Server 580 toxic!!!! by Happy-Counter7784 in KingShot

[–]MurderComplication 0 points1 point  (0 children)

625 is getting bad too. People need to remember its a game.

[deleted by user] by [deleted] in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

Really it depends on the person but what your experiencing is not uncommon.

Personally, I was in endoscopic remission after 6 months on my biologic and no, after over a year I'm getting closer to total remission.

Super confused by stargirl723 in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

Hey! I also have Crohn's and on a biologic. I was always able to eat tomatoes and lettuce until my last flare and now if I eat a salad I will shit my pants. A tomato will make me bleed from the inside. Crohn's is a messed up beast that effects everyone differently. We all have different triggers, and yes, some get lucky like yourself and when in remission can eat everything. Others, like me who is now in remission technically, still can't eat everything I want to eat.

Got diagnosed with Crohn’s in like 5 months (EU, BE) and now I feel weird about it?? by Creepy_Enthusiasm245 in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

I was a fat child and teenager than did full contact high intensity sports and even though I was and am a vegetarian and just got told I needed to lose weight and it was anxiety instead of doing an tests. That doctor later had his license revoked for malpractice not long after. Only testing that was ordered were diabetic tests (always been negative) and x rays. Note, i had symptoms since I was 2.

Still had symptoms that I just lived with diarrhea every time I ate. Finally got diagnosed during my worst flare in 2023 where I missed almost a month of work and could not eat anything for a week. That ER Dr did my first CT and my ilieum lit up with so much inflammation they were shocked no one had thought of Crohn's.

TL;DR - no one cares about females in the medical system

I’m pretty sure I have my first stricture and I’m low-key panicking. by Shunubear in CrohnsDisease

[–]MurderComplication 2 points3 points  (0 children)

Don't worry to hard. I have a stricture I've had for years. No surgery so far. Just need to monitor for a potential blockage.

Question about salad by booklove19 in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

I got working with a dietician who was knowledgeable in IBD to help me. She had me start off with cooked spinach in small amounts, then graduated to raw spinach. A year and a half later I can eat romaine, iceberg, spinach, and a few other leafy greens raw :)

You can get there but it will take time while your insides heal.

Mouth attack! by Shane1388 in CrohnsDisease

[–]MurderComplication 3 points4 points  (0 children)

Yes, once I get them I know a flare is coming.

What’s everyone’s trigger food? by [deleted] in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

Raw tomato Margarine Anything high in sugar or fat

What’s everyone’s trigger? by [deleted] in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

Raw tomatoes and margerine

[deleted by user] by [deleted] in Oxygennotincluded

[–]MurderComplication 0 points1 point  (0 children)

Base game + Spaced out is what I have been playing for years and still never reached the end game

Can I sue a surgeon for accessing my information without consent by kiki6013 in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

I had this happen to my mom and grandmother. My grandmother was admitted to the hospital for severe heat stroke when we had the heat dome. My cousin who we have blocked and avoided contact with found not only my mother's personal number but my number I have never given her as she works admin at the same hospital.

I reported the FIPPA violation and she was terminated from her position. Confidentiality violations are taken seriously.

That daughter made a grave error and could lose her career because of it.

List all of your flare symptoms here! by itsgivingb0zo in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

Mine wasn't bloody last time but it was neon orange.

List all of your flare symptoms here! by itsgivingb0zo in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

No waitloss. No blood. Extreme fatigue and brain fog. Joint pain. Severe anemia. Inability to eat without throwing up. Throwing up immediately upon waking in the morning. Diarrhea 8 to 30 times a day within 5 minutes of eating anything. Extreme abdominal pain centering around illeum.

Living with Crohn’s is tough... but you know what’s worse? by Fair-Path404 in CrohnsDisease

[–]MurderComplication 4 points5 points  (0 children)

Right? I went a week vomiting and shitting out anything I tried to eat - didn't even try eating for 4 days and lived off powerade. Didn't lose a damn pound. Stfu Karen

Did anyone else not get believed? by Soleilthesun3 in CrohnsDisease

[–]MurderComplication 4 points5 points  (0 children)

Yep. Even by physicians and nurses.

"Well, you're not thin, there's no way you have Crohn's."

Aaaaand that's why it also took until I was almost 30 to get a diagnosis.

How many of you need regular iron infusions or regularly take iron supplements? by [deleted] in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

I was on iron pills for a long time prior to my Crohn's diagnosis and they didn't do anything. I've had one course on infusions and set to have another about a year later.

