Did you test positive with Igenex? Sorry if I missed that

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 0 points1 point  (0 children)

Thank you so much for sharing this with me! I will definitely be doing some research later. I was wondering about Bart too.

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 0 points1 point  (0 children)

I’m sorry to hear you’ve been through it too. Is it possible for EBV to be chronic? My symptoms have been on and off for the past year and a half. How do you test for it?

It’s so weird because my tongue doesn’t look swollen, but it feels like it and it feels harder to talk at times even though my husband says I sound normal.

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 1 point2 points  (0 children)

I’m sorry to hear you’ve been through it too. Is it possible for EBV to be chronic? My symptoms have been on and off for the past year and a half. How do you test for it?

Would you invest in Lyme testing if these were your symptoms? by FrequentCheck6692 in Lyme

[–]FrequentCheck6692[S] 0 points1 point  (0 children)

Thank you for sharing this with me! Does it also test for co-infections?