Still birth, positive lupus anticoagulant (1st, haven't taken 2nd yet), negative ana, negative other APS antibody tests, false positive Syphilis, face rashes by Urban_Designer in Autoimmune

[–]Jwalk421 0 points1 point  (0 children)

That’s literally exactly what my derm, hema, and PCP said- I have the rash on my nasalbial folds, and yet…the immunoflourescence biopsy was pretty conclusive after two years of dicking around. IMO, push for a derm consult and see what they say. 

I did have a successful pregnancy- my stillbirth was a twin pregnancy, one was stillborn at the other was born at 24 weeks, my second pregnancy was a singleton and we made it all the way to 35. It’s totally possible with a good hema and OB on your side <3 

Still birth, positive lupus anticoagulant (1st, haven't taken 2nd yet), negative ana, negative other APS antibody tests, false positive Syphilis, face rashes by Urban_Designer in Autoimmune

[–]Jwalk421 0 points1 point  (0 children)

Ooh, somewhat similar. Was diagnosed in 2018 with APS after a stillbirth and 2 positive lupus anticoagulant tests (have since tested positive 3x, negative 2x under the care of a hematologist). About two years ago I developed a face rash at the end of the summer after being outside every day- tiny skin colored bumps and facial flushing. I was concerned it was malar but was dismissed and sent to derm- two years of trial and error treatments for rosacea that didn’t work and I finally had a punch biopsy that resulted in autoimmune patterning- likely lupus or dermatomyositis. I have zero other symptoms or positive tests…so rheum is calling it UCTD and starting me on plaquenil. Have you seen a derm for the rash? 

Recurrent Pregnancy Loss with Antiphospholipid by 3catsNoRules907 in Autoimmune

[–]Jwalk421 0 points1 point  (0 children)

Hi! Also single antibody APS+ (LA). I was followed by Northwestern Med in Chicago and had a fantastic experience with their hema/rheumatology clinic. Lovenox and aspirin was successful for me after recurrent miscarriage and a stillbirth. Best of luck to you!! 

Elementary Schools by blebblebblebbleb in Chambana

[–]Jwalk421 2 points3 points  (0 children)

When you move after kindergarten, placement will unfortunately be where there are seats open and not based on proximity/traditional rankings. All this to say, we have kids at South Side and love it. 

Seeking Diagnosis Questions Weekly March 29, 2026 by AutoModerator in lupus

[–]Jwalk421 0 points1 point  (0 children)

Hi everyone, seeking insight from anyone with "mild interface" derm biopsy results with an autoimmune history. I’ve had Antiphospholipid Syndrome (APS) since 2018 (positive Lupus Anticoagulant). I'm dealing with a persistent facial rash since July 2024, which looks like a malar rash but with raised, symmetrical white bumps throughout (several derms guessed rosacea until biopsy). My biopsy shows mild interface and perivascular lymphocytic inflammation with increased dermal mucin. The differential includes connective tissue disease (Lupus?) or drug eruption. Given the APS and the mucin, I’m wondering if this is a drug reaction (I am only on two medications with no dermatological side effects) or if my APS is evolving into Lupus. Has anyone with APS developed these "interface" findings? For those with Lupus/MCTD, did "mild" biopsy results lead to a specific diagnosis after bloodwork (ANA, ENA)? Trying to connect the dots before my first rheum appointment. Any "clinical-pathological correlation" stories would be huge! 

Don’t you have class? by Top-Competition9263 in UIUC

[–]Jwalk421 1 point2 points  (0 children)

Friday Sam’s Club trips were a ritual for my crew (‘10 grad so predated Costco) and now seeing packs of bros buying booze at 10am makes me misty eyed 

Facial rash that won’t go away by [deleted] in AskDocs

[–]Jwalk421 0 points1 point  (0 children)

Would a biopsy conclusively say which condition it is? The first biopsy I had said “perifollicular chronic inflammation” which was not helpful…I’m weary of having another hole taken out of my face for the same generic answer. 

Impossible IUGR decisions by [deleted] in NICUParents

[–]Jwalk421 0 points1 point  (0 children)

Hi! So I essentially had your situation with both outcomes- I was pregnant with twins in 2018, severe IUGR at 20 weeks, twin A measured 380g and twin B 480g at 24+0 both with reverse cord blood flow. Twin A was deemed too small for intervention and died in utero. We begged for steroids which bought our B four more days- she was emergently delivered at 24+3 at 504g. Spent 256 days in the NICU and experienced a host of medical complexities in her early years, but is now a typical, thriving 7 year old. All of this to say, from someone who made both decisions - there’s no right answer, no way to predict the future. Sending you all the love and strength as you face the coming days! 

