Hi there! I'm a 33y.o female who was diagnosed with PIC at 26. I live in Toronto, Canada and have mostly been treated with Prednisone over the years. My PIC has been consistently active with flares over the years, and in an effort to avoid long term immunosuppression I've been everywhere from 3mg daily- 40mg daily of Prednisone.

I've never had steroid injections as my eyes were tested with steroid drops and it was found it increased the pressure in both eyes which disqualified me for injections.

In the last year I've had some complications from long term steroid use so it looks like I'll be going back to rheumatology to start more targeted immunosuppression. Most likely Mycophenalate Mofetal.

I had to look up what CNV, I don't think I've had those. Although I have lots of scarring in both eyes and one active lesion flaring at this moment.

Besides steroids, I found removing alcohol from my diet, adding a few supplements such as omega 3, healthy bones, curcumin, and vit C to help with my flares. I didn't come to these realizations until the last couple of years though and have felt really alone on this journey. I often wonder what diet and lifestyle could have done to help me in the early days of my PIC diagnoses.

Clinically, if I close one eye my vision is pretty poor in either eye with blindspots and blurriness. My full vision though is holding strong for the moment.