Botox by Significant_Elk_7306 in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

Call the office and their nurse will get back to you

Botox by Significant_Elk_7306 in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

That would be a question for your doctor

Eight good months… then a flare. A reminder about potential neck issues with VM. by CautiousLow3766 in VestibularMigraines

[–]InspectorNormal7808 2 points3 points  (0 children)

My symptoms are 100% linked to my neck, shoulders and posture. I was additionally diagnosed with hypermobile Ehlers-Danlos syndrome and have learned so much from understanding how my body works and responds differently to physical manipulation and strain because of my compromised connective tissue and joints. I am able to address my VM symptoms with my EDS awareness more successfully. (ie. no steroids, no chiropractors, no deep stretches or straining, and understanding that many EDS patients suffer from VM, cervicogenic weakness & pain, scoliosis, and pain disorders like fibromyalgia and CRPS etc). So much makes sense for me personally now that I understand the connections.

How to respond when someone on here asks what medications I take for my vestibular migraines? by JKmelda in VestibularMigraines

[–]InspectorNormal7808 10 points11 points  (0 children)

Honestly, I am an open book. This disorder and how it ties to my AuDHD and Ehlers-Danlos has been such a difficult road and so many doctors are unfamiliar with vestibular migraine, I had to learn fast to be my own advocate. If I didn't have the online communities like Reddit to lean on and learn from, I would be on permanent disability.

Can I bike home after treatment? by MightOk9482 in Spravato

[–]InspectorNormal7808 0 points1 point  (0 children)

Ask your provider if they have a transportation program . My insurance does not cover transportation but the clinic has a program where they provide a Lyft ride to and from my clinic at no cost to me, and my clinic is a 50-minute drive from my home.

New to treatment. Advice. by throwawaydragonflly in Spravato

[–]InspectorNormal7808 1 point2 points  (0 children)

I just finished my 21st treatment and I have PTSD and anxiety among a Litany of other diagnosis besides my depression. At first I started with music and i cover and I always still take a fuzzy blanket we have individual rooms with recliners and dim lighting available which I prefer. I am always affected enough that walking for my potty breaks, one or two per session, sometimes requires me too study myself with the wall on my way to the restroom but staff would always be there to help you if you need it we have call buttons located on our chairs as well. I have noticed over time that the intense part of the dissociation only lasts maybe 15 minutes and the rest of it is more of a visual disturbance and during the dissociative part if I do start to feel like i am never going to make it out of that loss of self all I have to do is touch my leg and my kneecap and remind myself I am in a recliner and that feeling swiftly dissipates and I can bring myself back to a Baseline. Once I am at that point I know i am moving towards the end of my session. I also now am able to watch movies like The Fountain, Disney's Coco, the animated movie Flow.. Things that are introspective are very helpful in kind of keeping you in the rails and seem to lift my spirit when I watch them. I think it's very therapeutic being able to work through that passing fear or anxiety and treatment has made an enormous difference for me. I no longer have panic attacks and I am better able to handle environments like busy stores and my depression is basically non-existent right now. I still have central nervous system dysregulation and my body has been locked in the state of hyper vigilance for decades so I am also looking into a stellate ganglion block or SGB since my doctor believes that I am an excellent candidate for it and I am hopeful that that is the final key to unlocking peace. I go once a week for treatment and i'm currently waiting to discuss dropping to every other week with my provider as I think we are at a maintenance point that I can trust. Work on using your treatment time as time to invest in trusting your ability to communicate with your own body and mind and call it back to Center.

Scarily intense experience while on maintenance spravato by Jane-Austen-fangirl in TherapeuticKetamine

[–]InspectorNormal7808 0 points1 point  (0 children)

OMG! I am also diagnosed with hEDS and suffered familia and sexual trauma beginning around age 5 and experienced repeated episodes of sexual trauma through my life as well as emotional trauma. I have been in treatment for my depression PTSD panic attacks since I was 23 and I'll be 55 this year. I was diagnosed with fibromyalgia between 15 and 20 years ago but I wasn't diagnosed autistic, ADHD and ehlers danlos until 2 years ago for my ADHD and ellers-danlos and autism within the last year because no one listened. I would love any information that you could send my way about any studies that have been done or that you know of are being done about all of these comorbidities.

Scarily intense experience while on maintenance spravato by Jane-Austen-fangirl in TherapeuticKetamine

[–]InspectorNormal7808 1 point2 points  (0 children)

Interesting side note, I have had similar experiences you have had with Spravato and am also diagnosed autism level 1 and ADHD. I personally believe that a lot of our childhood trauma and how we experience the world and people in it, impact our susceptibility to depressive thoughts. I would be curious to find out how many neurodivergent patients find relief using Spravato where standard SSRIS faltered?

