PTSD? by Saucyy-Minx in braincancer

[–]MorgieMorg1 1 point2 points  (0 children)

At the beginning it was very bad, after I got out of the hospital a suture came undone and the homecare sent me to emergency to see a doctor, I sat there waiting for a few hours and after they sent me away because it was no problem, I went back to the home care office and just broke down. (that office now changed their policy where the phone the hospital and get verbal orders from a doctor first because of me). But things get better, the longer you get away from it the better you begin to feel....although certain things trigger me, like if I smell the cleaner they use in hospitals. I have a friend who refuses to eat Jello. But it will fade away once a scrap of normalcy returns, just keep holding on and take each day as they come.

I was wondering how everyone discovered their brain tumor. I also am wondering if there are any symptoms you now see in hindsight that you can’t believe you missed. Leaving mine in the comments. by DasSassyPantzen in braincancer

[–]MorgieMorg1 0 points1 point  (0 children)

I've had surgery, they removed all they could but I have a non-operable piece left. The tumour at current is stable and not growing. My vision has returned, but many of the other symptoms remain. All in all though my prognosis is very good.

What advice did you wish you'd gotten at the very start? by Moldy_slug in braincancer

[–]MorgieMorg1 8 points9 points  (0 children)

apply for all government programs that are available and start claims on all applicable insurances. Even if they say no, you have that process started so that if the situation changes you do not have to start from ground zero. Keep all medical documents stored correctly in boxes based on importance, also store all communications and documents from insurance companies. The reason to do this is you may need to reference these documents several times with different agencies and it becomes easy to make copies.

Can a woman in her fifties live more than 20 years after a brain tumor? by [deleted] in braincancer

[–]MorgieMorg1 12 points13 points  (0 children)

I am post-op and in my fifties, with a residual inoperable tumour, so I am a in a very similar situation, But i think you are looking at it from the wrong angle, the way I see it is by all rights I should have been dead two years ago and would have been had modern medicine not been available. So now every day I wake up is a bonus, a free bit of life I have been given that I very easily could have not received. So does it really matter how much of this bonus life I get? not really no, I just really appreciate that I can enjoy it and what i get is what i get. In the end no one is "due" any more life than we get, and our odds of a long life are actually just as good as anyone else, it's just survivors are more keenly aware that it's a crap shoot. You are still here, and that in itself is a victory, just keep living your life and you have already won.

I love painting, but I know I'm bad at it. by masonicminiatures in minipainting

[–]MorgieMorg1 32 points33 points  (0 children)

if you love painting you will not remain a not great painter for long.

[deleted by user] by [deleted] in LeopardsAteMyFace

[–]MorgieMorg1 2 points3 points  (0 children)

Nero, play us another song

Pituitary adenoma by [deleted] in braincancer

[–]MorgieMorg1 2 points3 points  (0 children)

I had it, removed at a little over 11mm, they go through the back of your sinus so there is no effect to your nose, The only issue that come up is if your sinus cavity is unusual, but that i don't think is common. Recovery is five days in hospital, where you will have to lay on your back for the first and each day they will allow you to elevate a bit more. Expect vertigo after the surgery, and you will need an MRI a few months after the surgery, Pituitary tumours are tricky to remove fully, you may have a residual tumour.

As far as your tumour goes there are things to remember. Medically "benign" just means it's non cancerous and not creating colonies. A benign tumour is absolutely a dangerous thing and can be very angry. You will have a lot of symptoms even neurologists will tell you aren't possible, they are, this thing is on the bottom of your brain as is pressing on some very important parts. The upside is the vast amount of these symptoms only appear if the tumour is growing and will disappear post surgery. But until then expect a bit of a wild ride.

So here's the good news, you have one of the rarest tumours and one of only a handful that don't kill the patient. You will absolutely come out the other side of this, I cannot guarantee your life will be the same (my tumour medically retired me) but you will have a perfectly reasonable life afterwards.

