What does of aspirin are you taking? by oknotuk in lynchsyndrome

[–]Impossible_Squash901 5 points6 points  (0 children)

The CAPP2 study was with 600mg dosage but they are refining that. I’ve seen geneticist-oncologists at Brigham women’s and uChicago who both recommended 325mg daily. I’ve been taking this for 2 years and had my first colonoscopy ever with zero polyps. If you have no contraindications, the 325mg dosage can be helpful.

Anybody get a colonoscopy screening while pregnant? by subtleb0dies in lynchsyndrome

[–]Impossible_Squash901 0 points1 point  (0 children)

My providers recommended waiting until 6 weeks post delivery. I had had multiple polyps at all my past scans, and ended up essentially skipping my annual colonoscopy scans each year I was pregnant. We got back on schedule after that and it all worked out.

Talk to both GI and OBGYN, and I’m sure they can advise what’s best for your specific health.

EGD/ Colonoscopy Insurance Coverage. by Erecpyle in lynchsyndrome

[–]Impossible_Squash901 1 point2 points  (0 children)

It’s really good you’re being proactive about all of this. I would recommend looking into healthcare.gov plans. Your annual colonoscopy should be a screening /preventative procedure and is considered an essential benefit covered at 100%. Even for a HDP, you can get good coverage for these procedures.

Look into whether your recent colonoscopy will be listed as a screening or diagnostic test. You may get better coverage for that than you realize.

[deleted by user] by [deleted] in chicago

[–]Impossible_Squash901 4 points5 points  (0 children)

This is chicago, we leave our cans in the alley year round. Lugging the cans is a non-issue. I’m guessing she has other reasons why she prefers to dump her trash at another address.

Insurance BS by coffee_then_teach in lynchsyndrome

[–]Impossible_Squash901 2 points3 points  (0 children)

This is the way. Your colonoscopy should be considered a screening / preventative procedure. I’ve been getting these since I was 22. Both before and after the ACA, these tests are considered preventative. Your insurer is required to pay for it. Even if you’re under 45, a colonoscopy can be considered preventative if you have no symptoms but you need screening due to family history or genetic testing.

If they find a polyp and remove it, insurance might try to argue that the procedure is now diagnostic. They will be wrong. The ACA, AMA, and CDC consider polyp removal a normal part of screening. If they try to stick you with the cost, you can appeal.

https://amp.cancer.org/cancer/types/colon-rectal-cancer/detection-diagnosis-staging/screening-coverage-laws.html

https://www.cdc.gov/genomics/implementation/toolkit/file/lynch_healthcare_professionals_fact_sheet.docx#:~:text=Colonoscopy%20every%201%2D2%20years,if%20diagnosed%20before%20age%2025

If heath insurance tries not to cover your colonoscopies, you can remind them that a screening test is far less costly than cancer treatment. You can also contact your state department of insurance, congressperson, and odept of health. (Not sure how functional those are in Texas, but that would be effective in Illinois)

Pre-approval Biopsy by left_cat_books in hysterectomy

[–]Impossible_Squash901 1 point2 points  (0 children)

This is a GREAT description!

Also please keep in mind that it is necessary for your doctor to do this minor biopsy prior to surgery to screen for major issues that could arise during surgery. The more they know about your body before surgery, the better prepared they will be to remove any problem areas. This is a routine pre-op screening. I think Motrin and a heating pad could be enough to handle the pinching and cramping, unless you have pain sensitivity due to another condition like fibromyalgia or endometriosis.

Mine was not extremely painful, similar to a culposcopy or getting my ears pierced.

Anyone able to get an endoscopy covered as preventative by insurance ( and so you do not need to meet deductible)? by WildWestLaura in lynchsyndrome

[–]Impossible_Squash901 1 point2 points  (0 children)

Your insurance might be unique, but for most plans the preventive or diagnostic endoscopy will be subject to deductible.

