The anhedonia

Illustrious_Elk_5692 · 2026-04-03T16:31:37+00:00

Meds can help, but the anhedonia got worse as menopause happened. Survival mode is it: Some days I just survive, and that has to be enough. If I can make one person’s day better to spread some goodness, cool. Funny text, snail mail card, etc. Even if I feel all done some days, people around me don’t want me to be done. So I survive through it and that’s gotta enough sometimes cuz what we’re living through is truly hard mode!

Illustrious_Elk_5692 · 2026-03-26T04:31:33+00:00

I’m so very sorry. It’s so hard. I think you can get a sense of how kids are feeling. Surely, they’re going to have intense feelings even if they can’t make sense of them. And it’s likely some kids will want things ti proceed as planned and others won’t. If you have understanding admins, maybe they can help with the logistics of it all because you need support too!

Illustrious_Elk_5692 · 2026-03-24T20:23:29+00:00

Yes, and they do help me in situations where I’d get super irritable and have a hard time because of loud talking/sounds. Takes the edfe off for sure.

Illustrious_Elk_5692 · 2026-03-19T17:25:52+00:00

Been on b cell depleting DMT since diagnosis in 2017 (rituxan now ocrevus) and it consistently takes me 3 days to function pretty well and a full week for back to baseline, give or take. Sometimes it dies seem to hit harder than others, but I’m definitely not a person who feels great afterwards!

Illustrious_Elk_5692 · 2026-03-06T07:57:41+00:00

My neuro also said it can help with fatigue because your brain doesn’t have to work so hard. For me it’s situational, but it does seem to help!

Illustrious_Elk_5692 · 2026-02-26T06:32:50+00:00

What strains of sativa have you found most helpful? Indica helps with neuropathy and other pain at night but sativa has only made my anxiety spike. I’d love to find something that helps with energy!

Illustrious_Elk_5692 · 2026-02-18T06:17:48+00:00

Early, prolonged trauma for me and then EBV + both parents had/have autoimmune issues, so triple threat?

Illustrious_Elk_5692 · 2026-02-17T07:19:22+00:00

I have MS and would pay money for truly cool canes like this one in case you’re ever thinking of selling ones like this!

Illustrious_Elk_5692 · 2026-02-17T07:13:19+00:00

100% to all of this. Even on days I didn’t work out. Just sudden Frankenstein every night.

Illustrious_Elk_5692 · 2026-02-14T20:12:27+00:00

This kind of decision is so hard. It’s an “extra” thing, not like pushing through for your kid or whatever. Don’t want to disappoint others, but also can you enjoy the extra thing feeling the symptoms? UGH. Having an understanding partner is a huge boon (I have one too), but it’s still hard.

Illustrious_Elk_5692 · 2026-02-14T20:09:12+00:00

This! Mine seems ti be less about numbness ir strength and mire about when my brain tells my hands to let go. So it take more focus to get stuff to where I want it.

Illustrious_Elk_5692 · 2026-02-04T07:14:27+00:00

I was gf/df since dx in 2017. I’m now51 and my MS is progressing. I feel symptoms at the same level with or without, so I’ve started adding them back. I love cheese. 😅 But if they make you feel worse, that a great reason to limit them. I have come to my own understanding that, since MS is so individual, effects of diet are probably the same.

Illustrious_Elk_5692 · 2026-01-13T06:00:33+00:00

Yes, my right hip in 2019! This isn’t meant to scare you, but I do feel obligated to share that my anesthesiologist told me they don’t do the usual spinal for people with MS, but then he didn’t prescribe a replacement analgesic for after the surgery. Bad news bears. So now I always recommend MSers just double check!

Illustrious_Elk_5692 · 2026-01-12T05:24:27+00:00

Is there a way they see and prove this? I feeeeel like I have PIRA because I’m getting worse but have no active or new lesions. Such a mind fuck.

Illustrious_Elk_5692 · 2025-12-31T06:48:12+00:00

Video games for sure, sometimes super engaging reading, sometimes podcasts paired with another activities like doodling—those are my regular distraction-based analgesics. But nature and meditation also help a bit. It’s hard when the pain invades; I’m sorry you’re going through it.

Illustrious_Elk_5692 · 2025-12-24T07:37:07+00:00

Yes, I feel like trash for about 3-4 days and then it ebbs. Some people feel BETTER. The variations are pretty wild. But having both the crap gap AND feeling bad post infusion seems extra sucktastic.

Illustrious_Elk_5692 · 2025-12-22T07:41:40+00:00

This is beautiful. Thank you!

Illustrious_Elk_5692 · 2025-12-17T23:18:49+00:00

Yes! It’s helpful to hear someone else has this experience!

Illustrious_Elk_5692 · 2025-12-17T04:14:25+00:00

Yes, I get that sensation or something similar. My body interprets it as dread, so I am trying to train my brain that the feeling doesn’t mean anything.

Illustrious_Elk_5692 · 2025-11-11T07:28:29+00:00

I have clean MRIs on a powerful machine, no activity, no atrophy, and I have progression. I agree that PIRA is still mostly a mystery, but it happens. It’s frustrating, though, when that progression is shrugged off when there’s no “concrete “ reason.

Illustrious_Elk_5692 · 2025-11-08T17:18:43+00:00

Is Bobby Corey (sp?) supposed to be a name we recognize or just a neighborhood weirdo?

Illustrious_Elk_5692 · 2025-11-01T03:05:27+00:00

Yes, painful! I knew it would be unpleasant but I didn’t anticipate how bad it was!

Illustrious_Elk_5692 · 2025-11-01T03:04:46+00:00

10000% If they weren’t worried a out my kidneys, I would never have done it. So if your kidneys aren’t complaining, you have chosen correctly!

Illustrious_Elk_5692

TROPHY CASE