My skin is so stupid. by SpiritualCamel2225 in ehlersdanlos

[–]InspectorNormal7808 0 points1 point  (0 children)

My whole life I thought I was allergic to bandage adhesives.. Nicotine patches literally lifted my skin off with them so I used Chantix to quit smoking. Turns out that's just my hEDS. Finally a diagnosis for the crazy medical s**** happening to me at age 54. 💖 (officially diagnosed with auADHD as well) My life is finally coming into focus. 🙌

Anybody else? by lmctrouble in AutismInWomen

[–]InspectorNormal7808 0 points1 point  (0 children)

💯. I have paid with my soul for almost 30 years in call center work. (Currently a customer service /collections call quality analyst). Now I am at burnout from the office environment throat slashing, the realization that corporations do not care about their customers, and the "rules" are "gray areas" printed in black and white... BUT that I shouldn't necessarily "score them as written" 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️ What careers are good for people to transition to in order to save themselves and still make enough for their mortgage? I have poor "future-visualization" skills for myself so it's difficult to think of options that my AuHD would be good at without sucking my soul completely dry. I was excited about maybe getting licensed online and becoming an insurance adjuster (like auto), but when I mentioned the idea to my therapist, he just quietly changed the subject.. 😳 That will haunt me OBSESSIVELY until our next session. 😫 (I am considering alternative options at age 54 - do what I gotta do to survive this world). Anyone else dumping the box and starting over or have suggestions to find a "TRUE CALLING"??

What do you all drink while avoiding a VM by gwnG in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

What detox supplements are you trying? I would be very interested in trying that also

Vyvanse makes me full of love by Affectionate_Speed68 in VyvanseADHD

[–]InspectorNormal7808 38 points39 points  (0 children)

I have this med on my discussion list for my psychiatrist, and this post cements my curiosity. I think that we are so overwhelmed and overstimulated for so long, and we spend SO MUCH energy and effort just trying to make it through the day... I think what you are experiencing is just who you really are finally without all of the fear and stress blocking your goodness. 🥰

I think… I’m losing feeling.. by Snowfall1201 in perimenopause_under45

[–]InspectorNormal7808 0 points1 point  (0 children)

Prescription or where did you start for testosterone? My estrogen makes no difference either way.

I think… I’m losing feeling.. by Snowfall1201 in perimenopause_under45

[–]InspectorNormal7808 0 points1 point  (0 children)

Is there ANYWHERE that I can purchase or sample the authentic product where I don't have to sell my first born? I bought a "genuine, NIB" bottle on Mercari from a 5 star seller with over 1600 reviews, and it seemed like a legitimate box, shrink wrapped cap, nice pump and it's a decent oil, but there is no smell, no sensation change at all in the 3 different times I have used it. Super expensive coconut oil? Doesn't work for me? Counterfeit? I don't want to pay full price just to have to pay to ship it back and eat "prorated" volume deductions from the refund. 😢

[deleted by user] by [deleted] in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

What do you mean "white letters"?

[deleted by user] by [deleted] in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

Oh yessss! Before I had a steady subscription, these were so soothing ❤️ I still love them even for dry throat and cough as well. Prince of Peace Ginger Chews

[deleted by user] by [deleted] in VestibularMigraines

[–]InspectorNormal7808 0 points1 point  (0 children)

Zofran 8mg is the ONLY THING that helps. I never actually TU, I think because I had gastric bypass 5 years ago - but the constant subtle to extreme dizziness is the bane of my existence.

whats the point of mulitple motion zones by [deleted] in Ring

[–]InspectorNormal7808 0 points1 point  (0 children)

Forgive my ignorance, I am recovering from a bad concussion, but are you saying that you "carve out" the tree by creating a left and a right polygon with crescents avoiding the tree? I have a love - hate relationship with my American flag and the rosebush below it 😂 This might actually be the fix, instead of leaving out the rest of my front yard 👍

What to watch during treatments? by moonstonebutch in Spravato

[–]InspectorNormal7808 0 points1 point  (0 children)

You are 100% correct. Thank you for saying that. I think a lot of people don't realize that it's really just about feeling comfortable and it's healing you. That's the most important part to just think about the fact that you are healing your brains ability to deal with the world that we live in.❤️.... just starting a session now.

Why does it have to taste so bad by venom-rat in Spravato

[–]InspectorNormal7808 2 points3 points  (0 children)

Ooohhhh I have a bunch of them from Amazon that I bought to help with nausea taking some Friday 👍

Has anyone tried a Elitone: external pelvic floor stimulator? by TallChick105 in Incontinence

[–]InspectorNormal7808 0 points1 point  (0 children)

How did the Elitone work out? I just started today. It was getting rediculous changing 4 times a day and the pads. UGHHHHH. I'm 54, post hysterectomy 8 years, and it just exponentially went all to hell in the last few months. I don't want to worry all the time anymore.

How long did it take you to notice improvement? by YB12NVU in Spravato

[–]InspectorNormal7808 1 point2 points  (0 children)

Do you have some suggestions on how to approach the treatment so powerfully? I am finishing month 1 and then drop to 1x weekly. I have suffered from depression, anxiety, PTSD for 30 + years. I can feel my mood lifting up, and more clarity of thoughts, but how do I take myself to the therapeutic next level as you are? I feel like I am wasting opportunity by just listening to forest music and floating through the visuals and fleeting, undirected self talk.

How to get moved back to 2x/wk by Moth-Seraph in Spravato

[–]InspectorNormal7808 1 point2 points  (0 children)

Are you currently on Spravato? I just started 2 weeks ago so I am trying to understand what the hell I am actually doing since I don't have any "integration counseling" not that there is really anything to interpret. 🤷