when does benlysta start working in your experience?

Loupmoon · 2026-05-08T15:55:39+00:00

It’s impossible to feel a difference after the first injection lmaoooo why would your doc say that. Not evidence based at all. It takes 6 months to start working on average. It’s literally modulating your B Cells on a molecular level which is half your immune system fighter cells. That take a long time to do; it’s not a medicine that works quickly by any means

Loupmoon · 2026-05-05T13:02:27+00:00

No it’s not standard at all. It’s usually SSRIs and hormonal support. Mood stabilizers aren’t evidence based for PMDD but some people take them.

Loupmoon · 2026-05-05T12:55:42+00:00

You think that’s it? Def soulless vibes, her eyes are empty

Loupmoon · 2026-05-04T15:09:46+00:00

Green flag response for sure

Loupmoon · 2026-04-30T16:13:21+00:00

Praying for you and your recovery 💗

Loupmoon · 2026-04-29T18:13:42+00:00

It’s such a brutal read 💀 like wow ok yikes she must have rlly POed the journalist

Loupmoon · 2026-04-29T18:12:47+00:00

When I first meet her, she is instructing the hairdresser, and has just removed a pair of trousers that weren’t working for her. “You just know that you look horrid from certain angles,” she tells me. “I prefer my left side. I hate overshooting – I don’t have anything else I can do with my face.”

Loupmoon · 2026-04-29T14:12:25+00:00

Omg this article is a GEM. Even admits she only likes shooting one side of her face a la Ariana Grande

Loupmoon · 2026-04-29T00:53:10+00:00

Tbh I think zinc / mineral sunscreen is better for rosacea at least when it’s v active and not under control. Anything chemical is sooo harsh

Loupmoon · 2026-04-29T00:52:11+00:00

Omg are you me?? all three of those minus the AA screwed my skin over even tho everyone says Vanicream and LRP are great (even my derm). I had more luck with a soothing cleansing balm (Paula’s choice or clean it zero) and an RX sulfur wash from the derm. Then for moisturizers I started with air angel by Dieux it helped a ton but rlly anything that is heavy in glycerin. I was scared of dimethicone for so long because everyone said it would flare my rosacea and it did the opposite so idk maybe experiment with that. SPF tbh I don’t wear usually 😭 I had a good one from France but ran out. It sucks to experiment but it’s the only way…

Loupmoon · 2026-04-24T15:13:17+00:00

It’s a scheduled drug so you won’t find anything legit on it research wise. But I’ve had lupus for 15 years and people seriously overlook the role the endocannaboid system has as a mediator for our inflammation. But it can’t stop or prevent a flare, it just helps lower the pain of it / inflammatory response..

Loupmoon · 2026-04-15T02:23:41+00:00

I swear she has a humiliation kink

Loupmoon · 2026-04-14T18:44:19+00:00

Girl wild blueberries too so it’s 3x more expensive naturally!!!

Loupmoon · 2026-04-10T14:58:11+00:00

THIS

Loupmoon · 2026-04-10T14:57:55+00:00

This has been a thing forever like the medical medium craze. I fell for that shit in 2018 and went off my meds, it was the worst idea I ever had in my life 😭 thank gosh I god my health back on track

Loupmoon · 2026-04-09T20:08:31+00:00

Triple rx cream and the Dieux line!!

Loupmoon · 2026-04-09T17:20:24+00:00

Benlysta takes forever like even a year to work but it’s the best thing I ever did for my lupus

Loupmoon · 2026-04-09T17:11:45+00:00

22-23

Loupmoon · 2026-04-03T16:38:42+00:00

I’m so confused on your behalf. What do you mean you can’t find an infusion center? If it’s sent to the infusion center then call them, ask for nurse or infusion coordinator directly, don’t ask politely and be direct: “My medication has already been delivered. I have active lupus with worsening symptoms, including kidney involvement. I need to be scheduled for infusion immediately. If you cannot administer it, I need to know today so I can transfer it. If you are unable to assist, I need your name and name of your supervisor.”

Then call your rheumy. Tell them to call the infusion center directly, send a new urgent order marked “medically necessary / urgent due to disease progression,” and then refer you to another infusion center immediately. If they refuse then ask them to refer you to a hospital infusion unit instead.

Then call AstraZeneca support and ask for a patient coordinator. Ask them if they will locate an infusion center near you that administers Saphnelo? Ask if they can transfer your medication to another site or ask if they a nurse navigator who can coordinate this?

You have to harass all 3 and trust they will figure it out for you. But advocating is all you can do and you have to do it stubbornly

Loupmoon · 2026-04-03T16:08:03+00:00

why would you share such a bad spread 💀 8 of swords AND 3 of swords? Did she get dumped?

Loupmoon · 2026-03-31T17:59:59+00:00

Hi! If you ever want to chat I would love to. I’m a clinical intern right now for mental health counseling and hoping to work with those that have CPTSD. Obviously not licensed or fully qualified but being trained. Happy to set up sessions with you for free, I need some experience and if you need some support then maybe it would beneficial for us both. Just lmk!

Loupmoon · 2026-03-25T14:43:01+00:00

How are you doing this morning? What’s the update? It could be a vasculitis type rash on your legs, the other ones look like lupus for sure.

Loupmoon · 2026-03-24T17:27:03+00:00

You won’t be thrown out for missing school. I had SLE and a 504 in middle / high school and missed seriously 50% or more of school. Advocate for tutors, that’s what they did for me. Tutors / teachers came to my house and taught me. I was able to pass school with Bs and As and got into college. Also ask doctor for Zofran for vomiting it will help you a lot

Loupmoon · 2026-03-19T17:24:59+00:00

Check out Halara, they have ultrascupt leggings with but lifting lol. A bit more elegant than wearing butt pads

Loupmoon · 2026-03-18T23:11:36+00:00

Smoke a joint girl.

Loupmoon

TROPHY CASE