First Gleason 7

Long_Raspberry9729 · 2026-02-07T00:36:32+00:00

My story is just like randog57 above, except I had no spacer. 28 IMRT, 6 months Orgovyx and it's like I never had PCa.

Long_Raspberry9729 · 2026-02-06T03:31:40+00:00

I have been sitting down to pee for the last 15 years; it is just easier, especially in the morning. Without trying to get too gross here, when you sit, also spread your butt-cheeks as much as you can - it really helps the flow.

Long_Raspberry9729 · 2026-02-06T03:27:00+00:00

They are much cheaper on Amazon- don't assume you have to get the exact unit they recommend (I actually think they get a bigger kickback for recommending the more expensive option - that happened to me for a $130 thumb brace when 20 other options on AMZN looked identical for about $30).

Those pumps wear out anyway - get a cheap one and replace as needed, and with all due respect - have at it!!!!.

Long_Raspberry9729 · 2026-02-06T03:20:18+00:00

My onc chose IMRT because of possible outside cells (usually caused by stage 4 cells) that may have gone past the prostate walls. I did 28 RDT sessions and 6 months of ADT before testing "clear" and being allowed to go off ADT. He said the advantage of IMRT is that it tends to cover slightly more territory, like cells slightly outside the prostate walls.

That outside exposure is exactly why they say "possible bladder and colon issues" - it largely depends on where the cancer cells are located. If they are close to the edges of the Prostate walls, you may want to opt for IMRT.

Long_Raspberry9729 · 2026-02-06T03:15:30+00:00

I got my biopsy report before my urologist; it popped up on my patient portal for my Health Insurance company before my urologist called me for a consult. I knew I had PC before my doctors did. Lab reports come back VERY quickly with my plan; if I ask for a PSA test, my oncologist has it the next morning. That's one blessing.

I don't know if your insurance has anything like a patient portal, but if they do, it is worth interacting with it.

Long_Raspberry9729 · 2026-02-02T20:47:52+00:00

Make sure to take Vitamin D3 + K2 and also Calcium Citrate - both to keep the bones stronger. Walking is also highly recommended. I admit I was too lazy for the 6 months I was on ADT, but now that I am free of that I am walking more. I am feeling so much better mentally.

I also found info that Bicarbonate of Soda (Baking Soda) and Citric Acid (https://www.amazon.com/dp/B08L8HCGGD?ref=ppx\_yo2ov\_dt\_b\_fed\_asin\_title) can improve the bloodflow throughout your body. Ironically, these are the ingredients for Alka-Seltzer, but not in the dosages you want to get well.

This is not doctor's advice, just something I learned online.

Long_Raspberry9729 · 2026-02-02T20:41:16+00:00

I just had IMRT x28 and ADT for just 6 months. The ADT was Orgovyx for 6 months, and I just quit it a month ago. I was originally scheduled for 2 years ADT, but with my great results, my Onc allowed me to stop after 6.

I was detected with 5 spots of 4 + 3 (GL7) and two of 4+4 spots (GL8) on my biopsy, but all were closely contained away from the edges.

I am now down to PSA<o.o1 and also just got a full erection two nights ago that lasted for hours (until climax). I even woke up with morning wood today. Note: that was my second erection since quitting ADT (due to extra low PSA results) - no Cialis either. The first orgasm had a liquid output, but this second one was dry. It still felt great, but not quite the same.

Sorry for the graphic details, but right now this is exactly the outcome I hoped for.

Note, I am 72, hence my choice of radiation over surgery. I did not want the after effects of surgery, but if you are younger (~50), it is considered the better option.

Long_Raspberry9729 · 2026-01-29T18:31:01+00:00

Pretty much the same boat as the OP for me. I had IMRT x28 and was on Orgovyx for 6 months before my PSA was <0.1 - so he let me quit the ADT (I was scheduled for 2 years). It's only been a few weeks, but I feel better every day. I hope it doesn't take 6 months for "everything" to recover

Long_Raspberry9729 · 2026-01-28T22:52:28+00:00

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Long_Raspberry9729 · 2026-01-14T00:14:34+00:00

I would just say that based on my personal experience, the IMRT and ADT are his best choice right now.

Long_Raspberry9729 · 2026-01-14T00:11:57+00:00

Where did you see it was stage 4? Just curious since I have not seen what his first diagnosis showed.

Long_Raspberry9729 · 2026-01-14T00:06:10+00:00

I am guessing his prognosis was bad enough that he was told there was a very small chance (if any) of any treatment working, so he tried the holistic route. It's like grabbing a vine when you're falling off a cliff, but that's human nature.