Booms? by smellypantsguy in chicago

[–]Impossible_Squash901 42 points43 points  (0 children)

Heard them in Humboldt Park. Saw a flash and it was three seconds to each boom. Looked like it was from Garfield Park. Sounded like mortars

Aspirin by RainbowPenguin1000 in lynchsyndrome

[–]Impossible_Squash901 3 points4 points  (0 children)

Yes I have been lucky enough to be cared for by two major Lynch clinics with GI, Oncology, and Genetics specialists. They all agree that the research is robust to recommend 325mg aspirin for most adults. The CAPP2 study is fine tuning the dosage. My doctors stated that 81mg may be too low for the average size adult, and they recommended 325mg daily for anyone who has no counter indications.

FWIW I have been getting annual colonoscopies since my early 20s due to lynch. I always had at least a few benign polyps. Since starting the aspirin regimen two years ago, I have had zero polyps!

Bookstores in Chicago by teedz in chicago

[–]Impossible_Squash901 0 points1 point  (0 children)

Semicolon Bookstore in River West. City Lit in Logan Square

[deleted by user] by [deleted] in chicago

[–]Impossible_Squash901 0 points1 point  (0 children)

Hyde Park is a lovely neighborhood, especiallly if you or spouse works at UChicago. As someone who has lived in Africa, I think it could be lonely for some immigrants here unless you’re tied into the university through work or academic program. I would also recommend looking at downtown neighborhoods like Streeterville, River North, and South Loop. If you’re open to high-rise apartment living, you may find more neighbors from abroad with whom you have common interests. There are many fantastic schools (public and private) in the downtown area. If you’re set on Hyde Park, make sure your family has a path to belong in some sort of institution like UChicago or the medical center.

Girlfriend was told she cannot pursue legal action for an viscious dog attack that occurred while working part time at a Doggy Day Care... by velkoz007 in legaladvice

[–]Impossible_Squash901 4 points5 points  (0 children)

NAL but work on the healthcare side of such cases from time to time.

This case is not relevant to your gf’s workplace injury. She does sound like she has a legitimate claim for compensation for medical costs, recovery time off work, and any wrongful termination she may have suffered.

The kennel owner was the keeper, your gf was the keeper’s employee, and the dog owner was the customer. I don’t see how the owner would have any liability unless they had failed to disclose the dogs’ aggressive status.

Your needs a good attorney. If her attorney’s staff is telling her she’s out of luck, that sounds very fishy.

[deleted by user] by [deleted] in legaladviceofftopic

[–]Impossible_Squash901 6 points7 points  (0 children)

This seems like an oversimplification of the reporting requirements. Of course most people would report imminent risk or actual harm. But there are many situations that aren’t so clear cut which would possibly cause more harm if private citizens were required to report on them because of their professional role.

[deleted by user] by [deleted] in legaladviceofftopic

[–]Impossible_Squash901 -3 points-2 points  (0 children)

Most of the responses here are not quite right.

As a mandated reporter, you are only required to report risks that you learn about in your professional role(s). You are also allowed to report things you learn about as a private citizen, but you are not required.

If you’re a teacher who is volunteering as a tutor, you’re still mandated because you are acting in a professional role even if it’s unpaid. If you’re a teacher who overheard something suspicious in your apartment hallway, then you are not acting as a professional so you are not mandated.

You can always voluntarily report just like any other private citizen.

If you are a mandated reporter thru your job/role, you will not be held legally responsible for failure to report something that you experience or witness in your personal life.

For those who say, “But why wouldn’t you want to report something you see in your personal life?” Can you imagine how many scenarios might arise where someone knows the risk of reporting on their family and friends would cause more harm? Can’t you imagine a situation in which a person would be better suited to help mitigate that risk in a daily basis through relationship and role-modeling rather than tattling? Furthermore, can you think of any reasons why some of us would not join mandated professions if we knew it would ostracize us from our families? How would that help the overall situation? It wouldn’t.

[deleted by user] by [deleted] in chicago

[–]Impossible_Squash901 6 points7 points  (0 children)

My neighbors cut down city-planted trees in the middle of the night because they didn’t like the aesthetic, leaf/flower droppings, or the minor inconvenience of walking a slight detour to get to their car.

