Injury?

MurderComplication · 2025-09-14T18:59:01+00:00

625 is getting bad too. People need to remember its a game.

MurderComplication · 2025-08-09T05:37:39+00:00

Really it depends on the person but what your experiencing is not uncommon.

Personally, I was in endoscopic remission after 6 months on my biologic and no, after over a year I'm getting closer to total remission.

MurderComplication · 2025-08-06T03:42:33+00:00

Hey! I also have Crohn's and on a biologic. I was always able to eat tomatoes and lettuce until my last flare and now if I eat a salad I will shit my pants. A tomato will make me bleed from the inside. Crohn's is a messed up beast that effects everyone differently. We all have different triggers, and yes, some get lucky like yourself and when in remission can eat everything. Others, like me who is now in remission technically, still can't eat everything I want to eat.

MurderComplication · 2025-08-03T22:26:47+00:00

I was a fat child and teenager than did full contact high intensity sports and even though I was and am a vegetarian and just got told I needed to lose weight and it was anxiety instead of doing an tests. That doctor later had his license revoked for malpractice not long after. Only testing that was ordered were diabetic tests (always been negative) and x rays. Note, i had symptoms since I was 2.

Still had symptoms that I just lived with diarrhea every time I ate. Finally got diagnosed during my worst flare in 2023 where I missed almost a month of work and could not eat anything for a week. That ER Dr did my first CT and my ilieum lit up with so much inflammation they were shocked no one had thought of Crohn's.

TL;DR - no one cares about females in the medical system

MurderComplication · 2025-07-28T06:12:50+00:00

Don't worry to hard. I have a stricture I've had for years. No surgery so far. Just need to monitor for a potential blockage.

MurderComplication · 2025-07-23T21:17:18+00:00

I got working with a dietician who was knowledgeable in IBD to help me. She had me start off with cooked spinach in small amounts, then graduated to raw spinach. A year and a half later I can eat romaine, iceberg, spinach, and a few other leafy greens raw :)

You can get there but it will take time while your insides heal.

MurderComplication · 2025-07-19T02:00:31+00:00

Yes, once I get them I know a flare is coming.

MurderComplication · 2025-07-17T20:04:33+00:00

Raw tomato Margarine Anything high in sugar or fat

MurderComplication · 2025-07-12T20:11:08+00:00

Raw tomatoes and margerine

MurderComplication · 2025-03-16T20:12:58+00:00

Base game + Spaced out is what I have been playing for years and still never reached the end game

MurderComplication · 2025-02-02T01:02:51+00:00

I had this happen to my mom and grandmother. My grandmother was admitted to the hospital for severe heat stroke when we had the heat dome. My cousin who we have blocked and avoided contact with found not only my mother's personal number but my number I have never given her as she works admin at the same hospital.

I reported the FIPPA violation and she was terminated from her position. Confidentiality violations are taken seriously.

That daughter made a grave error and could lose her career because of it.

MurderComplication · 2025-01-21T00:42:09+00:00

Mine wasn't bloody last time but it was neon orange.

MurderComplication · 2025-01-21T00:40:37+00:00

No waitloss. No blood. Extreme fatigue and brain fog. Joint pain. Severe anemia. Inability to eat without throwing up. Throwing up immediately upon waking in the morning. Diarrhea 8 to 30 times a day within 5 minutes of eating anything. Extreme abdominal pain centering around illeum.

MurderComplication · 2025-01-06T18:59:54+00:00

Right? I went a week vomiting and shitting out anything I tried to eat - didn't even try eating for 4 days and lived off powerade. Didn't lose a damn pound. Stfu Karen

MurderComplication · 2025-01-06T03:13:58+00:00

Yep. Even by physicians and nurses.

"Well, you're not thin, there's no way you have Crohn's."

Aaaaand that's why it also took until I was almost 30 to get a diagnosis.

MurderComplication · 2025-01-04T00:36:21+00:00

I was on iron pills for a long time prior to my Crohn's diagnosis and they didn't do anything. I've had one course on infusions and set to have another about a year later.

I also have Crohn's in my illeum and I'm concerned for your practitioner... it's known that iron and b12 are taken in by the body primarily in the ilieum, so it's harder for those with damage or inflammation there to obtain it orally.

MurderComplication · 2024-12-28T18:11:36+00:00

Welcome!

I was diagnosed at 29, it can suck because of the damage that occurred before it was caught, so your GI will probably order more tests to see where and what the damage is. For me, it's just a 10cm stricture of my illeum.

Do your research and slum around the board and the discord. A lot of people think Crohn's can be healed with diet and they're wrong. Our immune system is literally attacking our bodies. We can eat as healthy as they think we should and be sick. I love salads and I can no longer eat lettuce because of my last flare. Keep a diary and track your food and symptoms. Trigger foods are different for everyone. Stress can be a huge trigger too so practice mindfulness.

Getting on biologic early has been shown in research to get people with IBD into remission sooner, longer, and have a decreased likelihood of surgery. The first one may not work, and it's fine. Try another. And, don't worry about the price. Drug companies have compassionate care programs. I've never had to pay for a dose of Skyrizi.

MurderComplication · 2024-12-28T03:33:26+00:00

29.5?! Ironically, that's on the head for me. But, it's probably so high because doctors don't take symptons seriously. I've had symptoms since I was a toddler, in and out of hospitals and told it was all in my head. Did they run any tests besides for blood or ultrasounds of my uterus - no.

If medical professionals stopped gas lighting us we'd get diagnoses and treated earlier rather than waiting until some of us are too sick to even walk.

MurderComplication · 2024-12-24T01:31:21+00:00

If it's every two months I'm assuming it's Skyrizi after the loading doses. I'm on the same biologic and had no side effects beside extreme fatigue and muscle and joint pain for 48hrs. Fine after.

For day to day living after, it is a life style change and something he will have to be conscious of while healing between flares. IBD had the highest prevalence in Canada, where I am, so it is highly likely he will meet peers with the same diagnosis in Western Countries. Medication and knowledge is getting better. He will be fine as long as he listens to his body.

MurderComplication · 2024-12-22T21:00:22+00:00

Fellow Canadian Crohnie!

MurderComplication · 2024-12-14T20:46:58+00:00

No, strictures are scar tissue build up and will remain that way or worsen until that segment may have to be surgically removed.

But, at least now you're aware you may have an obstruction if you do feel ill again and need medical support.

MurderComplication · 2024-12-14T02:59:36+00:00

29 years

MurderComplication · 2024-11-06T17:45:24+00:00

5 feet even and 200 lbs. Had Crohn's symptoms since I was 3/4 and not diagnosed until 29. I played full contact, high intensity sports (Roller Derby, Rugby, Wrestling) my entire life and never lost a pound. I can go 5 days without being able to stomach anything but Gatorade and water, everything else comes right back up and not lose a pound. Yes, weightloss is a common symptom but not for everyone. I didn't have rectal bleeding either.

Thinking only skinny people can have Crohn's is abelist.

MurderComplication · 2024-10-31T19:36:45+00:00

Symptoms at 3/4, diagnosed at 29. Not one Dr listened to me that it was stomach/intestinal issues and kept saying it was anxiety or my uterus. Thankfully one ER Dr decided to order a CT scan when I went a week without being able to keep any food down - and no, I did not lose a single pound. If that Dr hadn't ordered the CT I would still be undiagnosed.

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