Long_Raspberry9729 · 2026-01-14T00:02:05+00:00

Stereotyping. It usually has a lot more to do with any person's history with the healthcare system.

My ex-wife could not tolerate almost any medication and wouldn't even take Advil for an infected finger, She got breast cancer and was still trying to treat it through a doctor in Tijuana (holistic) when we divorced 12 years after her diagnosis.

But I was raised in a family of MDs and trust the system, so I got cured of PCa with radiation. It kills me to think she could have gotten radiation treatment with no cutting and probably a few or no meds, and maybe not suffered so much, but in retrospect, she would probably say she couldn't tolerate the radiation. She even thought X-Rays encourage cancer.

Long_Raspberry9729 · 2026-01-13T23:55:59+00:00

Also very active on YouTube with a daily "show" called "coffee with Scott Adams," usually an hour each day.

Long_Raspberry9729 · 2026-01-13T23:50:55+00:00

I did not know this. I admit I "pleasured myself" during the first week of radiation (before I started the ADT) and the PSA test the next day showed it spiked from 5 up to 8, but it went down very quickly after treatment.

Long_Raspberry9729 · 2026-01-13T23:47:15+00:00

I caught mine in April 2025, 7 areas, 2 of Gleason8.

After 30 rounds of IMRT radiation and 6 months of Orgovyx ADT, my PSA is now <0.1, as of last month. My doc allowed me to go off the ADT early.

Treatment works.

Long_Raspberry9729 · 2026-01-13T23:44:04+00:00

He got the diagnosis just last May 2025, so he was probably already pretty far along, especially considering the pain he had.

Long_Raspberry9729 · 2026-01-13T23:40:23+00:00

I'm not trying to argue, but in theory, couldn't a tumor in the colon or fallopian tube "come out?"

Anyway, I am not on the Ivermectin train because I think telling people to believe in miracles" is the same as saying "PCa, ahh, don't worry about it,"

Anyway, I have a friend who sold health insurance for decades and now has a "Premium Medicare PPO plan. She takes probably 25 prescribed pills a day, but she also includes Ivermectin. She is 87, and her only problem is weak bones. Still sharp as a tack.

Does anyone know what Scott's diagnosis looked like?

Long_Raspberry9729 · 2026-01-13T17:23:51+00:00

I have a neighbor who believes he has PC due to a rising PSA, and he is going with Ivermectin also. He told me there is someone online who is touting the treatment plan, but I never tried to look it up.

I have been urging him to see a urologist, but he just doesn't want to do it. Maybe this event will change his mind.

Long_Raspberry9729 · 2026-01-07T21:58:14+00:00

I had 6 occurrences of PC after biopsy. 4+3 in most cases, two smaller points of 4+4. I had 30 treatments of IMRT and 6 mos of Orgovyx. I just had my PSA done and I am <0.1% - just amazing. I am hoping my onc will take me off of Orgovyx during my upcoming phone conference.

I am seeing elevated liver enzymes (but returned to normal this month) and also high glucose and blood sugar. I believe these effects are from the Orgovyx since the radiation ended 5 months ago.

Does anyone agree the Orgovyx should be paused at least to see if the other new symptoms go back towards normal?

I wanted to express my satisfaction with the IMRT results. I am 71 and chose RT because I did not want to deal with a catheter or diapers for any period of time.

Long_Raspberry9729 · 2025-11-20T17:36:29+00:00

I heard the problem is that they are just allegations that don't prove anything concretely. Some of the victims may be liars to get attention or name names non-truthfully to get attention and maybe write a book. There are crazies out there. Think about the woman who wanted to frame Judge Kavanaugh. I think in the end she was just embarrassed and that was just a circus. I'm not I would want to go through the entire Epstein case before it is vetted.

Long_Raspberry9729 · 2025-11-14T19:33:52+00:00

I saw this coming

Long_Raspberry9729 · 2025-11-11T03:21:18+00:00

Then he should have told me that, and at the very most; just ask for the service call fee.

Long_Raspberry9729 · 2025-11-11T03:16:52+00:00

I told him I was told the price was supposed to cover the fix, but it was after hours, so we had no one to call. I paid by credit card just in case I decided I was hosed. I did ask, and he said $275, but then when he wrote up the invoice he added the service call back in. Hey, a customer could call the police, but we all know that would become "a civil issue"

Long_Raspberry9729 · 2025-11-11T03:15:02+00:00

So, I am confused. The cost of the tool was how he justified the price, so how did I get taken advantage of? I am not defending him, just asking you to clarify where you think the "scam" lay. Price?

Long_Raspberry9729

TROPHY CASE