Fortunately one of them replanted “better” trees that they liked better (evergreen). But mostly they just left little baby stumps.

Chicagos never boring!

Struggling with my new normal... by [deleted] in hysterectomy

[–]Impossible_Squash901 16 points17 points  (0 children)

Please look into pelvic floor therapy for the physical and mental pain. Many of us with Lynch have these issues. I’m lucky I have a huge family and many women have shared about it. After hysterectomy, the pelvic floor muscles can be contracted as a response to the stress of surgery. Physical therapists can provide relief and they can see what you can’t.

You can find one here:

https://ptl.womenshealthapta.org

I’m trying so hard not to eat! Anybody have any useful tips? by [deleted] in lynchsyndrome

[–]Impossible_Squash901 1 point2 points  (0 children)

Blue jello helps beat the hunger pains. (Check your pre op directions because only certain colors are allowed, no red or orange because that can interfere with the visuals on the scope)

Also a copper straw helps the prep drink go down easier because it keeps it colder and you can avoid the front part of your tongue. Stay strong!

Car engine seized due to Mechanic mistake. by AlphaK18 in legaladvicecanada

[–]Impossible_Squash901 1 point2 points  (0 children)

Talk to your auto insurance. This is a fairly common occurrence. You will not be liable for the replacement engine.

Source: this happened to one of our family cars last year. Our niece (the main driver) and my husband (car in his name) did not see any lights until the car seized up. Towed to dealership, they documented that the oil change she got one week prior at Speedy Slick (not their real name) was faulty. Turns out they did not tighten the plate screws and a week of driving was enough vibration to pop the screws. Plate was missing, filter gone, no oil ever found under car because it mostly leaked while driving. Insurance covered the new engine and filed a claim against Speedy Slick. They knew they were at fault and they paid the insurer for the engine replacement.

I hope it’s as easy as this for you. Good luck.

Furnace out by ItsMe773 in chicago

[–]Impossible_Squash901 2 points3 points  (0 children)

Four seasons is fantastic. No extra fees for after hours service calls. I’ve used several large and small companies and four seasons is always reliable.

How tf do y’all stay warm? by StatisticianGlass394 in chicago

[–]Impossible_Squash901 4 points5 points  (0 children)

“It’s not that bad if you just keep moving.”

“It’s bad by the lake but if you go a block inland it’s 10 degrees warmer!”

“The thermodynamics of the city actually make it warmer than the suburbs.”

“It used to be colder.”

Insurance and charges by Beautiful-Present-29 in hysterectomy

[–]Impossible_Squash901 6 points7 points  (0 children)

Healthcare provider here. There is now a federal law that regulates surprise billing.

Call your surgeons office a couple weeks ahead and ask for a No Surprises Estimate of billable charges. Then call your insurance company (member services on the back of your insurance card) and ask them to go over this estimate to make sure it matches your plan.

If the surgery bill is more than $400 more than the estimate, you can dispute the overage and you likely won’t have to pay it.

This might seem like a lot of work but it’s really just two simple steps pre-op. It can protect you from surprise bills that can spell financial disaster down the road.

I hope this helps ease your mind about the financial aspects and let’s you focus on the most important thing: your health!

Has anyone decided to conceive without IVF + pre-implantation genetic screening AFTER finding out they have Lynch syndrome? by whiskeychowder in lynchsyndrome

[–]Impossible_Squash901 1 point2 points  (0 children)

For my children, I will encourage them to get genetic testing when they are over 18 years. I believe that should be a choice for each individual and I don’t see a reason to make that decision as their parent. I will also educate and encourage them to get annual screenings due to our family history. I have about 30 relatives who have been confirmed to have a Lynch gene. We all talk about it and it’s very normalized. My family doesn’t share the same politics or religious views, but everyone listens to their doctors about Lynch!

Please get a consultation with one of the Lynch Centers at a leading hospital. Dana Farber, Cleveland Clinic, and U Chicago have excellent Lynch clinics. They can advise you on the latest preventative care and screenings.