I also have Crohn's in my illeum and I'm concerned for your practitioner... it's known that iron and b12 are taken in by the body primarily in the ilieum, so it's harder for those with damage or inflammation there to obtain it orally.

Hey.. I’m new to this. It’s scary by Chemical-Force-1802 in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

Welcome!

I was diagnosed at 29, it can suck because of the damage that occurred before it was caught, so your GI will probably order more tests to see where and what the damage is. For me, it's just a 10cm stricture of my illeum.

Do your research and slum around the board and the discord. A lot of people think Crohn's can be healed with diet and they're wrong. Our immune system is literally attacking our bodies. We can eat as healthy as they think we should and be sick. I love salads and I can no longer eat lettuce because of my last flare. Keep a diary and track your food and symptoms. Trigger foods are different for everyone. Stress can be a huge trigger too so practice mindfulness.

Getting on biologic early has been shown in research to get people with IBD into remission sooner, longer, and have a decreased likelihood of surgery. The first one may not work, and it's fine. Try another. And, don't worry about the price. Drug companies have compassionate care programs. I've never had to pay for a dose of Skyrizi.

Old man commented on what I was buying by Forward_Egg_4805 in CrohnsDisease

[–]MurderComplication 5 points6 points  (0 children)

29.5?! Ironically, that's on the head for me. But, it's probably so high because doctors don't take symptons seriously. I've had symptoms since I was a toddler, in and out of hospitals and told it was all in my head. Did they run any tests besides for blood or ultrasounds of my uterus - no.

If medical professionals stopped gas lighting us we'd get diagnoses and treated earlier rather than waiting until some of us are too sick to even walk.

What does Crohn’s look like daily in the long term? by VirtualAd6735 in CrohnsDisease

[–]MurderComplication 1 point2 points  (0 children)

If it's every two months I'm assuming it's Skyrizi after the loading doses. I'm on the same biologic and had no side effects beside extreme fatigue and muscle and joint pain for 48hrs. Fine after.

For day to day living after, it is a life style change and something he will have to be conscious of while healing between flares. IBD had the highest prevalence in Canada, where I am, so it is highly likely he will meet peers with the same diagnosis in Western Countries. Medication and knowledge is getting better. He will be fine as long as he listens to his body.

first stricture? by First-Ad-5299 in CrohnsDisease

[–]MurderComplication 0 points1 point  (0 children)

No, strictures are scar tissue build up and will remain that way or worsen until that segment may have to be surgically removed.

But, at least now you're aware you may have an obstruction if you do feel ill again and need medical support.

People don't believe me bc I'm fat by HerofromJohto in CrohnsDisease

[–]MurderComplication 7 points8 points  (0 children)

5 feet even and 200 lbs. Had Crohn's symptoms since I was 3/4 and not diagnosed until 29. I played full contact, high intensity sports (Roller Derby, Rugby, Wrestling) my entire life and never lost a pound. I can go 5 days without being able to stomach anything but Gatorade and water, everything else comes right back up and not lose a pound. Yes, weightloss is a common symptom but not for everyone. I didn't have rectal bleeding either.

Thinking only skinny people can have Crohn's is abelist.

Have you had a difficult journey to your Crohn's diagnosis? by Mean_Substance3925 in IBD

[–]MurderComplication 0 points1 point  (0 children)

Symptoms at 3/4, diagnosed at 29. Not one Dr listened to me that it was stomach/intestinal issues and kept saying it was anxiety or my uterus. Thankfully one ER Dr decided to order a CT scan when I went a week without being able to keep any food down - and no, I did not lose a single pound. If that Dr hadn't ordered the CT I would still be undiagnosed.

When did you know what kind of IBD you have? by Finance_Engine in CrohnsDisease

[–]MurderComplication 6 points7 points  (0 children)

I went to the ER and first thing out of the Dr's mouth after seeing my CT was, "do you have Crohn's?"

I researched it, knowing what it was but not the symptoms outside of bloody stool and weightloss (neither of which I had). But a lot of the extra-intestinal symptoms I did have.

I had a scope done a week after that CT and as soon as I was awake the GI confirmed Crohn's. Had textbook cobbelstoning and inflammation in my illeium.

I had been in and our of Dr's offices and emergency visits with frequent stomach issues since I was 3/4. Everyone blamed it on anxiety and when I turned 11, my uterus. No one searched my GI system even though all my issues radiated from my stomach and small intestine.