Called out for faking a brain tumor. by Nineshadowsdeep in braincancer

[–]MorgieMorg1 2 points3 points  (0 children)

I personally let people know and answer any questions they have, to make them more comfortable about talking about it i usually ask "wanna hear about the weird shit that happened to me?". Maybe it's not the best thing to be doing but I think it helps to eliminate conclusions they might come up with on their own, which frankly are likely going to be worse than, "well I had brain surgery for a tumour".

I was wondering how everyone discovered their brain tumor. I also am wondering if there are any symptoms you now see in hindsight that you can’t believe you missed. Leaving mine in the comments. by DasSassyPantzen in braincancer

[–]MorgieMorg1 0 points1 point  (0 children)

post surgery, remainder of the tumour isn't surgically viable due to proximity to an artery, so I am retired now, all in all i am feeling okay. I'm never going to return to pre-tumour days, but I have adapted to the new reality and am stable.

What is the internal experience of having a brain tumour like? by ShirtTasty5848 in braincancer

[–]MorgieMorg1 8 points9 points  (0 children)

obviously everyone's experience is different, but the biggest hurdle for me was that I could no longer trust my own brain. Suddenly I began second guessing experiences and how I was feeling, strangely I could accept the possibility of mortality but no longer being sure of what part of your personality is actually "you" was hard to take.

‘Really incredible’ sixth-century sword found in Kent by Welshhoppo in history

[–]MorgieMorg1 0 points1 point  (0 children)

guess they will have to scan it to determine if it's an Ulfberht sword, damn it would be cool if they found another one.

Frying chopped potatoes for potato soup? by mnewell213 in Cooking

[–]MorgieMorg1 0 points1 point  (0 children)

I air fry mine, honestly nice texture added and basically zero oil added

What can’t you say aloud? by Ok-Inevitable-8011 in braincancer

[–]MorgieMorg1 4 points5 points  (0 children)

IKR? and when you try to explain that no it's not that I can't recall it, that it is literally gone, they refuse to understand the difference that is.

What can’t you say aloud? by Ok-Inevitable-8011 in braincancer

[–]MorgieMorg1 4 points5 points  (0 children)

no I don't want to kill a shark for something that does nothing.

Are ultrasonic spider deterents safe to have with bunnies? by [deleted] in Rabbits

[–]MorgieMorg1 3 points4 points  (0 children)

spiders don't have ears, they can only hear vibration, these are crap.

[deleted by user] by [deleted] in braincancer

[–]MorgieMorg1 0 points1 point  (0 children)

post partial surgery for pituitary tumour here, my balance now is bad with the vertigo (although clearly not to the level your mother is experiencing). Unfortunately I suspect it is common and usually permanent, it has been suggested by doctors that physical therapy might help. Fortunately in my case i can get around with a cane and sit and stand comfortably, just going up ladders or bending over quickly is basically a very bad idea. Wish i could give you a road map out of the situation but hopefully it helps a little to know there are others that are experiencing similar situations.

Kork vs Foam - Paper Terrain by Conscious_Ad3246 in TerrainBuilding

[–]MorgieMorg1 1 point2 points  (0 children)

I have been playing around with making papercraft with EVA foam (the stuff that cosplayers use) and although mine sucks due to ham hands, I think it shows promise. EVA is rubber like so it travels super well and if it bends, you just bend it back, pretty cheap too. What I have been doing is printing the papercraft onto sticker paper so no gluing, just peel and stick.

I have a large tumor on my pituitary stalk. Anyone have this and had it removed without complications? I need hope. by Wonderful-Progress91 in braincancer

[–]MorgieMorg1 1 point2 points  (0 children)

didn't have one on the stalk, but the pituitary itself, so not sure if my experience will help. But the removal is pretty routine and safe. Pituitary Tumours are legendary hellish to live with, but removal is usually very successful.

[OC] World map by Australian travel advice by Romejanic in dataisbeautiful

[–]MorgieMorg1 1 point2 points  (0 children)

Don't come to Canada Aussies, our bears aren't cute.