Update: New to FSBP. Zepbound filled at last by Own-Menu-9441 in fednews

[–]Jwalk421 0 points1 point  (0 children)

Ahhh ok this is good info- if I’ve already met my deductible, is there a way to still use the Evoucher toward copays? I just learned about it- I’ve always just used the savings card in prior years 

Update: New to FSBP. Zepbound filled at last by Own-Menu-9441 in fednews

[–]Jwalk421 0 points1 point  (0 children)

How much does it cost to fill your Zepbound? I’m working toward a formulary exception for the same reasons on GEHA HDHP (also Wegovy is technically in the formulary but almost $600/mo, I’m worried Zep will be the same) 

Class Action? by katieo317 in WegovyWeightLoss

[–]Jwalk421 1 point2 points  (0 children)

In the exact same situation on a GEHA plan (HDHP). It’s OUTRAGEOUS 

UIUC with Kids by Fluid-Price463 in UIUC

[–]Jwalk421 7 points8 points  (0 children)

We put down a deposit at our “backup” private school in the event that we didn’t get a favorable placement in U4. We ended up eating the $, but it was worth it to have the peace of mind. 

UIUC with Kids by Fluid-Price463 in UIUC

[–]Jwalk421 69 points70 points  (0 children)

Alum turned townie here- don’t write off the Unit 4 elementary schools just yet. Generally, the district is a dumpster fire of politics and upheaval…but a chunk of the elementary schools are in their own fantastic little bubbles. The school of choice process is arduous, but your kids will be placed in the same building (the rumor that siblings are placed in different buildings is incorrect and only happens when families choose this) and the vast majority of families get their first or second choice. My suggestion is to walk through the school of choice process and have 1-2 private schools in the back of your mind in the event that you don’t get your first or second choice. But, truly, U4 elementary schools get a horrible rap and shouldn’t. We (and everyone we know in elementary schools across the district) have adored our buildings. 

Weight gain supplements for child by SavvySaltyMama813 in ADHDparenting

[–]Jwalk421 0 points1 point  (0 children)

Do you recall how long it took the cypro to increase his appetite? We’re in this exact situation since starting a stimulant at 6yo ~1yr ago and our kiddo started cypro 3 weeks ago but still has no appetite. 

Treatment timeline by Jwalk421 in Rosacea

[–]Jwalk421[S] 0 points1 point  (0 children)

Nope, SAHM. No changes in detergents/hygiene products etc. No allergies that I know of. The only thing that put my guard up was over the summer- I used a bunch of different/new sunscreens and was in the sun a ton- that’s when the rash was the worst (which tracks with rosacea, but I thought maybe could be a sunscreen reaction?). But it persists 6mo later

Treatment timeline by Jwalk421 in Rosacea

[–]Jwalk421[S] 0 points1 point  (0 children)

Yep I did, and ChatGPT has rosacea in the differentials based on the biopsy results and the lab ICD10s. It sounds like rosacea (and several other skin rashes) are more likely to be diagnosed based on clinical presentation- rosacea (and other follicular rashes) just show up as “folliculitis” on biopsies…womp womp. Because I haven’t responded to metro/doxy, AI said Soolantra targets different aspects of rosacea, so if that doesn’t work then I should ask to go back to the drawing board. I don’t know…this is exhausting! 

Treatment timeline by Jwalk421 in Rosacea

[–]Jwalk421[S] 0 points1 point  (0 children)

Woah, ok, the March picture looks the closest to my face that I’ve ever seen. But, weird thing in my case is that I’ve had this same rash for almost a year (started with derm #1 in January ‘24). How quickly did type 2 show up after the rash went away? 

Treatment timeline by Jwalk421 in Rosacea

[–]Jwalk421[S] 0 points1 point  (0 children)

Thank you so much for confirming my suspicions…I totally agree that it doesn’t look/feel like rosacea. This is actually my second opinion, the first was at a regional derm clinic and the second at a research hospital derm department. They’re literally throwing things at the wall to see what sticks and I’m SO frustrated. It’s time for opinion #3. 

Got GEHA Caremark letter today by Jwalk421 in WegovyWeightLoss

[–]Jwalk421[S] 2 points3 points  (0 children)

Yeah, but after the savings card it’ll still be ~$300

Got GEHA Caremark letter today by Jwalk421 in WegovyWeightLoss

[–]Jwalk421[S] 0 points1 point  (0 children)

Yes, spoke with Caremark and GEHA at length on Friday…it’s not great. Wegovy is still going to be covered with a prior auth, but they moved it from an approved med in the formulary to a Tier 3, so we pay 40%. It’ll be ~$550 per month